HealingWell
Search Close Search
☰

Never Give Up! Never Surrender!

Support Forums
>
Prostate Cancer
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 4/5/2009 10:09 PM (GMT 0)
Today, Sunday April 5th, 11 months after surgery TO THE DAY - my wife and I had real intercourse for the first time since surgery. The only "aid" I had was a Cialis - taken Saturday morning.

It is still not perfect, but it is getting darn close. I was able to get it up to a useable level (with not a whole lot of stimulation) and keep it up for as long as we wanted.

I take Cialis twice a week, and I pump 3-4 times a week max. I'm a slow-recovery guy for the most part, and fighting Peyronie's has certainly not helped. I developed a pretty wicked case of it RIGHT before I was diagnosed with PCa.

Excuse the graphic details, but I just wanted to let other slow-recovery guys know that it CAN still work - just keep plugging away. It is not a steady improvement path. It seems to jump from one plateau to another. I would go for weeks or months and nothing would happen, and then ding! Noticeable improvement. Then more weeks or months of nothing (but at the improved level) and then ding! More noticeable improvement.

I've been told you can make improvements in the ED area for up to 2 years. So hang in there guys! The old soldier can apparently still stand up and salute if you give him enough time.

kcragman
Posted 4/5/2009 10:39 PM (GMT 0)

Great news. We had the same ED progress at about the same time in recovery (10 months I think it was for us), so celebrations all around - you must be relieved.  You will probably now find that the spontaneous improvement will continue for well into another year as it did for us. We also found that some meds (my husband used Levitra 20mg) also tend to work the next day sometimes. The odd thing was that spontaneous morning function (without meds) returned later for us - well into the second year,  and at approximately 18-20 months. Now (at almost 2 years) same as pre-op. I would say that at 2 years my husband is close to 100% recovery using meds from time to time. It also depends more now on whether he is tired, had long day etc - so we put no pressure on ourselves.  It is a slow process for some, but we agree - it can and does happen this way for some. Nothing much before 8 months however. Great news - hopefully all will only continue to improve for you. cheers & all the best

Posted 4/5/2009 11:10 PM (GMT 0)
Congratulations!  It is always good to hear about great progress and this is a significant milestone.  Keep up the good progress.  David

Posted 4/5/2009 11:19 PM (GMT 0)
Congratulations kcragman, and thank you! You have renewed my hope. My trimix injections make the mechanics of sexual relations possible but the knawing aching pain from the medication itself totally destroys the desire. I hope to get the medication changed at the next urology appointment, in about two weeks. Again, thanks for the renewed hope.
Posted 4/5/2009 11:30 PM (GMT 0)
thats great news kcragman, happy for you and your wife
Posted 4/6/2009 12:07 AM (GMT 0)
How sweet life is, the beautiful love between two loving people. The waiting was not only worth it I bet it brought you closer together. Thanks for sharing such a heart warming story. My motto has always been Love will find a way.

peace and love
Dale
Posted 4/6/2009 1:10 AM (GMT 0)
Wow. That is great news. We are so close together on the recovery (except I think I was continent before you). I was able to obtain a useable erection yesterday without the pump. It didn't last as long but it was the best so far.
Posted 4/6/2009 1:24 AM (GMT 0)
Thanks for the inspiring story. I am 6 months out and have been quite depressed about this issue too. I also have Peyronie's Disease, in my case as a direct result of the trimix injections I think. It is still a mild case and doesn't seem to be getting any worse.  I notice I am  now using less and less trimix to get a usable erection so maybe that's a sign of improvement and trimix no longer hurts like it did just a month ago. My goal is to forget about the injections all together and get by with just one of the magical pills. I'm going back to urologist end of this month and will try levitra once again........thanks for the hope...
Posted 4/6/2009 1:15 PM (GMT 0)
Wonderful news, as difficult as it is, this is a long term fight for most of us, and you are proof that it is a winnable fight. Never give up and never give in.
Randy
Posted 4/6/2009 8:10 PM (GMT 0)
Thanks for the replies. It is always good to hear that one is not alone - regardless of which bizarre path this disease leads us down. Like some of you, I had some days where I just thought it was over - I was never going to do "it" again. But, if you keep on keeping on - sometimes you are fortunate enough for it to work out.

I wish you all good fortune,
kcragman
✚ New Topic ✚ Reply