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Pain at tip of penis

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Posted 6/29/2013 9:36 PM (GMT 0)
Pww099
Hope you are improving daily. To others, does everyone get this referred pain from prostatectomy and typically how long does it last?
Posted 6/30/2013 4:18 AM (GMT 0)
I had the pain at the tip after my surgery.
It started soon after the cath was out and lasted about 2 weeks.
Then I had a soreness at the tip, like a raw feeling that lasted a little over a week. I'm now more than 3 months from surgery and I have no pain or soreness there.
Posted 6/30/2013 3:17 PM (GMT 0)
I had a lot of pain at the tip when I had the catheter in, the night before it was removed it kept me up most of the night. After I had the cath removed it really improved but surprisingly was still there to a lessor extent. First couple weeks I wondered if I had a UTI, but had none of the other symptoms. Now four weeks post op, it's nearly completely gone and the referred pain from urethra restiching, is probably the best explanation I've encountered.
Posted 6/30/2013 11:18 PM (GMT 0)
Hello Pww

I was right where you are a week ago. Very discouraged and not knowing who to talk to but as you have found, I happened upon this site and found folks who knew exactly what we are going through - that in itself was a relief. Many of the guys who have already posted helped calm me down. I'm sandwiched in between you and RichP

I can say that I've made progress over the week. Still leaking but it is getting better. I thought I would be full back to "normal" by now but as the guys have stated, it's a process and never as quick as we'd like. I am learning to adjust to this new reality (all of it) slowly. I did go for a one mile jog today after discussing with my surgeon. He just said make sure I empty right before, which I did but I still could feel the leak every other steps or so. Still, I did it.

One of the best tips I got was to use pads inside of the depends dipes. I think that's a good strategy as I'm going to try going back to work this week.

We all have low days, just can't let them get us.
Posted 7/1/2013 3:56 PM (GMT 0)
Talk about being stupid, was managing a "little" better yesterday and decided to have a beer. Talk about opening up the floodgates. Spent most of the next hour plus going to the bathroom, hopefully on July 5 when my family will celebrate my 59th birthday I will be able to handle one.
Posted 7/1/2013 10:59 PM (GMT 0)
Don't beat yourself up, it's only natural to want to celebrate when things take a turn for the better after a rough patch. It's human nature. Wishing the best for you and many beers in the future.
Posted 7/1/2013 11:09 PM (GMT 0)
Pww,

That's not stupid. It's smart. You were doing research. Now you know what happens if you have a beer X days after the catheter come out. But that's only one datapoint. Your next experiment should be to see what happens if you have three or four a few days later. It doesn't hurt you to leak a bit -- it costs you an extra pad or two; just figure them into the cost of the beer. Maybe you should also plan to have beer once a week to look for a trend.

I'm all for science. Just be sure to have enough pads and a designated driver.
Posted 7/2/2013 1:20 AM (GMT 0)
Tomorrow is back to the surgeon day, to see how my shares in depends are doing. I will ask him again to explain slowly the pathologist report. I will have my psa work up done and know a week from then. As the birthday is coming up I will experiment with a tall cold draft of Coors. Something to look forward to.
Posted 7/2/2013 11:21 PM (GMT 0)
Another day of same old crap!!!!! sore tip of penis and going through frigging depends. Met with surgeon,who like so many here have said that what i am going through is normal. He believes the pain is catheter related, my blood work will be done on Monday and back to see him two weeks after that. He made me a drawing and showed me the cancer was at the bottom of the prostate, everything else was good. Just the waiting game for another three weeks.
Posted 7/3/2013 12:11 AM (GMT 0)
Da Vinci 6/5/13. I had some burning after catheter came out, but it slowly improved. I had the cath in for 9 days and I know it irritated the bladder and urethra. Had some spasms, especially with bowel movements. Passed a few very small clots and what looked like scabs over the next 2 weeks. That has also cleared up. Once in a while I'll get a few spasms, but nothing like it was.

I had some pain in the tip that I think was referred from the bladder, but that has subsided, too. I used A&D ointment at night and that really helped the irritated skin.

I use Depends Guards and Depends Shields. I use a Guard during the day and a Shield at night. Just some spotting when I get up out of a chair or bend over. I joke that I do my kegels all day long every time I shift position. I kegel when I cough or sneeze, and I don't have any leakage.

I've been working on holding it and all that does is make me leak once I'm standing in front of the toilet, before I can get my pants down. LOL. I need to move faster and not push it as far.

It gets better. Hang in there.

Oh yeah, I lost my taste for beer and now I like wine more. LOL
Posted 7/3/2013 8:18 PM (GMT 0)
I hate to be here complaining again because I know from some of your posts people have had it far rougher than me. It has been three weeks since my RPT and 6 days from my catheter being removed. I do my kegels three times a day and still I go through countless depends. I am scared to drink a glass of water in order that I do not pee. The only positive is that when I get up from a sitting position I can hold it the ten seconds ini order to make the washroom. I am very depressed and miss the life I once had, it has taken away so many things.
Posted 7/3/2013 9:06 PM (GMT 0)
Pww099,

I do not know what your URO told you but the majority of surgery guys are not fully continent the first month after surgery. It takes time to heal and getting use to the new plumbing. It can take as much as 6 months to a year to regain continence. I was one of the lucky guys as it took me almost 4 weeks and I leaked like a sieve before that day I got dry. Give yourself more time and discuss your issues with the doctor or surgeon, most URO's have services offering rehab classes in regaining continence. Many of the guys in this forum with continence issues were Gleason 8 and 9 pathology whose surgeries required more tissue removal often damaging  the sphincter resulting in continence issues. You say you are doing Kegels but you can over do them tiring the pelvic muscle that controls the one sphincter you now have.

Just hang in there, give it time and things will get better.

Terry

Posted 7/3/2013 10:13 PM (GMT 0)
Pww,

Feel free to complain all you want. There's lots of us here. If we get tired we'll take turns. Most of us have been where you are and it sucks. It's one of the hardest parts of the process. I'm not sure why incontinence blindsides us all but it does. If you think back, you will probably remember that your doctor tried to warn you. I know mine did. But I had never had major incontinence before and I had no idea how much it would bug me... until the catheter came out.

But it does get better. You will get your life back a little bit at a time.
Posted 9/5/2013 3:24 PM (GMT 0)
It is now 12 weeks post surgery, urologist indicated the scope was clean and had no idea where the pain was coming from. I would say it is more of a dull ache now and continent, though I still wear a shield. My question is, I still have days that I pee frequently and wonder if this is just part of the recovery.
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