on and off

Hi everybody

It is really great to talk to other PD sufferers.  I was diagnosed four years ago at age 68.  At first its like walking about in the fog.  Notwo PD sufferers are the same.  No-one seems to have any answers!!  I struggle to try and pin down what is PD and what are the effects of the drugs?  Can anyone give me any help on this.  Also what is really meant by on and off times. I am on Sinemet Retard, Sinemet Plusw and a Neupro Patch 

 ts good to talk

Spanishpd

Spanish PD, Welcome to HealingWell.I hope you hear from some of the others with pd.Off time is what I'm experiencing now as I wait for my morning meds to kick in.I guess it would be best defined as that period of time where one dose of meds has worn off,and the other dose hasn't become effective yet.The time sinemet is effective varies from individual to individual,and as most will tell you from day to day.Stress levels ,diet,and exercise are just a few of the factors that are known to effect on time of sinemet.Wishing you the best,and stay in touch.Ed

I have had pd since 1995 and my meds are very unpredicable .I have rode bikes and was a distance runner for about 20 yrs and my strong legs have been my greatest assets.I have a balance problem but have never fallen.Take your meds on time ,try to relax and give them time to kick in.Some times you may have a few bad days in a row.Just keep telling yourself that tomorrow will be better and if that doesent work then i get mad,craw off the couch and lift weights or what ever because with out strinth,even when your on ,you wont be strong enough.If you are missiing to much exersing then try to catch up when your on.You will feel better and stronger.Also never feel  llike your world is over because this your world now I dont pray for a cure any more ,I pray for strinth to get through one day at a time and some day become a better speller.Keep chalanging your self with more work or projects.Sometimes I stay so busy that sometimes I think I forget to turn off.Isent that weird.

Good luck because that works too

i

 Thanks for all the replies.  It was a great help particularly with regard to eating and exercise.  So much so that I rushed out to exercise and ruptured my achilles tendon!!!   Leg in plaster for two months!!  However it could be much worse I suppose.  Keep smiling

Are there others out there who suffer from facial distortions at off times?  I feel as if someone has grabbed the whole side of my face and is squeezing hard.  Difficult to speak, swallow or breath on one side.   From Spanish PD

Im sorry about your leg but while that leg is healing,I suggest buying a upper and lower body cycle.Dont do the lower stuff untill your dr. tells you you can but this litle device made by Gold Gym(I hope I not breaking any rules by putting a name brand,I dont know any one else that makes it) Any way you can sit this thing on the floor,you can pedal it like a exercycle while sitting in a safe chair or you can sit it on the table and pedal it with your arms and hands.It has a tension knob to make it easyer or harder.It comes with a workout pamplet.Im glad you dident hurt your back.I have a little spinal stnoisus( I cant spell it sorry.) but since I have stiffness with my parkinson's I have pain cropping up hear and there,no big deal but becareful with that back.When I do any bench work I always prop my feet up on the bench so they dont hang down and strain my back.

civilanpd,

What do you do when you go off?what do you do to get back on as soon as you can?