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Body aches and joint pain, from Lupron need advice

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Posted 1/8/2012 6:03 PM (GMT 0)
Hello fellow cancer survivors, and lupron users

I have body aches and joint pains, i feel cold and tired

what can i do to stop the side effects, especially   the body aches and joint pain

i am in pain and i cant rest. ouch......

thanks

smhair  

Posted 1/8/2012 6:43 PM (GMT 0)
Do not know if our symptoms are both caused by, or enhanced by the HT but I am experiencing finger joint issues. Trigger finger in five fingers. Two on right hand, and three on left. Thumb, middle on right hand, and ring, middle, and pinkie on left hand.

I've gotten steroid injections in four with good success in three fingers. Two finger still give me tons of trouble, particularly right middle, which will receive a surgical fix this Friday. I hope it works, and I hope all these weird symptoms go away after HT.

You're not alone.

K
Posted 1/8/2012 6:51 PM (GMT 0)
jaxum -- i took celexa and ambien which are a anti-depressant and sleeping pill. i had problems sleeping at night periodically because of hot flashes and sweating.  we kept the bedroom like a meat locker.  the overhead fan was on full blast even in the winter and a window air conditioner was on all the time.  plus i exercised. 

i had plenty of joint pain and stiffness.  getting up from a crouch was embarassing and even getting in and out of a vehicle was a chore.  i felt like an impotent, old man.  though my sleep was interrupted i did sleep alot.  i very rarely missed a nap and normally i never take naps.  when i napped i could easily sleep an hour or almost two and they were really very refreshing and something i looked forward to.  i just had to grin and bear the aches and pain and i suppose i did complain quite a bit too cool .

best of luck to you

ed

 

Posted 1/8/2012 6:56 PM (GMT 0)
kbota -- a year before lupron i fell backwards down a river bank and threw my hand behind me to break my fall.  i jammed my middle, ring and pinkie fingers and the next day they were purple and blew up like sausages.  but i didn't break anything.  my fingers were giving me problems but the lupron made them much worse.  in the mornings one joint would click and my hand would be almost useless.  now that i'm off lupron it's about 95% better.

ed

 

Posted 1/9/2012 7:12 AM (GMT 0)
Hi Jaxum:

My prob is a little different but it sure concerns pain & Lupron.

When I get a Lupron shot - No prob, just another shot in the butt. But the next morning it hurts so bad that I can't even get out of bed, let alone stand or walk.Cannot put any weight on the pelvic area at all.

By day three, I can move around again.

Docs cannot offer any explaination.

If anyone knows what to do about this, I'd sure like to hear it.

PS Thank the lord for pee bottles!

Don K.

Posted 1/9/2012 7:24 AM (GMT 0)

Hello fellow cancer survivors, and lupron users

I have body aches and joint pains, i feel cold and tired

what can i do to stop the side effects, especially   the body aches and joint pain

i am in pain and i cant rest. ouch......

I have been on Lupron for 11 years ... having advanced prostate cancer ... mets in the bones, and large mass in the pelvic area.

 

Initially ... way back in the beginning when I first got the Lupron shot I had what is called 'flare ups' ... it is a common side effect when one has bone mets ... lesions in the bones. I didn't do anything, but bear it out ... the flare ups only lasted the first few times I got the Lupron shot ... after a while your body gets used to it .... it is amazing what your body will get use to.

 

Now 11 years later I don't feel any side effects of the Lupron ... at least in terms of flare ups ... even though I still have many bone mets.

 

I am assuming you have bone mets, and you are new to the Lupron treatments ... if you are like me, the pain or discomfort will go away in time as treatment continues ... carry on ...

Posted 2/8/2012 3:39 PM (GMT 0)
Hi, brand new to the site. I've got shoulder pain down to the elbow (the inside of the elbow if that makes sense, where they take blood). It began mid November 2011, and got worse this January. Now it keeps me up at night, have only tried otc painkillers. I am concerned it might be mestatic cancer (see below my "journey"). I wrote my (great) doc about this and he offered to do a CT scan on the chest which would show the shoulder. He doesn't feel it has anything to do with cancer. The fact that it is worse at night is a concern. Thanks for any comments on this!
7/11 psa 8.2
8/11 biopsy 4+4
9/11 bone and ct scans clear
10/11 IMRT 22 visits, simultaneously began Lupron (no medicine for "bump")
11/11 psa 3.2
12/11 Brachytherapy, final (3 month) Lupron shot
1/12 psa .3
2/12 psa .1
Posted 2/8/2012 11:29 PM (GMT 0)
This is for the attention of the man who has been on Lupron for 11 years,can you tell me if you ever regained your libido whilst on Lupron ? I have bone mets in about 5 areas and lymph nodes at the age of 45.I took myself off of zoladex three months ago after 12 months on.I have my libido back now and erections but I'm aware that I'm playing with fire not having my zoladex shot.QUALITY OF LIFE was what I was hearing prior to starting ADt and that's what I desire now.
As for cutting into this thread I can tell you other guys that in my experience the aches and pains eased dramatically after approximately 3 months on zoladex......1 month off and I'm suffering a little again now
Posted 2/9/2012 2:17 AM (GMT 0)
Jaxum I am with you. I have back aches, hip aches, knee aches, finger aches, even my feet hurt today. Just like F8, it is a chore to haul my skinny rear out of my car. It has gotten worse and I try to always overcome it, but it is a pain. I have 18 months more to go on HT. I have lost weight and work out daily and generally feel great, but this joint ache is for the birds. I do not take anything for it, but the glass of red each evening is always welcome.

I am not complaining.....my dear wife is on Femara following her second bout of breast cancer and she really hurts in the large joints. Her med onc has started her on massive amounts of Vitamin D as recent studies have shown that Femara/Arimidex and other such drugs reduce the ability to assimilate D and can cause joint pain. I haven't seen any such information regardng ADT in men.
Posted 2/9/2012 1:49 PM (GMT 0)
Jaxum: I too have the same side effects from my Eligard shots, if I sit too long and then get up I have to stand there for a few seconds because my hips and knees are really stiff, same when laying down. Fighting the fatigue, which I am having a hard time with because I can fall asleep right after dinner, when in the past I was a Night-Owl, it is extremely difficult, and I go to the gym several times a week. I also had Trigger-Thumb in both hands, got shots and seems to be ok now, I was also diagnosed with Carpel-Tunnel Syndrome, but when the doctor said we can schedule surgery, I laughed and said NO, not now. The list goes on and on, but I am coming up (April) on my forth shot and hopefully my last. We are all toughening out but it still beats the alternative. Hang in there.

Joe
Posted 4/29/2012 1:52 PM (GMT 0)
This is also for the fellow on Lupron for 11 years. Brand new to all this. 54 years old, advanced prostate cancer, pelvic bone, lymph nodes etc. I've only had one shot and am taking the Casodex. I had 10 radiation sessions for my right pelvic bone. I'm just THRILLED there is someone out there who has been able to fight this for 11 years. I don't care what the side effects of the Lupron are. I will have my second Lupron shot tomorrow. My right leg is pretty much useless; hip bain, pelvic pain, leg swelling, mostly from the radiation I think. The reason I got to this web site this morning is I was trying to see if this bone pain was a frequent side effect of Lupron when first starting the therapy. It sounds like it is.
Posted 4/29/2012 6:58 PM (GMT 0)
Some guys are on HT as part of their primary or salvage treatment, a temporary treatment that is aimed at curing the cancer..Usually, this treatment lasts one or two years, then it's wait and see.....

Other men are on HT to control advanced disease. Some take the drugs intermittently to control PSA numbers and then get a vacation to regain some quality of life while the PSA is monitored..With others with aggressive tumors and mets, the HT is "for the duration"...In most cases, the effectiveness of HT is limited, 2-5 years being the norm..But in some men like Henry 3rd, HT can control the PC indefinitely...

During these treatments, it is wise to closely monitor "T" levels in the blood as the drugs are ineffective in some men..Physical castration, the oldest and still most effective HT method, is also the cheapest. A major factor for those of us with no or limited insurance coverage...
Posted 7/14/2013 9:53 PM (GMT 0)
I'm new to this thread. Started 2yr HT in August 2012 and completed 39 proton pencil beam treatments at M.D. Anderson on 15 March 2013. My joints ache-especially fingers. I have to type a lot and my fingers "click" the next day. In just the past week my right hip got in on the act as well as my left big toe this morning. Remaining inactive for more than 30-45 minutes makes getting up a chore. Really stiff for a few minutes. I feel like the "Tin Man" in the Wizard of Oz. Staying active with long bike rides daily and the gym 4 days a week for resistance training. Warning: If you are just starting HT (I'm on Lupron) get to exercising. You'll lose less muscle mass. Muscle mass loss will sneak up on you and I'm convinced that gaining it back is a lot harder than never having lost it in the first place. I learned the hard way.

Like others, I'm not shy about napping but this join pain is really getting me down. The large muscle comprising my right buttock got in on the act with a lot of pain late last week. While I'm trying to eat right and act right the discomfort is lessened by reading the open and honest posts on this site. We are not alone. We will never give up.

PSA 8.0 at diagnosis
Gleason 4+4
Biopsy revealed 3 of 12 diseased core samples
T2C
No evidence of mets
Posted 7/14/2013 10:40 PM (GMT 0)
Chuck,

Welcome to the forum. Sorry you have to be here but glad your found us. I've created a new thread for you so people can say hello.

www.healingwell.com/community/default.aspx?f=35&m=2792946
Posted 6/7/2017 11:39 AM (GMT 0)
Bee.man.2 here. I'm new. Dioganised with prostate cancer appx six years ago. Had radical prosectomy and one shot of lupron. Basically only problem was hot flashes and irritability. Recently PSA shot back up to 6.8. Was given a shot of Elligard two months ago. Wasn't made aware of any side effects. My pain started in right buttock. Site of the shot. Has since spread to include leg, knee and sometimes right foot. Also extreme shoulder pain.i have difficulty sleeping. Fatigue is also an issue. Finding that there seems to be very limited knowledge of the side effects of Eligard and a reluctance to provide medication for pain relief. I have an appointment with my urologist soon so I hope to get more information. This site has been a great help in revealing that I'm not alone in this and others have similar experiences.
Posted 6/7/2017 7:56 PM (GMT 0)
jaxum,
I have been on lupron since 2/2014 every three months. I get hot flashes every night, have bone joint pain, up every 2-3 hours at night and fatigue a bunch. Some of that fatigue might be from zytiga. I basically run out of energy pretty fast. I get cold when everyone else in the store is fine. My doc said I will be on lupron from here on out. I guess I have gotten used to it. I really hate the big fatigue when I feel like Iam under a 500 pound blanket and Iam trying to get up and can not. But I just breathe close my eyes and chill/meditate and of course pray. My fatigue goes away sometimes 30 minutes sometimes less. I keep my oxy close by and do use it, my daughter says Iam addicted, that is the least of my issues. Iam not addicted.
Hey Jersey guy "what exit?" LOL thats an old Jersey joke what exit on the parkway do you live near, me 135.
Posted 1/8/2020 2:57 AM (GMT 0)
My Lupron adventure. pT3a biopsy, focal bladder neck invasion, left lateral focal positive margin, Gleason 3+4, negative lymph nodes, extracapsular extension negative, negative seminal vesicles. Complete open radical prostatectomy 10/29/18. IMRT salvage radiation 37 treatments 5/15-7/15/19. PSA undetectable after salvage radiation 7/19. First Lupron shot 1/25/19, 2nd 7/25/19. Totally contenent 4 mos after radical. ED since radical, some feeling coming back prior to 1st six month Lupron shot. Total ED since Lupron shot. Trimix injections do work but very strange feeling erection. Erections not 100% but adequate, unable to get to orgasm. Hot flashes galore, joint and body aches, especially during cold weather, are brutal. Legs, both shoulders, trigger finger on right thumb. Eczema is worst its ever been. Hurts to stand up out of deep sofa, climbing stairs, putting on coats, any shoulder or upper arm movement. Hoping no more Lupron and will get my testosterone back. You guys know how not fun the Lupron adventure is. Radiation resulted in anemia and extreme fatigue for months.
Posted 1/9/2024 9:45 PM (GMT 0)
New to the group. Happy New Year. On Lupron for about a year now. Getting ready for 3rd shot. Hot flashes
are not really an issue, although I get a few. The aches all over are a pain though. Really affected my long walks.
Body aches all over, shoulders, back, hips, knees, you name it! Sleeping Ok after Dr. put me on Trazodone.
Helps a lot. Also, endless peeing. Don K's comment on pee bottles is right on the mark. Endless, affecting every car trip. Anyway, good information here. Thanks for letting me in.
Posted 1/10/2024 1:49 AM (GMT 0)
Hi Bill , I copied your post and started a new thread for you. You’ll get a lot more responses that way I’m going to lock this thread as it is a zombie thread, so just go here to see your thread and my message….

https://www.healingwell.com/community/default.aspx?f=35&m=4335330&p=1
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