Responding to posts - disapointed

understand your point but its hard to give advice when we are on different cocktails of meds and by and large have varying symptons.

My own way of handling medication is to take the minimum I can get by on.  This means that sometimes I suffer a worse quality of life because I am under medicating myself.  I do this because I fear eventual non reversible side affects that can be a consequence of long term use of levadopa and other stuff we all take. 

Another problem is that no one can know how bad or good you feel.  Only you can judge that and whereas I sometimes put up with feeling like hell rather than increasing the dosage of meds someone else might decide, with the acquiesence of their doc, that they want a better quality of life now, try new meds or juggle with the meds they already take and let the future take its course.

Not much help maybe but its my view.

GOD BLESS

Billy

Why am I on it is a good question and one that we should all ask when prescribed meds for PD.

Unfortunately, we all respond differently to the illness and there only general guidlines.  We are, therefore, just like guinea pigs when it comes to a doc or a nurse prescribing. We can't really blame them because they are doing their best, but be guided by your own reactions to the drugs.

My advice is to stop and think 'am I really so distressed that I need more and more or can I get along as I am for a bit longer.' 

Its a tough making choices like that and ultimatley you must be guided by your doc, not by people like me who have their own methods of dealing with the med or not to med question.

I do what I think best for me on the basis of what I hear and see at my local PD support group. If you are lucky enough to have one near by then best go along and give it a try.

Keep smiling

GOD BLESS

Billy