HealingWell
Search Close Search
☰

Our Story...One year after diagnosis

Support Forums
>
Prostate Cancer
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 12/24/2012 12:32 AM (GMT 0)
Hello friends,

Sorry it has taken me so long to post back.  Today is 12/23, and the day we learned my husband had prostate cancer.  I have a bit of nervous energy today, probably because it is exactly 1 year. 

I hope to give hope in sharing our story.  Last year on this date, I learned that my husbands PSA of 17 was an intermediate cancer risk.  It has been a year of ups and downs, but lately I've started to feel like I've got some distance between myself and the disease, and I'm amazed how time is healing my emotional wounds.  If you are in the thick of it, hang in there.

We wrote our story for the PCRI (Prostate Cancer Research Institute, Dr. Mark Scholz).  We met their editor back in September at the Zero Prostate Cancer Summit in Washington, D.C.  She was intrigued with our story and asked that we share, and so we did.  :) 

We feel compelled to provide support in anyway we can, and that is why I'm sharing my story here as well.  You have all been so supportive and have taught me so much about this disease.  Thank you all for a year of friendship, it really means so much.

Please cut and paste the link (if you can't click it), and then scroll down to current newsletter, and click the PDF file that reads: Never Too Young For Prostate Cancer.  Sorry the newletter looks piecemeal.  Our story was part of their quarterly Newsletter, but I'm having a hard time figuring out how to post the entire newsletter.  You can click each PDF to read each section.  Also, you can sign up to receive their entire newsletter as well.

MERRY CHRISTMAS!!! http://prostate-cancer.org/newsletters/pcri-insights-quarterly/

Posted 12/24/2012 1:50 AM (GMT 0)
Wonderful article, thank you for sharing the link.

Susan
Posted 12/24/2012 2:00 AM (GMT 0)
I loved the article. Thank you so much for sharing it with us.

All the best,
Andrew
Posted 12/24/2012 2:47 AM (GMT 0)
Well written, well paced, and in a narrative format that allows people reading it to compare their own situations to the relevant paragraphs in your account.

Your strong first person approach, along with your record of the emotions you were feeling, gives your story a truly vital feel.

A presentation that can indeed help others struggling to understand and manage their own confrontations with the PC crisis.

Well done.
Posted 12/24/2012 3:36 AM (GMT 0)
Excellent! Thank you so much for sharing this with us.
Wishing you and yours a very Merry & Blessed Christmas. :)
Posted 12/24/2012 3:42 AM (GMT 0)
Thx for the update. It was wonderful to meet you both in DC. Now just to keep the zeroes coming...:-)

Tony
Posted 12/24/2012 4:29 AM (GMT 0)
Thank you for sharing your story. Best wishes for a happy holiday.
Posted 12/24/2012 8:10 AM (GMT 0)
walkbyfaith -- Wow!!! Great article; well written. Thanks for sharing.

My wife and I can relate to so much of what you wrote and the emotions you expressed. I was also Dx’d in December, close to Christmas 2010.

Merry Christmas -- Tigerfan
Posted 12/26/2012 9:05 AM (GMT 0)
Thank you for sharing.  It is a long journey and one we hope will end in success.  Wishing you and your husband the very best in the coming year!

Hugs,

Aimzee

Posted 12/26/2012 10:06 AM (GMT 0)
Wonderful story, you both look really good. It is a story of hope and optimism, I read it in one breath. I say this a lot to the ladies here, but they really deserve it and so do you: your husband is sooooo lucky to have such a caring and loving wife! Greetings and happy new year to both!
Posted 12/26/2012 1:32 PM (GMT 0)
WOW, what a great article! You managed to pull off an incredibly detailed yet condensed overview of this beast - from "maybe I have cancer" to "I have cancer" through taking time to make a decision, having the treatment and then coming out on the other side. This, IMHO, is an absolute MUST READ for all newbies.

Thanks so much for sharing your heartfelt story. . . .

My best to you both.
Posted 12/27/2012 2:29 PM (GMT 0)
Here is a direct link to the PDF, if anyone wants to save a step. Thanks for sharing your story!

prostate-cancer.org/wp-content/uploads/2012/11/Insights-Nov-2012-ROBINSONS.pdf

..
Posted 12/27/2012 3:04 PM (GMT 0)
Thanks for sharing. Great article.

I was diagnosed just a couple of weeks after your husband, on MLK day, GS 4+3, 3 small children, so my journey parallels yours in many ways. It has been quite a year.
Posted 12/29/2012 6:20 AM (GMT 0)
What an inspiring story! Anyone who reads it will be better able to face their own cancer journey.  "Cancer will steal your joy if you let it."  My wife and I have refused to let it steal our joy.  Thank you for your willingness to open your lives to others in this way.  God bless you.  
Posted 12/29/2012 9:06 PM (GMT 0)
It means so much to know that our story can help or inspire in some way! Peace and LOVE to you all!

P.S. Thank you for fixing the link to the story.
Posted 12/29/2012 9:07 PM (GMT 0)
I am awaiting my biopsy results (43 years old, PSA 5.5), and I try to be prepared for whatever the result is -but I am not sure whether one can be prepared.

I am reading a lot, but your article really stood out as a personal story, I can very much relate to, and it gives me hope.

Thank you ! And all the best wishes to you and your husband.

Thomas
Posted 12/30/2012 1:09 AM (GMT 0)
Thanks so much for sharing. It is good for re-sharing and try to help others. Wish we had had something like that for us.
Posted 12/30/2012 11:26 PM (GMT 0)
Really well written with many pertinent insights as to what a spouse goes through with this PCA business. I'm glad that your husband was diagnosed relatively early so that the disease is potentially curable; all too many men are not! This is the first time that I've ever read about what effect this insidious disease may have upon a spouse..
It will be through efforts of women like you and women on this forum that PC will "come out of the closet"..It took many years for breast cancer to be a subject for discussion and efforts to defeat it enhanced..I am glad that you have embraced advocacy..yes, I read some of the other articles in the newsletter and am glad that "things are happening"..Maybe efforts can start going forward instead of back to the "dark ages".
Bill
✚ New Topic ✚ Reply