I am now 38 days out of surgery for the Urostomy. I am well over the raging UTI I had a week after coming home from the hospital, those were terrible times. I am getting stronger, daily, but in little tiny increments. I am fully complying with all my home nurse, physical therapist, and uro have instructed me. Still under a 5 lb max weight limit. That's hard to keep, but I must.
A week from this coming Monday, I can legally drive again per my doctor. Still having trouble with dizzy spells, some has to do with a bigger drop in my blood pressure after losing so much weight, so fast. Have lost a total of 40 lbs over the past 45 days. They are still having me eat a lot of protein. Its amazing how much muscle mass I lost in the first 3 weeks. I had strong legs and arms prior, but now I look like a stick person, lol.
Havent been on any prescription pain meds for 3 weeks now. 3-4 advils a day keep check on any remaining surgical pains. We are making progress on the ostomy devices leaking. I have been testing one currently, and made it to day 5 without a leak so far, which the mfg would consider optimal.
Still have zero pain in the bladder, bladder neck, penile and rectal areas, which is great. And since my bladder has been disconnected and sealed shut, I can never ever have a bladder spasm. The main purpose of this drastic operation has paid off so far.
As a side note, my "wee one" has woken out of his post surgery coma in the past week, and I have been waking up almost every morning with full wood. I am, however, too sore and weak at this time to want to put "him" to use. A little too soon. We are all amazed, that despite all I have been through the past 2 years, that there is not even a hint of ED. I realize that I am fortunate, and that this has to be some kind of extreme exception to the norm.
I still have a lot of radiation fatigue, even 11 months later, but I had that before this surgery.
I am hoping that when the new year starts, I will feel like a million bucks. Then in Feb, will check that blasted PSA again, and see what
is going on there. Until then, I simply don't care and don't want to know. I am focused on this recovery, and the upcoming holidays.
David in SC