So here it is getting close to Mother's Day and those tender "Hallmark" moments on commercials showing how it is suppose to be with your parent and I cry. Not because of the commercial or the cards in the stores, but because of what I don't have because of this disease. They are no cards that show what I do for Mom on a daily basis, no card that will reach her mind, no card that will make her smile or laugh any more. No floral bouquets of "Thinking of You", hers should say "What are you thinking and could you tell me" Family dinners never show the pureed food or parents wearing oversized bibs. Diapers for adults never show them really in use.
I applaud all of you for your courage to continue to fight and to maintain a "normal" and "rich" life despite this disease. Keep asking for better care, more knowledge, better and safer meds. Sharing what you have learned in order to help others. I think this year rather than celebrate the commercial side of life, I will find a way to celebrate life "as is".