MRI results in , something going on

So disappointing to see this freakin disease and what is the next treatment or protocol. Hope you get good and well planned care on what might be really necessary and maintain some quality of life along the way. Your journey, so not suggesting anything, and you have a handle on possible options. Plenty more you have to think about, like it is easy to sleep already???  Others herein may have some words of encouragement and will be adding them, which is good stuff.

Post Edited (zufus) : 4/19/2012 12:55:43 PM (GMT-6)

David, sorry about your scan results, on the other hand this is such a common place for degenerative disease, as well. Second reading may bring some clarification, but again, image is an image and they cannot be certain. Wishing you peace and try not to worry. I look at my dad who has 0 worry days and he is doing so much better than me who am constantly worried, lol. All the best.

David,Sorry about the MRI results, the hits seem to keep coming. I hope it is not mets. Please keep us posted.

thanks zufus, i always keep some of your twilight tips alive in the back of my mind. not sure i have seen another gleason 7 act so agressive like this one here at hw, could be wrong. but hey, way back at the start, i was told that gleason 7''s can be very unpredicatable.

patterson, what is good news? lol. doesn't seem to follow my name for sure.

special lady, i am not a worrier, just not my nature, i take everything in stride and try to use logic on it. doc didn't think it was degenerative, as it wasn't there just months ago, and i have never had a day of back trouble in my life until the past few months. but we will see.

mel, no he doesn't think that, because the back pain is only a few months old, he does feel that its the cause of the extreme back pain though. something i have never had to deal with, the bad hip and right leg is enough to deal with, the back pain - puts me into a whole new realm of pain. he's prepared to up my pain meds with a phone call, but we both agreed to hold off for now, as long as i am comfortable. got to save some of those higher pain doses for later on when things get worse. already on enough stuff as it is. be interesting to see what the 2nd opinion of the scans produce, and what test he has next in mind. it was hard talking to him at the time, as i was in the middle of a noisy self-wash car wash place, but he did spend 20 minutes on the phone

Edc, thanks my friend. hey, i would feel cheated after 3 1/2 years of this, if the hits stopped coming, my life would be a bore, lol

Post Edited (Purgatory) : 4/19/2012 4:36:44 PM (GMT-6)

thanks bob, for your care and concern

clock - hey, never had hardly a moment in this PC journey when the hits kept coming, so why spoil my record. thinking back, i had a trouble free period only from March-mid June of 2009, that's it. Period. And even then, my post-surgical PSA was rising and rising. Definitely nothing mundane or boing about my journey, lol.

david

David,

Prayers, hope and faith be with you!!!

Terry

thank you henry, perhaps a lucky break will happen at some point, that would be a surprise for sure

terry, thanks as well

you too, boogee!!

Thanks Michael. Doc said he didn't think it was related to the other nerve damage, still feels the radiation did that. But he does feel its the source of all this new back pain. Talked about a group of nerves in that L3 to L4 area of the spine, but that the scan didn't indicate that it was pushing against those nerves. Will have to wait to see what a second opinion does with the scans. Big question, is it the first evidence of mets, or something else. Definitely was on the July scan for sure, it was all clear then.

No point being a hero when it comes to chronic pain, no prize for suffering needlessly. My doctor is all about proper pain control, this is why he is adding in the new med, to see if it will help along with my other pain meds. He said he won't be satisfied until he can get all of the pain under control.

David

Dave, sorry to hear more news like this. Hope the gabapentin works for you. Does this life experience make for a scarier horror novel?

DJ

David,

I hope you get some relief from the pain. Good thoughts from the north.

Btw- appreciate the stamp.

Jerry L.

Paul, thank you for your kind words. Don't feel I do anything special, just reporting a not so pleasant PC journey in all its graphic details, lol. Sometimes, I think that I should feel some emotion about my situation, but I really don't. Even with the recent news of the big PSA spike, and now this spot (still undertermined). Seems like nothing ever bothers me, I think about the new "news" for a few moments, then tuck it away and move on. Dr. wants me to move slowly on the dose of the new med, as being on the Fentanyl and the heavy doses of Loratabs is already a heavy load. So you saying it causes fatituge? That concerns me, as I have been fighting heavy chronic fatigue for years already. Have to plan my whole days around it. Hope you are holding you own, with your journey. Didn't get to see your stats this time.

Thanks DJ, I just read, and commented on your own good news. I was really happy for you, now you can breathe again. Actually, the manuscript for the horror novel to be published, was finished more than a year before my PC dx, so I can't claim a connection there. Mostly got tired of writing historic romance, lol.

Mag, your continual friendship is good enough for me. Even my own wife doesn't know what to say sometimes, but her love and continued support works for me.

Thanks, Jerry. Hoping to have all the stamps out by early next week. It went well, I may buy another sheet and do a second round.

Franchot, gee, most people don't think I have any sense of humor, so I must be doing something right. There's only so much that I can about my health and body, I prize my mind and my soul, so no matter what the PC devil does to me, and has been doing to me, it will never take my mind and thoughts from me. As long as I can hold on to that, I will win. If not in body, in mind, and I will get the laugh laugh out of the deal. With my previous 3 cancer bouts, due to its ultra rarity (was one of only 38 known cases in American medical history, with a mortality rate of 50%), I beat it 3 times in a row, and have been clear of it now for 12 years. That oncologist, with one other patient with it at the time - was considered the world's expert, and he's still astonished that I beat it. His other patient, a woman slightly older than me, had it once, and didn't make 4 years. I like to think that I still control my life, even if I can't totally control my health.

david

Squirm, he's starting me on low doses of the Gabapentin, because of the amounts of strong pain killers he has me on now. He's cautious like that, wants to see how I react with it, and what effect, if any it will have. His intent is to keep moving up the dose on mgs and the number of times if I adust well to it.

Most men undergoing SRT absolutely had to have a full bladder before being zapped. If you remember, I had a suprapubic cath in the place the whole time. My RO could have easily had me have a full bladder, by either clamping off the cath - and having me drink a ton of water, or simply injected water up the irragation port on the cath. Instead, I had the full 72 gys of radiation slamming my bladder. That is why the bladder got burned and fried, and why I ended up having the Urostomy surgery, and why I pee into a plastic bag from a hole in my side. No a very good game plan.