New to Community

Well, I guess like everyone else, I never dreamed I would be in a Parkinson's Chat Room.

I was diagnosed in May 2006.  I am taking Carbadopa/Leva, 5 tablets a day.  I really hated to have to take so much just starting out but anything less did not control my symptoms (shaking, walking difficulty, off balance and unable to think well).  I'm wondering if anyone else takes (or took in the beginning) this much med?  My neurologist says that 6 a day is the limit with this med.

Also, I am experiencing eye problems (dialation of my eyes usually in the evening with really blurred vision).  The neurologist and opthomologist agree that it a side effect of  the Carbadopa/Leva.  Anyone else experience this?  Also, I have heard that there are eye problems occasionally associated with PD but have not heard what they are.  Anyone know about that?

I am exercising 45+ minutes daily in the pool and hope this will help in keeping the muscles in as good shape as possible.  Our pool is not heated though but can travel into town to therapy center when the weather gets cooler. 

Interesting note:  While watching the movie, "Saving Millie", my husband asked me if Millie reminded me of anyone and yes, she did.  He and I both thought she and I had similar personalities.  I asked my neurologist if there was a "Parkinson Personality".  I was surprised when he said that there was.  He said they are usually "detail oriented" people and he enjoys treating PD patients because they will read and find information on their own and follow drs instructions well.  He also mentioned that on certain meds Parkinson people can become obsessive/compulsive.  Thought this interesting.

Like most others, I suppose, I originally had a hard time accepting that I had PD but think I have accepted it pretty well now and know that I am not in this alone, I have wonderful family support and, most importantly, I cannot go to a place where my God is not already there waiting on me.  That is such a comfort.

Have a blessed day.  Connie

Thank you for responding, JBPhotonut.  It is good to hear from someone who has had the eye dilation also.  It was frightening until I found out what was causing it.  If I continue with the blurred vision I might see if I could cut back on Carbodopa (Sinement generic) and add something else.  From your ID I assume you are into photography also . . . my hobby.  I used to have a dark room of sorts (converted closet) but went to digital probably 3 years ago. 

I'm also wondering if anyone has tried the treatments available for PD voice problems.  I am certainly considering it.  I taught a Bible class to the lady inmates at our local jail for 6 years but my voice became so bad (soft, hoarse, scratchy) that it was difficult for the ladies to hear me.  Retired from the jail about a year ago, not knowing what my problem was . . . now I know.  If anyone has gone through this treatment I would appreciate hearing from you and whether you considered it beneficial.

Thanks for sharing.  Connie