I was very disappointed in the pathology report, it did not have the info lots of members here seemed to get.
Naturally, I was not having a shot at ANYONE, and how disappointing that the full information was not readily available to you.. It all helps to paint the full picture for ANYTHING that follows. The greater the time passes - the harder it is to get that information.
Be sure to keep ALL Xrays and Scans.. Your Bone-Scan can be used for the rest of your life as a usefull tool ( ie. how you were in 2011 )
Different strokes different people.
That is the whole issue, but as you trawl through these PCa threads you seem to find a fairly common thread to guy's PCa adventures.
Also, even though I was still a G6, the pathology showed much more widespread cancer than the doctor expected and many tumors along with a large component of 4's.
Something that MUST be understood , is that a Biopsy takes small samples, and folk here have shown that they knew soemthing was wrong, but the Biopsy kept missing the critical spots - the unreachable spots, until finally a "BINGO" .
Most seem to find that the pathology of the removed organ is significantly different to the TRUS-Bx. ie. WORSE than expected.. So in the 'Unknown Stakes', it is likely better to assume the worst.
Mine too, was worse (G7) and far more wide-spread (Pockets here and there)
He said, and I recognize his self interest, that I was lucky I did not choose radiation.
The entire saussage-machine called "PC-Treatment" is based on self-interest..
The Surgeon wants to cut. The Beam Radiologist wants to blast away, and the Bead guy knows exactly where he wants to shove his beads.
The "Radiation Professor" showed me TOTAL lack of self interest.
Finding someone without self-interest is the hard part.
When I was First diagnosed, they had it all mapped out - a schedule of Specialist Appointments, to tell me of all my options. Then I was given a small book and it was thorough and concise, and it told of the good and the bad of each treatment.
It HAD to be thorough, because it was PUBLIC knowledge, capable of criticism.
Having read the book, I knew that there was only two options.
Take-the-risk and wait and try to cure myself with diet and supplements... or
Get cut and have it removed and accept the 95% "Guarantee" that it would all be ended.
We have all learnt to be very cautious of specialists using words like MAY, and MIGHT, and POSSIBLY.
Remember that all treatment seems to be based on AGE and YOUR situation.
I think they do not like radiation in the younger men, because Radiation does actually cause cancer. That's why they all run from the room..
At younger ages, anything that leaves your body as unchanged as possible, has to be better. Removing something sounds traumatic, but nothing much else has changed
BONE-SCANS
Fantastic tools - The Bride had a stress fracture in her foot, and it could only be confirmed with a bone-scan.. To our surprise, they did a whole body as well..
(The dye is in there - don't waste the chance)
It lit up every Arthritis spot and the fracture and a spot in her skull. We still don't know what it is, but even if nothing,
we NOW have a record of it from 2010, if things develop in ways we don't want to see.
Demand and Keep all scans/tests. You will NEVER be finished with them !
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