An Unpleasant day and doctor's visit - Pain City

It is a full moon, or close enough. Charlie Brown got the dark pants right, but it was job related - (paraphrased) -doing a good job here is like peeing yourself in dark pants - gives you a warm feeling, but nobody notices.
I think we should alter it - surviving another day includes peeing yourself in dark pants - gives you a warm feeling, but you hope nobody notices.
We both know what that 10 means on the stupid pain scale. I'm feeling for you. Hang in there just isn't enough tonight.

Post Edited (142) : 3/30/2010 9:32:16 AM (GMT-6)

David, there is no embarrassment or humiliation what so ever on make some wetness due to your condition. you should be proud of yourself being so strong and able to put up so much pain.

I am sorry for all the not yet finished suffering you had been through. it is very difficult to deal with. we all pray for this end soon.

Hanging there, we all be here with you.

Jennifer

Unbelievable, David!

I hope the unfortunate spraying incident means that passageways are still open and that is somewhat of a good sign.

Many good thoughts, prayers, and hopes for comfort go out to you, my friend.

Barry

Hi David,
I'm going to chip in and ask a question here (Lana without CJ for a moment) if you don't mind. I am sure you have thought about it (particularly with your wife and her knowledge), but it sounds to me as if you are a little reluctant to take pain killers? If this is, or has been the case, have you thought about taking them (strong ones) an hour before such events? or Would you consider asking the doc if you are unsure of the benefits? My instinct tells me with the right pre-procedure pain relief, given your known situation now, might reduce the 10 to a 7 at the highest - still not good but just wondering if, with intense expected pain from now on, could you knock it on the head (not talking about sedation here - just oral strong analgesics) prior to anything happening? So that when you have the procedure the main effect is starting to kick right in?

Just throwing in this thought mainly to take your mind off it for a moment if you want to respond. Like others, I am shocked at what you have had to endure. I also think your advice to new people is most invaluable. Once (in the very early days), I could not read truth such as yours - it scared me too much as the wife of a survivor. Now, you are a "cyber mate" are going though it, and like others, I am focused on hoping you find the solutions and the strength to work it out, and am, of course, with you all the way. No need to respond if you are not up to it - just adding ideas. You seem to have it all well in hand but is there a stronger Plan B for next time? I hope so, and that your pain is reduced now and in the future.

Now, from both of us, We are going on holidays tomorrow for about 10 days - hope you heal in comfort, and that when we next check in things are better for you. Lana & CJ

hope al is going beta 4 u now   hope things improve 4 you  apreciate al the info u given me

What a day or should I say "daymare".

As ever with your accouints of your hassles you almost make light of things by only using a word like "Unpleasant" to describe it. I can't imagine what it was like, and I can imagine too much most of the time. This thread shouyld ahve been called an "@#$%^& day"!!

One for the record books and I thought you'd already rewritten the record books.

All the best to you and to your wife too as this must be getting pretty bad for her.

Alfred

142 - perhaps i took it too serious, but in my world, a 57 year old man doesnt stand there shaking off a painful spasm while pissing his pants, leaving a pool of urine on the carpet of a crowded waiting room. Never felt so shamed. Fortunately, the worse part of the "10" pain portions only lasted in the 15-20 seconds at a time range. Doesn't make it hurt any less though.

dave - you r quite right, its this next PSA test that weighs heavy in my heart. i will take even a .01 decrease in the previous reading that I have made a positive turn

thank you jennifer and sheldon, appreciate it. was so glad my wife was with me, i almost had asked her not to come, as i didnt think she would be needed

barry, does mean that under pressure, the bladder neck could still open, but still too swollen to use on a regular basis, i be the urine show up at least 4' above me in an arc shape of pretty golden spray. dr. got nailed but good, but he laughed and took it all in stride

jeff, thanks my spicy brother. hope pat is still healing well too, was wondering about her. april 6th will be a strange day, i will have the PSA drawn (but no instant results), my wife has to have a heart related test, and it will be our 36th wedding anniversery

lana. not afraid to take the pain pills, but you have to realize, i have been on and have needed to be on pain pills for just shy of 6 months now. my dr. doesnt seem to think i would have an addiction problem, but it does concern me. i wont take them if i know i have to drive somewhere, so usually wait till late in the afternoon/early evening before i take any. yesterday they were going to scope me, so they would have put 100 mg of demoral in me, but i said no to the scoping before she gave me the shot. in the end, wished i had had the shot, would have made the rest easier. plus, this cath change was suppose to be a fairly minor low pain even, both myself and dr. were surprised, but again with radiation damage and other issues, no way to be sure ahead of time. thanks for your care, and enjoy your holiday

thanks to dog, and bedamed and joey, i care about all you guys too, we each have our private battles with PC

alf, my well seasoned nurse of a wife sees it all on a normal day, she tries to take it all in stride, she just hates to see it when i am in deep pain of course or feeling like giving it up. i try to make it up to her, by being the perfect house servant, when she gets home, all she has to do is sip on a glass of wine i hand her, and wait for supper to be finished. she never ever has to do house work or laundry, etc. try to make the rest of her life easier for her.

kbars, you speak from experience. my dr is all too aware how quick that hole can close up. he will not allow his nurses to do a SP change out, he does them himself. As quick as he was yesterday, he said that the hole was tightening around the cath too quickly and too tight, but he knew he had to get it in. most SP cath changes arent so dramatic, they do them where my wife works all the time, old one out, new one in, minimal pain or discomfort. My dr did say, that next time, we will be better prepared for the pain part, he said he fill fill the hole with lydacaine, and put in something to hold it in place for about 5 minutes. he still thinks the radiation damage/swelling is complicating things

David I dont know what to say that hasnt been said. I am amazed at the magnatude of your struggle. You will be in my prayers today and everyday. When I start to get down and have a personal pity party, I always think of you and your battles. Like the old Indian in Jose Wells said so elequently. Endeavor to persevere. Todd

David once again I read a post from you and a tears well up in my eyes. I wish I could throw you something your way to ease your pain and burden that would take all this away. I will however send you my prayers of healing.

Take care my friend.

David,
All that I can possibly add to what has been written is, darn!!!

Wigs

so so so very sorry to hear that David, and glad your back at home resting. Take it easy. One day you'll get your much deserved break. It will come.

 David, we hope for you, we think of you, my nurse self wants to fix it NOW! But mostly we know this must & WILL improve. Hold tight,you are without question ,the absolute best patient EVER!  Mr. Sox Fan & Nurse Annie

David:

I've been staying off of HW for a few days, trying to give it a break so to speak.

I wanted to see how things went for you and I was disappointed (to say the least) to read of yet another miserable session.

I can only add my voice to the others. I'm still waiting for you to catch a big break.

I remember being amazed that when they removed my SP Cath a week after surgery it really did seem to heal almost totally in a day or two. I couldn't believe it, although they told me it would.  But I now see what a problem that is when one just wants to change the cath. Yours seems to heal up extra fast (or maybe that's the case for everyone so they have to work fast).

Let's hope you get a big break on your next PSA. Also, in advance, Happy Anniversary.

Mel