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Posted 12/17/2013 10:18 PM (GMT 0)
6 weeks post ralp. have not been drinking coffee, eating chocklate or drinking wine. continence has slowly improved. using 2 to 4 depends guard pads a day for leakage. miss my evening glass of wine with dinner and my morning coffee. has anybody tried decaf and does it not affect the bladder. wine. can't really complain and I can live without those things but I sure miss them. age 70 and seeing great improvement. can't stress to new members that the most important thing is PATIENCE.
Posted 12/17/2013 10:43 PM (GMT 0)
hi
Yes...need plenty of patience
I m oso a coffee drinker....yes it does irritate my bladder. Even after recovering from incontinence, I had to restrict 1 cup a day. Now I m able to take 2 to 3 cups a day. But occasionally need to pee more times.
Drinking beer have not much impact. Can take about 1 to 2 pint normally. I m not a wine drinker.
All the best to your road of recovery.
Posted 12/18/2013 12:11 AM (GMT 0)
I am only three weeks post RALP. I have been drinking my Swiss water decaf coffee for breakfast for a week now and my continence is better in the morning.
Posted 12/18/2013 12:18 AM (GMT 0)
I also switched to decaf coffee. Stay off the orange juice and other citrus drinks also.
The hardest part for me was not having Tex-Mex. I used to live in Texas for 20 years and love hot, spicy Tex-Mex food.

Bill from Florida cool
Posted 12/18/2013 12:31 AM (GMT 0)
My drinks of choice are Diet Pepsi and beer, I can do without the soda but as an avid home brewer of 20 plus years who would love to start my own nano brewery some day I need a few pints of beer on occasion, sure hope things get better soon, I am a pint low or two!
Posted 12/18/2013 2:39 AM (GMT 0)
Hey Gettingwell

I did some looking for how to do Kegals and found this to be the best information for me.

www.continence.org.au/pages/pelvic-floor-muscle-exercises-for-men.html

They have a guide on this page

www.continence.org.au/resources.php/01tA0000001b1c5IAA/continence-and-prostate-a-guide-for-men-undergoing-prostate-surgery

I started following the recommendations on how to do kegals and something they describe as "the knack" and it has seemed to help me

Good luck
Posted 12/18/2013 3:19 AM (GMT 0)

Patrick M said...
Hey Gettingwell

I did some looking for how to do Kegals and found this to be the best information for me.

www.continence.org.au/pages/pelvic-floor-muscle-exercises-for-men.html

They have a guide on this page

www.continence.org.au/resources.php/01tA0000001b1c5IAA/continence-and-prostate-a-guide-for-men-undergoing-prostate-surgery

I started following the recommendations on how to do kegals and something they describe as "the knack" and it has seemed to help me

Good luck

Thanks for the info Patrick!!!
Posted 12/18/2013 3:29 AM (GMT 0)
thanks for the info guys. I will definetly try to improve my kegal exercises. Think I will wait a couple weeks then try a morning cup of decaf. Going on a 10 day carribean cruise Jan 23 so hope to br sustantially better by then. gw
Posted 12/18/2013 3:52 PM (GMT 0)
At some point you will do what you want to get your life back to where you want it. Hopefully the rehab will work. If not a sling or AUS will be a satisfactory fix. I now drink half caf coffee, low acid orange juice and beer and wine when I want. I never gave up my nightly double bourbon.

Ya gotta live life at some point.
Posted 12/23/2013 12:35 AM (GMT 0)
7 weeks tomorrow and still having leakage problems. urologist recommended penis clamp for special times when I need to be sure to hold for two or three hours. anybody doing that? walking 30 to 40 minutes on treadmill every day. [ to cold and rainy for outside here in oregon]. doing 3 sets of 20 kegals a day. taking 1 5mg ciallis everyday and just started work with pump. did anybody notice an increase in urinating after starting the pump? also if anybody does use the clamp does it help stretch the bladder to hold more before you get the urge to void again? GW
Posted 12/23/2013 12:49 AM (GMT 0)
GW- I never used the clamp, but I have a friend(10 years out) that uses it when necessary. At 7 weeks you just might end up totally continent before you know it . I was and remain 98% continent at 1 year, but it was a long year. Yes many times I fill the pump with piss when erect. So it goes. Stay positive, be patient and by all means use the VED daily. Regards Inkhorn
Posted 12/23/2013 12:58 AM (GMT 0)
I'm dry 9 weeks out, except for when I cough or sneeze! Any advice?
Posted 12/23/2013 3:39 AM (GMT 0)
I still have my prostate but I also have a frequency issue. I tried the major medications but neither worked. Then I started kegals and the difference has been remarkable. The trouble is remembering to do them. I lift weights at home and I lie on my back and do a set of kegals between every set of weight exercises. As time went on I tightened the muscles with greater intensity. Doing them between sets of other exercise is a good way to remember to do them. And weight lifting is also good for you.
Posted 12/23/2013 3:53 AM (GMT 0)
Six months out and I just received my second undetectable report.

During my three month checkup I mentioned my dismay about the slow progress and the doc sent me to a physical therapist. I think it helped focus my kegels but I am still using two pads a day, one at night and one during the day for leakage. I am averaging about 8-10 grams a day at this point.

It was never mentioned to me that I should modify my fluid intake and I haven't. I drink tow quads of espresso a day and probably another cup of regular coffee. I drink water all other times. I guess I'll try cutting back on the Joe.

The ED is another issue. It's difficult to work on that one without the proper support :( It appears to be at about 75% which maybe enough to achieve penetration with the real thing but not so much with the man made.

I'm very grateful for the zero but the rest ... Not so much.
Posted 12/26/2013 10:02 PM (GMT 0)
Getting Well,

I feel your pain, I hit seven weeks next week myself. In next week for my post RALP PSA test...I did this with out the recommendation of any doctor and not sure it's correct but has helped me some...

I had a physical last week for a new job, all went well, HR just wanted a note from my doc that said I am good to go back to work. The issue was part of the physical was a urinalysis test for drug screening...very hard to do when you can't control what your bladder does. So I gave a sample but wasn't enough...

So I went home researched some clamp options and ordered one through Amazon...the one I got looked the least torcharess...I figured it will do several things, one allow me to clamp things down, hold in the urine long enough for me to fill up and give the needed sample size. Also in doing this it will help my bladder storage size expand to pre surgery size? I am waiting for referral from PCM to physical therapy for bladder retraining...ready to try anything.

So the clamp works pretty good. Took it on a test ride and wore it as wife and I did a date night last Friday...huge difference....and Saturday am after I wore it for about three hours Friday night, I woke up dry...

I am wore it a few times since and haven't been dry again over night, but it does help. Will wear it as I travel this week for a long drive, and if things aren't better wear as I travel via plane across the country.

As you might know there are many different versions out there I ended up going with the Wiesner Clamp it was like $40 best of luck and happy new years
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