I am not yet a full-fledged member of this club, but unfortunately I appear to be heading there (details in my signature). It has been tough. Anyway, I'll finally get the biopsy out of the way on Monday the 30th. If the biopsy is negative, I'll have to see what the doctor recommends. I imagine it will be to wait and see what my PSA does in 3 months? If positive, then I will go the surgical route if appropriate. I'll also consider WW if the results are extremely good . But, suppose the biopsy results are really bad -- to the point where Dr. Menon feels surgery will not be helpful.
What are my choices then? I think I would want to consult a capable specialist, given the advanced nature of my cancer in such a situation. Would radiation treatment be appropriate in such a situation?
Has anyone gone to Mayo in Minn.? In particular, there is a Dr. Kwon who seems to have done some good work (see http://discoverysedge.mayo.edu:80/de09-2-kwonblute/ for an amazing result). But, of course, I would not want to suddenly go experimental without trying something else first, I would think. I emailed Dr. Kwon and he wrote back a very nice email indicating that he has a clinic there and he does regular treatments as well as the advanced experimental stuff). Any thoughts? Is anyone familiar with Mayo in Rochester and/or Dr. Kwon?
Incidentally, I know some of you might read this and think that I have gone off the deep end (mentioning such experimental stuff before any dx.). It's just that I know myself and if I got terrible biopsy news I might not be able to think rationally for awhile. I think it is rational to have a plan if surgery is not feasible. But I don't have a plan yet.
I know, the responses...TAKE A DEEP BREATH.
Mel