HealingWell
Search Close Search
☰

New Memeber....Refrences?? Questions

Support Forums
>
Prostate Cancer
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 10/11/2009 1:02 PM (GMT 0)
Hi Everyone ,
i am a new member on this site which came recommended to me by an old friend with the same disease....i was DX with Gleason 6 cancer by my Uro DR Antonio Reyes in Pembroke Pines FL which i am considering to do a Da Vince procedure with him but i could not get any references about him
If anyone knows or heard about him i would appreciate a response....

Thanks a lot
Posted 10/11/2009 1:10 PM (GMT 0)
MIZRAV, hopefully someone will come along soon to answer your question.

If I might correct you, there is no grade 6 cancer. I suspect that what you have is Gleason 6 - this is the grading system used in prostate cancer. Gleason 6 is usually very treatable but should you choose surgery, the final pathology report will provide more details about the extent of your cancer than the biopsy did.

Good luck with your surgery, and please keep us posted.
Posted 10/11/2009 1:15 PM (GMT 0)
Mizrav, First, welcome to this site. This is a great place to find information, support and share a little of yourself with a bunch of great guys and some gals. As we always tell the newcommers, sorry you have to be here, but glad you found us. I assume that when you said stage 6 PCa, you mean Gleason score of 6. Depending on your age and other factors, surgery is not an only option. Have you considered other alternatives? A big theme here at the forum is getting second and third opinions from specialists in different field, like oncology, radiation, and urology. If you could share a little more about your stats in the signature, it would make it easier for the crowd here to give you their opinions. Lastly, to your original question. I am sure others will be replying shortly. Since we have several Floridians here, it is likely they may know about your doc. Best of luck on your journey. Keep a cool head and take your time making a decision. Greg
Posted 10/11/2009 1:39 PM (GMT 0)
Welcome here! Glad you found us.

There are 4 stages of the cancer, and Gleason numbers up to 10. Chances are, you are a Gleason 6. With a Gleason 6, depending on a few other factors, you usually would have the most primary treatment options. It would be good too study and know these options before locking down on a choice, if you haven't already.

We are here to support you regardless of what treatment you choose.

David in SC
Posted 10/11/2009 7:48 PM (GMT 0)
Greetings, MIZRAV.  Welcome to the forum.  I live in Virginia so don't know anything about your doctor in FL. I know we have lots of folks here that have ties to FL so hopefully one of them will join in soon.  David
Posted 10/12/2009 8:05 AM (GMT 0)

hey, your best bet in FL is Jan Manarite in Sanibel. She works with the PCRI. My dad was diagnosed with stage 4 pc and lived for 7 years. trust me. pcri.org, melody (you can reach me at [email protected]

Posted 10/13/2009 7:22 PM (GMT 0)
MISRAV,

We are very similar at this point in that I was DX in Sept. also. While I am a newcomer, I can give you one piece of advice....your Gleason score of 6 indicates that you can slow down on making a quick decision. I am a good example of someone who is heading in a different direction after talking to my Urologist, two Radiologists and an Oncologist and doing a lot of reading on this website. I recommend that you read the string that begins with "Firmly on the fence". It is a good, frank discussion among a lot of the guys on this site about the decision between surgery vs. seed implants (with or without accompanying radiation). Tudpock and John T. have some very good points to consider....as do the proponents of surgery.

My first reaction early on was that I wanted surgery. Further research (and my stats below) have changed my mind. While I have not made the final decision yet, I am almost positive it  will be seed implants with 5 weeks of IGRT.

As several of the guys have already pointed out, there is a lot on information to process and you have some options available to you. The choice in the end shoud be the one you are the most comfrotable with.....nobody has "the answer". Best wishes on the journey....I'll be on the road with you.

_________________

Age - 67  PSA - 4.5  Gleason - 3+3=6  Stage T1   Cancer found in 5 of 8 sections. Ct and Bone Scans were negative.

 

Posted 10/13/2009 7:56 PM (GMT 0)
Hi MIZRAV,

Just wanted to say hello and be sure to read BigG's post above on Active Surveillance (AS) protocol. Your numbers and his are very close to each other.

BTW Hello to BigG as well. Not many AS members here and it's is most refreshing to see some of the folks that have gone this route to come here and give us their insight into this protocol.
Posted 10/14/2009 9:01 AM (GMT 0)
Thank you all for all the great info and suport i hope to read more posts and knowledge anywhere i can get it from and make the right decision for myself.... i will keep visiting here to hear and read more opinions as you are the more experienced ones....

Thank you Big G and i hope we both come out well from our similar journey....

JM
Posted 10/14/2009 9:18 AM (GMT 0)
Hi MIZRAV,

i am glad you found a crowd that can respond well to your fears and questions, i recall my days of fear and urgency .. wish i had found this forum myself before surgery ....

take your time with your decision ... the key factor is who is the surgeon as it is a delicate operation, from my experience and knowledge , and after a long research ....if an operation route is chosen, it seems that the DaVincie robotic procedure is mostly not only popular but also the one with the better chances for faster and easier recovery as well as gives you the best chances of better quality of life there after
(oppose to open surgery or LRP (Laparoscopic procedure).
one of the more popular and known surgeon i have heard of , was through this forum where one of the members here had done his procedure at Mount Sinai Hospital / NYC with Dr. David Samadi ..there is a wealth of knowledge and videos on their site

http://www.roboticoncology.com/

check it out my friend....

good luck and if i can be of any more help just let me know!!!

GB
Posted 10/15/2009 6:51 AM (GMT 0)

BigG said...
MIZRAV,

This is one of the most important decisions that you will make. It is an irreversable decision in most aspects and you cannot really ever know if you have made the right one. Each option has pros and cons. You do have time for research. As others here have counseled, take your time and do research.

Good Luck MIZRAV and let us know how it goes. There will be many more men behind you that can learn from your experience.


GREAT ADVISE BigG

Mizrav is an old friend of mine and the first thing i had suggested (since i am also a survivor and a member here ) is to research research and research...and the first step is register in here and hear all of you.....the most important research is how qualify ids the Surgeon as you said... i for one rushed into my decision not knowing much about it ..but for my Uro/ Surgeon credit he laid out all the options for me and recommended to meet with other Dr.s as well (Radiologist and oncologist)... and even explained to me the pros and cons of a watchful waiting...i even read that Cyan tablets (which generated from spicy paper) with combination of nutritional approach such as healthy diet that consist of lots of greens vegies, fruits, Pom Juice, Soya etc etc will reduce the cancer or even may eliminate it in the non aggressive cases (most cancers being treated with green diet in addition to the medical approach..).

so i am sure that each one of us pick the right choice for themselves with the right know how... i am lucky enough to be able to have as close as to normal quality of life after my open procedure , thankfully to a good surgeon as well.

Good Luck as well and keep us reading and informed
and again thank you for your posts....


GB
✚ New Topic ✚ Reply