Posted 4/30/2007 7:33 PM (GMT 0)
I fought against going on the Sinemet Plus but have agreed with GP to go on the next one up to the mildest one. The next one up to that is the Sino Plus.
I am having a loathsome time.
I didnt even sleep for one hour last night and I was as 'high' as a kite for four days when I was absolutely 'eurphoric' and I have no idea why.
Today I went down to the harbour. there is a pier which is two miles long and about 10/15 along is a small victorian bandstand.
That was my aim.
With rollater frame I forged on but I didnt make it to the bandstand. My legs refused to walk.
The mind was willing but it was just dreadful. I was about two thirds the way there and I wanted to continue but what if I got there and couldnt walk back.
I also found it quite grim to see others power walk the pier in the bright sunshine, looking healthy and here I was fighting to put one foot in front of the other.
Back in the car I wept!
This is the person who"you don't have PD you just WANT it" according to my neuro.
The health board physio came this afternoon and gave me very sim[ple leg exercises. Kicking the legs out alternatively from a sitting position. I couldnt do it. Well, I could but it was like as if I was very very old.
She then suggested I teach painting at the polio fellowship and also getr the physio there.
I dont think she quites understand how unwell I am.
I thaught there for years and that is not where I want to be now. If I could I'd be in my studio.
Please could anyone hypotosize - do you think I am this bad SO QUICKLY because I have another severe illness like the crohns which is misbehaving at present?
The neuro has given me an appointmet for three weeks time and I have not gone up to the Sinemet Plus as he told my GP to do .
I am absolutely terrified of seeing him.
xAnn