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Posted 7/22/2013 3:34 AM (GMT 0)
Still log on here frequently to keep up with everyone. PSA declined twice after Jan. 2012 negative biopsy before increasing slightly last week. Doc seems to think all is fine - last biopsy showed prostate to be around 36 grams. Will keep careful watch, however, and continue to educate myself. This forum as well as the Yananow site have been invaluable to me over the past 4 years and I would like to extend grateful appreciation to all of you who share your experiences with scared individuals who happen upon this site like I did in 2009. Thanks again and keep up the good work!
Posted 7/22/2013 6:49 AM (GMT 0)
Hi there,

Thanks for still loggin in around here. We are eager to continue rejecting your application for official membership into "the club," but are very happy to have you as an "honorary" member. :)

Take care,
Chuck

Resident of Highland, Indiana just outside of Chicago, IL.
July 2011 local PSA lab reading 6.41 (from 4.1 in 2009). Mayo Clinic PSA Sept. 2011 was 5.7.
Local urologist DRE revealed significant BPH, but no lumps.
PCa Dx Aug. 2011 at age of 61.
Biopsy revealed adenocarcinoma in 3 of 20 cores (one 5%, two 20%). T2C.
Gleason score 3+3=6.
CT of abdomen, bone scan both negative.
DaVinci prostatectomy 11/1/11 at Mayo Clinic (Rochester, MN), nerve sparing, age 62.
My surgeon was Dr. Matthew Tollefson, who I highly recommend.
Final pathology shows tumor confined to prostate.
5 lymph nodes, seminal vesicles, extraprostatic soft tissue all negative.
1.0 x 0.6 x 0.6 cm mass involving right posterior inferior,
right posterior apex & left mid posterior prostate.
Right posterior apex margin involved by tumor over a 0.2 cm length, doctor says this is insignificant.
Prostate 98.3 grams, tumor 2 grams. Prostate size 5.0 x 4.7 x 4.5 cm.
Abdominal drain removed the morning after surgery.
Catheter out in 7 days. No incontinence, occasional minor dripping.
Post-op exams 2/13/12, 9/10/12, PSA <0.1. PSA tests now annual.
Semi-firm erections now happening 14 months post-op & VERY slowly getting a bit stronger.
Posted 7/22/2013 11:12 AM (GMT 0)
Glad to see you're staying on it, and let's hope nothing ever comes of it!

At the same time, my case is an example of the need to stay with the monitoring plan. I wrote a pretty full story of my journey on this thread by komatta: https://www.healingwell.com/community/default.aspx?f=35&m=2785750

You may also consider the PCA3 test to indicate if another biopsy is worthwhile. The appropriate follow-up plan for one with persistently elevated PSA and multiple negative biopsies is not well defined.
Posted 7/22/2013 11:35 AM (GMT 0)
Thanks Redwing - reading your story is eerily familiar. I, too, felt the numbers probably indicated Pca and began studying and gathering information. Even had one respected urologist tell me "you've probably got it, we just need to find it." After 3 worrisome years and 3 negative biopsies, however, I decided to just monitor (every 6 months) PSA and relax a little. It seemed I was driving myself a little crazy over it. Thanks again, tho, for the advice. Confirms the need to be vigilant.
Posted 7/22/2013 11:44 AM (GMT 0)
Your story sounds a lot like mine. One thing you may want to consider is a color Doppler ultra sound guided biopsy. Not a guarantee but they were able to locate my PCa with it. You are staying on top of it, that's the way to be!
Posted 7/22/2013 12:07 PM (GMT 0)
First and foremost congratulations on having your membership to our little club denied! Seriously, good for you and glad your numbers/results continue to be good.

In addition to being proactive about monitoring, have you done anything different from a dietary perspective? Things you've added that may be helpful, things you stay away from?

Continued best to you!
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