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UPDATE: Psa dropping, supplements working?

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Posted 4/18/2013 4:37 AM (GMT 0)
I wouldn't do a darn thing yet either. Keep enjoying your QOL and monitoring every 90 days.
Posted 4/18/2013 1:52 PM (GMT 0)
Just a clarification for anybody reading who has been diagnosed with SVI. It does not mean systemic disease. It is an added risk factor that somewhat increases the probability of recurrence. In my case, my recurrence seems to have been local because the SRT knocked my PSA back to 0.
Posted 4/18/2013 4:06 PM (GMT 0)
Thanks for all of the replys guys. I have bounced around all over the 'net and find this to be the best, most interactive forum on PCa. So, thanks again for all the valuable input and to the moderators for their work in keeping us all on track.

In response to some of you: I am 65yo, 57 when diagnosed. Your comments have reinforced my plans to wait until my PSA reaches at least 0.2. At my current rate of increase that should be at least a year or more. What I really hope for is a leveling off. I plan to reinforce my dietary, exercise routine and continually monitor and stay up to date on any supplements that show promise.

Next PSA in 4 months. Meanwhile my uro wants me to consult with a rad onc. I will probably do that just to have that step completed if I need to move forward with getting zapped in the future.

I know that many of you on this forum have far worse issues and sometimes I feel like a crybaby taking up this space. All I can say is that I am so grateful for the support and I wish all the very best to everyone here as we forge on in this battle.

Posted 4/18/2013 8:24 PM (GMT 0)
Good plan imo Jmon and I think you meant 0.2, darn decimals.
Bohemond thanks for the clarification on systemic
Posted 4/18/2013 8:54 PM (GMT 0)
You were a very wise man to have had the prostate removed, since you can now have the clean up radiation treatment. Stand strong. It is a blow, but we are rooting for you!
Posted 4/18/2013 9:15 PM (GMT 0)
Thanks Logo. Correction made.
Posted 8/30/2013 2:28 AM (GMT 0)
Update. Just had my latest psa test. IT WENT DOWN. Now 0.10. I won't get too excited until I have another test in 4 months. If it is still going in that direction, then I will celebrate.

For now I have to speculate as to what may have caused the drop if it isn't just lab error. If you have followed this thread you know that I am taking every supplement that has ever been shown to have an impact on PCa. However, I have added 2 recently so I have to wonder if they have had a positive impact.

Most recently added were IP-6 and Modified Citrus Pectin. It would be great news for everyone if we could establish that some supplements actually work. I would love to know what may be working so I could drop the expense of all that probably aren't.

Now 8 years out from the robot this month, I was expecting to spend a month and a half taking daily trips to the radiation lab soon. If I can sustain this psa level I may never have to go there. WOO-HOO!!

 

Posted 8/30/2013 3:08 AM (GMT 0)
Jmon
That's great news, what a relief that must be for you.
Posted 8/30/2013 3:19 AM (GMT 0)
Jmon -- that's great news!

ed

Posted 8/30/2013 3:25 AM (GMT 0)
great news Jmon. I hope it goes down further on next one.
Posted 8/30/2013 10:53 AM (GMT 0)
Jmon, so pleased to read your update.
You just keep dodging that bullet!
Stay well.
Susan
x
Posted 8/30/2013 11:18 AM (GMT 0)
Great news Jmon. What supplements are you taking know? I take several and also have changed my diet.

Post Edited (BB_Fan) : 8/30/2013 5:21:51 AM (GMT-6)

Posted 8/30/2013 11:32 AM (GMT 0)
Jmon, that is great news indeed. I am very happy for you.

Jim
Posted 8/30/2013 3:34 PM (GMT 0)
Thanks for all of the encouragement. BB, to answer your question:

1) I've been taking for a long time: Curcumin with pepperine, pomegranite extract, Zyflamend, resveratol, astaxanthin, reishi mushroom extract, vit D, cayenne, broccoli and a garlic/ginger supplement. Also drink lots of green tea, excersize and stay fit, eat a good (not extreme) diet with limited red meat and dairy. We grow and eat lots of tomatoes.


2) What I have added in the past 6 months or so: propolis, IP-6 and Modified citrus pectin.

I can't begin to guess which, if any of these things, are providing benefit. However, I willl tell you this. I will be 66 years old in a couple weeks and I literally feel as healthy and strong as when I was 30. I have no muscle or joint pain, no issues with ED or incontinence. Again, I don't know if any of these supplements have anything whatsoever to do with it but, I am not going to risk stopping them -- even tho it is relatively expensive. If they keep me out of the radiation lab, they are worth every penny.

BTW, if interested, you can Google each item to see how it is related to PCa.

Posted 8/31/2013 3:11 PM (GMT 0)
BTW, regarding diet, I try to avoid dairy. Don't drink milk but I love cheese so that is a struggle. Also, I include chia and flax seeds on my cereal or smoothies.

Again, don't know if any of this is actually helping but I can't stop now.
Posted 8/31/2013 3:38 PM (GMT 0)
Congratulations on the PSA trend.

I'm taking time release turmeric, ginger, IP6, Pomegranate extract, milk thistle, d-limoline, Turkey Tail Mushroom, vitamin b-1, b-6.  Also take a little metformin by prescription.

Posted 8/31/2013 3:50 PM (GMT 0)
RobertC,
Just curious on the Metformin. Did you get a scrip for it due to potential diabetes or specifically for you PCa? Looks like something is working for you.
Posted 8/31/2013 4:00 PM (GMT 0)
Jmon,

I asked for it for prostate cancer prophylaxis and the doctor was skeptical but gave it to me. (A doctor at the VA declined it for that purpose).

My doctor is older and forgetful.  When I asked for a refill I told him it was for metabolic syndrome (belly fat, weight, blood glucose level). He did not question that. I'm only taking 500 mg right now.

Recently started taking a cheap dose of bee propolis also.

Posted 9/1/2013 11:34 PM (GMT 0)
RobertC,

Do you think the Metformin is responsible for your drop in psa?

I think if we get some anecdotal evidence coming in regarding Metformin it could benefit a lot of guys on this forum (and beyond)

It would be great if there was something found that would consistently keep PCa at bay and save a lot of guys and their families the potential pitfalls of conventional treatment. I am throwing everything possible at this thing to keep from having to get nuked. Looking back, I was fortunate to come thru my initial date with DaVinci with no major or lingering issues. But I certainly don't want to see anyone getting carved up or zapped if there is a safer alternative.
Posted 9/2/2013 6:37 PM (GMT 0)
Jmon,
I don't know what if anything is helping me. I am throwing everything but the kitchen sink.
Supplements, small metformin dose, vegan diet with no dairy usually. small aspirin.

My thinking is that diet, etc. is more likely to help early rather than after recurrence.

For what its worth, these are my notes on anti-proliferation stuff.
/docs.google.com/document/d/1BF_8fIyOpiIbWsQ92xoRZrz-InLxJcN3knjUMtRv9wM/edit
Posted 9/3/2013 5:29 PM (GMT 0)
Robert,
That is a nice "library" of articles. I'm sure a lot of the guys would find it interesting. Maybe you should start a new thread to share it.

I read everything I can find and have even printed a few articles but have never thought to make a compilation such as yours. Thank you.

It looks like we are on much the same regimen. Sure wish we could single out whatever it is that is providing benenfit. As it is it's a lot of $$$ to be spending on supplements, etc.

I recently added a couple handfuls of walnuts to my diet. Only problem is they make my mouth sore.
Posted 9/3/2013 6:29 PM (GMT 0)
Thanks, Jmon
The book "anticancer" espouses foods that impact many different receptors, in effect a multitude of different plant-based foods that affect the body in many ways.
There is so much controversy about food and supplements that I don't want to start a separate thread.
I'm spending 25-35 dollars or so a month on supplements and I vary what I take a little if I feel cheap.
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