My daddy was diagnosed with PD about
15 years ago. He was 55 then. The progression has been slow and, as a family, we have been able to adapt to his changing needs. But now things are now changing so fast. I thought I was ready for this next chapter, but I am not.
A while back I was at an Alheimer's seminar with my work and a speaker there stated "Remember that today is going to be your best day. There is no getting better here and we have to accept this and get ready for what lies ahead." That stuck to me like no other statment that I'd ever heard. And he was right.
My daddy fell two days ago and broke his clavical. Over the summer he lost over 40 lbs. He is sleeping more and more. I hope he is jumping and dancing while he dreams. When he is awake, everything is a challange. We are going to wait until he can no longer chew and swallow to get a feeding tube. But is has been recomended. We know he will pull it out.
My daddy turns 70 this Jan. He is too yougn to have to be in this state. I am so angry at this disease. It has taken away so much from my dad who is such a wnderful person. He is an artist who can't paint, a story-teller who can't talk, and a social butterfly who has to sleep all day.