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Anoyone gotten Neuropothy from Cialis

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Posted 3/19/2012 5:22 AM (GMT 0)
I am on Cialis 5 mg nightly with a 10mg boost once per week.  I had initial congestion side effect that faded over the first week.  No other side effects and getting sizable nerve response beginning 3 weeks after surgery.  I've been on it for 6 weeks.

I am starting to get neuropothy in my legs.  Started about 2 days ago in the left leg, primarily in the shin area.  As of this evening I'm getting the starts of it on my right shin as well.  In 2005 I had an allergic reaction to Lunesta.  7 days after starting it I had rapid onset of neuropothy from the knee to toes in both legs, progressing from nothing to total nerve dysfunction in about 12 hours. 

The only thing that has changed in the past 8 weeks that I can correlate the neuropothy to is the RP and going on Cialis.  So I'm wondering if this could be a reaction to the Cialis. 

Has anyone else experienced this?

Posted 3/19/2012 9:21 AM (GMT 0)
Guessing that you've stopped the Cialis and have called your doc... Thats what I would do.
Posted 3/19/2012 11:55 AM (GMT 0)
<<The only thing that has changed in the past 8 weeks that I can correlate the neuropothy to is the RP and going on Cialis>>

mtsarpilot,

I had similar symptoms in 2005 at age 66, although the neuropathy onset was less pronounced and less extensive than your situation. Long story short: High blood sugar (160 +/-) = diabetes, type 2 (runs on my mother's side of the family).

The good news: Blood sugar has been controlled ever since with oral medication; my lipid blood panel semi-annual A1c has been normal ever since (< 6.0).

The bad news: although damaged nerves can regenerate themselves, in my case neuropathy in both feet is permanent confused

Make an appointment with your primary care physician before things get worse.

Hope this helps,

Mitch in SC

 

Posted 3/19/2012 12:12 PM (GMT 0)
I see my Uro today for my 6 week checkup, so the timing is fortuitous. This is on the topic list.
Posted 3/19/2012 12:54 PM (GMT 0)
Mitch I got neuropathy after surgery, just headaches after Cialis. Is there any hx of diabetes?

Michael

Posted 3/19/2012 1:03 PM (GMT 0)
I was on the 5mg of Cialis for 30 days beginning the week my rubber snake was removed from me, and I suffered from both leg and lower back pains which ended when I stopped the Cialis. If you check our Cialis SE's this is listed as one of the more common ones.

Good Luck

Terry

Posted 3/19/2012 2:16 PM (GMT 0)
No such issues for me, but calling the doc is the first thing to do. 
Posted 3/19/2012 2:17 PM (GMT 0)
mtsarpilot,

My RRP Sx was only 11 days after yours. I also started taking the 5mg Cialis as perscribed by my URO. Catheter out Feb 22. Started taking the Cialis Feb 25. I felt some mild SE's the first 2-3 days. I was taking the pill at 11:00 pm with no food. Then the 4 night I couldn't fall asleep, after about an hour I got up and walk around the house, I was very agitated with lower back pain and tight pain in the calves of both legs. So I stopped taken them for 3 days. Then started up again but took them a lunch time with food. I don't notice as much back and leg pain, but notice some heartburn, indegestion and gas. Right now typing this my back and calves have some pain? Bottom line I felt better before I started taking them, but figured I would push through the SE's by keep taking them and benefit the healing and repair attributes. My first follow up with my URO is April 27th for my first post Sx PSA test. So I wasn't sure whether to wait until then, see him sooner and explain the symptons or stop taking them?????

Any advise?

TJ

Posted 3/19/2012 4:13 PM (GMT 0)
Thanks for all the responses. So far I have had none of the lower back or leg pains that are the most common SE's. Neuropothy is a screwy thing and not listed as a common SE. Drugs.com does show an uncommon side effect of numbness and tingling which is the symptom of neuropothy. So it may be associated to the Cialis. Good to hear the things you all have experienced prior to my discussion with the Uro later today.

He also gets to tell me my PSA test was 0.01, though I already knew that as I was not about to wait a week to hear the results so I called the lab directly :)
Posted 3/19/2012 4:53 PM (GMT 0)
Great news on your PSA test - that is super!!!! Sounds like a round at happy hour this afternoon. Cheers to your first of many 0.01's.
Let us know what else your URO says on the cialis SE's. I'd like just to feel normal for a few days so I think I will stop and recover and try it one more time to hopefully puch through the side effects.
Posted 3/19/2012 5:22 PM (GMT 0)
Energized - Have you tried one of the other PDE5i drug? Getting SE's from Cialis does not mean you'll get SE's from Viagra or Levitra.
Posted 3/19/2012 9:39 PM (GMT 0)
<<Is there any hx of diabetes?

Michael,

"hx" is a little too terse. Shorthand for ??

Mitch in SC

Posted 3/20/2012 12:26 AM (GMT 0)
Hx= History. I have hx of not liking to type.

Michael

Posted 3/20/2012 2:19 AM (GMT 0)
<<x= History>>

Michael,

As I mentioned, (late-onset) diabetes runs in my family - Mother's side.

The important thing here, whether mtsarpilot's condition is diabetes or no, the neuropathy (numbness) indicates nerve damage which, if ignored, will (probably) get worse.

Mitch in SC

Posted 3/20/2012 2:31 AM (GMT 0)
Spoke with my local Uro today. His response was pretty subdued. He said Cialis does have the greatest amount of SE's of all the PDE5 inhibitors and numbness is an SE. His feeling was I could continue on the Cialis if I could handle the numbness (sort of like putting up with the muscle aches if that is an SE you get). Not likely to cause any long term damage, just an SE. I think none-the-less, it would be silly to stay on it and take a risk.

Other than that, an uneventful visit. He expected I already had the blood test results, so no news there. He spent 5 minutes explaining why I should not be concerned about the the '1' in the PSA 0.01. I kept telling him to me that is a zero, no need to reduce my fears, but he just kept going on. Funky.

What this visit really told me is I've learned all I need to know at this point through reading and discussions on HW.
Posted 3/20/2012 11:41 PM (GMT 0)
mstsarpilot,

Thanks for the update from your URO on the Cialis. I did find out cialis window lasts 36 hours whereas viagra and levitra lasts only 17 hours. Cialis can be taken with food compared to viagra and levitra should be taken either 2 hours before or after food. So with the 5mg cialis lasting 36 hours essentially your body would keeping 10mg in your system.

Anyway my update, the last pill I took was Sunday at noon with lunch. So almost 56 hours later, my lower back, leg and joint pains are virtually gone and I feel less irritable and generally feel much better.

I see plan on seeing my URO hopefully this week and review these results with him and seek his recommendation on switching to viagra or levitra. I will let you know what I find out.

So from your last post, I take it you have decided to quit taking the cialis? And if so are you trying viagra or levitra?

Fantastic news on your first of many 0.01's. Congrats!

TJ

 

Posted 3/21/2012 12:14 AM (GMT 0)
I have stopped the Cialis. I'm going to give it a few days to get out of my system and see that the SE's go away before switching over to Viagra based regimen. That way I can seperate any Cialis SE's from Viagra SE's. The Viagra regimen is 3 nights / week, 2 of those nights should be 50 mg, 1 of the nights should be 100 mg.

Viagra must be taken at least 1 hour after last food eaten.
Posted 3/21/2012 1:57 AM (GMT 0)
I'm on a 25-50 mg. Viagra dose each night and one night per week of 100 mg.Viagra.... I'm 8 months post CRYOGENIC surgery and I'll try ANYTHING to get rid of the ED. If anyone told me I could take arsenic and get a 100% erection , I'd buy it by the pound . That's how anxious I am to get back into a sexual bonding with the wife that I love so much!!! I'd rather have 12 months of bonding sex with her than to have 12 years of waiting for it to happen.
Posted 3/21/2012 2:59 PM (GMT 0)
i'm sure she would rather have the 12 years if given the choice.

Post Edited (davidg) : 3/21/2012 10:04:29 AM (GMT-6)

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