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Posted 10/31/2011 2:38 PM (GMT 0)

Hi All,

Thought it would be useful to report on my HT progress. I received my 2nd 3 month Lupron on Oct 21 - still on Casodex also. PSA was < .04 - UNDECTABLE!!!. I thinks thats a good thing!. So far the only SE's are hot flashes - could come in handy up here this winter.

Posted 10/31/2011 2:56 PM (GMT 0)
From what I saw on the weather today, you'll be needing to fire up those hot flashes.

Good to hear that things are going well - keep us informed.

Posted 10/31/2011 4:45 PM (GMT 0)
Hi Tim, That is a great response to the HT, undetectable PSA is just 2 months. How long are you on HT for? I did ADT3 for 12 months. If you are going to be on HT a awhile longer, you should do regular weight training. My worst SE effect was muscle loss. I didn't notice it until 4 months into HT. You should also have a bone density test. Our PCa history is remarkably similar. I had surgery in March of 2009. BCR was at 12 months with PSA at .28. SRT in August/Sept 2010. I did ADT3 however with SRT. Don't know if SRT failed yet, My PSA is still undetectable. Best of luck. bb
Posted 10/31/2011 5:43 PM (GMT 0)
I think you will find the hot flashes diminish or disappear with cooler weather...Mine seem to be triggered by warm temperature conditions...

Best of luck to you...The G-9 group is pretty tightly knit....
Posted 10/31/2011 5:44 PM (GMT 0)

Tim-from-Maine said...

Hi All,

Thought it would be useful to report on my HT progress. I received my 2nd 3 month Lupron on Oct 21 - still on Casodex also. PSA was < .04 - UNDECTABLE!!!. I thinks thats a good thing!. So far the only SE's are hot flashes - could come in handy up here this winter.

Hey Tim,

  I was just wondering why your're still on the Casodex?  I thought it was only used for the first month to ease you into the Lupron. I know this because my OCO prescribed the same(1 month), but the Pharmacy read it as 12 months and I already had done an extra month until I complained to my OCO and said he said no that was NOT what he prescribed. I'm not sure if you can OD on HT!

GlennK

Posted 10/31/2011 5:59 PM (GMT 0)
BB_Fan - My Onc wants 6 months of undetectable - then a HT break.

I am doing exersize daily - but still gaining a little weight - something I need to watch - My ONC is watching my blood.

GlennK - I discussed with my Onc what i had read about ADT3 - we compromised on ADT2 - she originally wanted just the Lupron - after a 2 week Casodex - so the Casodex is sort of my own input. Seems to be working thankfully.
Posted 10/31/2011 6:36 PM (GMT 0)

Tim-from-Maine said...
BB_Fan - My Onc wants 6 months of undetectable - then a HT break.

I am doing exersize daily - but still gaining a little weight - something I need to watch - My ONC is watching my blood.

GlennK - I discussed with my Onc what i had read about ADT3 - we compromised on ADT2 - she originally wanted just the Lupron - after a 2 week Casodex - so the Casodex is sort of my own input. Seems to be working thankfully.

 

Really and what did you read to make you compromise on ADT2? 

Posted 10/31/2011 6:45 PM (GMT 0)
Hi Tim-from-Maine from a fellow G9,

I live in a very hot climate so summer's are tough for hot flashes. I find the winter challenge for me is sleeping. I will get cool and pull up a light blanket up only to wake an hour later burning up . . tough to find the balance sometimes. Hang in there. It seems like you are doing well. I struggled with managing my emotions for about 6 months when I started. FYI: I start my second year of Lupron tomorrow morning with a 6 month injection.

Posted 10/31/2011 6:54 PM (GMT 0)
I had the same issue as Southern Comfort. Wake up hot, kick off the blankets, wake uo again freezing and cover up again. I may have gone through this cycle 3 or 4 times in a night. I did start taking estrogen patches "vivelle dot' if I remeber correctly. Took care of the hot flashes pretty quickly. They did cause some breast tenderness.
Posted 10/31/2011 6:59 PM (GMT 0)

Southern Comfort said...
Hi Tim-from-Maine from a fellow G9,

I live in a very hot climate so summer's are tough for hot flashes. I find the winter challenge for me is sleeping. I will get cool and pull up a light blanket up only to wake an hour later burning up . . tough to find the balance sometimes. Hang in there. It seems like you are doing well. I struggled with managing my emotions for about 6 months when I started. FYI: I start my second year of Lupron tomorrow morning with a 6 month injection.

I find Zopiclone 7.5 MG works wonders for getting a good night sleep.....I just try not to get too use to them, so I make sure I never to 2 nights in a row.....no morning SEs either!

Posted 10/31/2011 8:00 PM (GMT 0)
Tim

Wonderful News!

Good for you brother!

Bud
Posted 10/31/2011 8:08 PM (GMT 0)
Tim,

Great news on your PSA and the direction it is going.

Knowing you are from Maine makes me pine for my New Hampshire years, my, how I miss New England (snivel)

david now in SC
Posted 10/31/2011 10:32 PM (GMT 0)
I can identify with kicking blanket off getting cold and doing it all over again. I started Lupron and fasternide 6/11. Has anyone done intermittent HT and if so, how is it given?
Posted 10/31/2011 10:51 PM (GMT 0)
Tim,

That's good news...love Maine...grandmother is from the York Beach area.

Stay cool...
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