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Any experience with Muse?

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Posted 5/1/2010 3:30 PM (GMT 0)
The Dr gave me a prescription for Muse 250 mg to begin in 3 weeks from the cath removal and repeated every other day.  Has anyone had any experience with this?
Posted 5/1/2010 3:43 PM (GMT 0)
I gave it a try. Did not work for me. Made me very uncomfortable. Burned like hell. Used it 2 times and decided. This is a no go for me. In addition it did nothing for the ED!

I have moved on to injections. So much better:)
Posted 5/1/2010 6:55 PM (GMT 0)
MUSE is barbaric at best. I can't believe Dr's still prescribe it. Injections are better, by far. Use Trimix Gel if you can't inject. Use a pump twice a day... good luck. Maybe you'll be one of the few men for whom MUSE doesn't hurt like hell. Don't mean to scare you, but there are far less risky ways to work in the ED problem.
Paul
Posted 5/1/2010 7:05 PM (GMT 0)
Never used it, but from what I researched on MUSE, it is often a painful experience, even the insertion down your urethra can be a problem for some men, and it has a low sucess rate on the ED side even if you can get past applying it.

I wonder how effective the Trimix Gel is, anyone out there used that?
Posted 5/2/2010 12:34 AM (GMT 0)

I used,it is a littler unconstable but it work for me.

The only thinkg I did not like was, that after I finish I need to put ice cube to bring it down.

Posted 5/2/2010 2:41 AM (GMT 0)
Hey David,

How many times do I have to update my Trimix Gel thread before you see it?? (On the other hand you've been pretty busy with lots of distressing stuff not to be worried about piddling stuff like gel and muse).

Anyways, my latest update on trimix gel was: it worked really fine @100 percent levels as long as ...<drum roll please >
I added a 500 mcg MUSE to boost it!! Pretty funny and ironic yes?

(Actually what that says to me is I need a even stronger prescription than the 1000/300/100 mix (which
is the strongest standard mix for Trimix).

When I run out of the current batch of Gel will try getting something stronger Maybe more Papaverine .. not sure.

fun stuff ...

jim
Posted 5/14/2010 12:26 PM (GMT 0)
Chatuge - I am scheduled for surgery with Dr Shah later this month and he is recommeding the use of MUSE. This i believe is something he started doing only couple of months ago. Prior to that the protocol was tablets and pump. Very curious about your experience with the surgery, Dr Shah, recovery, use of Muse and any other advise and feedback you can give.

Thanks in advance
Posted 5/14/2010 1:46 PM (GMT 0)
He didnt even mention Muse to me after my surgery in May of 09 so not sure what has changed or why. Hope that it does work for you as my ED continues one year later, but I have now had radiation tx as well.

Michael

Posted 5/14/2010 7:47 PM (GMT 0)
Thanks everyone for the responses--for chitown-I am now 24 days out of surgery and in a lot of pain in the rectal area, so much that I called Dr Shahs and he prescribed a cortizone suppository and suggested I see my Gastrointeroligist who also prescribed an external cream.  On the positive side, on the continent issue, I am essentially dry.  On the ed issue, Icalled Dr Shah and said I did not like the idea of the Muse and he prescribed pills Levitra-and the pump.  Too muchpain down there to try any of that yet.  From what everyone-with experience- on here says, we are all different and heal at different rates butt (pun intended) I sure am anxious for some healing back there!!
Posted 5/14/2010 7:49 PM (GMT 0)
Hope it gets better soon Chatuge as pain is only fun for a few seconds. Glad you got the pills, not sure why he went to muse as it sounds like I wouldnt want that either.
Michael
Posted 5/14/2010 7:56 PM (GMT 0)
Right...wondering why the push for MUSE recently...many aggressive marketing by the pharma company that makes MUSE.
I was planning the pill and pump route and see of the doctor is ok on that. from what i have read the injection or gel also work well so will have that discussion too,

any advise on when to start the pill/gel/injection combo and other advise for recovery
Posted 5/14/2010 8:19 PM (GMT 0)
I always thought MUSE was the third-to-try after Pills and Pump. It is for my Doc.

If pills don't work and you don't like the pump and you don't like Muse, then you could go stick yourself ...

But you do have the extra option of Trimix Gel too instead of Trimix injections.

The Gel is probably a lot less reliable than injections but not much data out there.
(but it is a lot easier to use and you don't even need to have the Doc show you how to do it -- no wasting a shot in the office).

Trying a six pack of Gels will at least give you some idea if it might be any good.
Posted 5/14/2010 8:41 PM (GMT 0)
Chatuge - how was your experience with dr shah and his staff. any suggestion to getting the best out of them for my surgery and follow-up

jimstars - i believe the docs are getting much more aggressive in rehab of penis muscle. if for the first few months they are not used then the atrophy starts and is harder to recover later. that the reason muse and injections are first line as they bypass the nerves to get blood in the penis. the pill still need nerves to work and the nerves are fatigued after the surgery and recover slowly.

i think i will keep all three muse, gel and injection open and try them out along with the pills.

also why do you say gel is less reliable than injection..my insurance will cover muse, cialis...not sure of the gel
Posted 5/14/2010 9:56 PM (GMT 0)
"Muse 250 mg to begin in 3 weeks from the cath removal and repeated every other day."
That's probably much better for the E.D. than 5mg Cialis tx as I had. As for why Doc's prescribe MUSE, oh so "barbaric", the responsible Doc's start with the least invasive therapy. Pumps (can't fail, but not exactly "in the mood", they are for reconditioning) and/or pills (pills are invasive but we "live better through chemistry") being the first shot, then move to MUSE, then injections.
Time after surgery, age and a number of factors may be the trump card whether it gets up again on it's own, not just therapy.
I'm sitting at 15 months and things are getting better, very slowly, but better.
Posted 5/15/2010 3:52 AM (GMT 0)
Chatuge,

I caution that even though your Doc would prescribe every other day use, I am pretty sure your Insurance company will say otherwise and you will be lucky to get 4-6 MUSE packs every 30 days. I know my Godless Evil Medco has me down to 4 (although for a while they had allowed 6). Likewise for Cialis it was 15 x 5 mg ... not a heck of a lot when even full dose does not do much. Thank gawd for All Day, I always say.

So with that paltry MUSE prospect before you I can see why the Trimix injections are so popular -- you get a lot of shots per one prescription and even with needles etc it can be pretty cheap (thanks to high volume production due to Diabetes needs).

Oh one more thing: Go get your MUSE script filled RIGHT AWAY since they will not allow refill for another 30 days after. This way you'll have your first stash in-hand and then will get some more only one week after you start using them in 3 weeks. Work that system!
Posted 5/15/2010 8:48 PM (GMT 0)
Chitown-Dr Shah's staff is A-1, no complaintsat all. I would also highly recommend a couple of nights in the Marriott next door to the hosp if you live very far away-I'm 2 1/2hours away.  Marriott gives the corporate rate for St Joseph patients-approx $60/night.  Jimstars-my MEDCO-through BC/BS will not pay for ANY of the stuff!!
Posted 5/15/2010 9:34 PM (GMT 0)
You may want to check to see how much it will cost you to get the Muse is your insurance does not cover. It is a bit expensive.

Cajun Jeff
Posted 5/15/2010 11:58 PM (GMT 0)
Chatuge,

That is a bummer if they do not cover any at all -- Your Godless Medco is even more Godless than mine (or is BCBS calling the shots). As CVman says it is very expensive if you pay yourself -- over $150 for 4 or 6 MUSE someone had mentioned here.

That happens to be the same price as TRIMIX GEL -- about 150 for a 6 pack. Be sure to get the highest dose on Gel as it is less effective than the same dose of MUSE. Not sure why, something to do with the Gel delivery method maybe?

keep on, keepin on ...
Posted 6/24/2010 7:42 PM (GMT 0)
Chatuge, JimStars, all -

Happy to report surgery on 6/15 and recovery has gone extremely well.
Only have a bloated stomach as reminder pain.
The patholgy report was good with no positive margins and cancer cell less that 10%
Catheter came out yesterday and I am totally dry today

Next in line is use of MUSE in about 2 weeks.
I want to give it a serious try as what the doc has told me has been true 100% and got my trust.

What I read is use of MUSE with lidocaine is much better ,..any experiece
If MUSE does not work then injection is the next option

Chatuge - How has Cialis worked for you.
Any additonal suggestion for any on ED is welcome
My doc is not hot on any tabs at any time. Call its over medication!! Pretty much againist the stream of the mainstream
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