peyronie's disease

Hi Tony,

I´m facing a similar situation, with significant shrinking (1,5") and around 30 dgrees curvature upward. This is causing real problems on sex and consequently demotivation.

But my story is a bit different. I had RP 1,5 year ago and during this period I´ve been shoting Caverjet (Trimix is not available on my country) 1 time per week. But 5 months ago I noticed the begining of the shrinking and curving process, which very rapidly came to this point.

My RP uro, considered that this happens in some cases (15% to 20%) and recommended the VED for the lenght , but for the curvature, he considered that the reduced use (no oxigenation) could be the reason. Consequently he putted on Cialis 5 mg per day and did not considered the shots as causing the problem, so I could continue using taking the care to rotate the side and angle of the shot.

I could not see any improvement, so I went to the most famous uro/andrologist in mt country and he did´n agree with the statements and treatment. He immediatly putted me on E vitamin (6 pils per day) during 1 month to stop the process, and continuing with VED. I will take some photos (1 per week) to monitor the progress and in one month he will evaluate and see next step. He told me about a new product (somewhat toxic, so administrated carefully) which I do not know yet the name, to be taken during 6 months. He also warned me that the ED during this period would (at least) not improve. If this does not works he told me that last solution would be an implant. For this decision I´m not yet ready, a lot of information and pros/cons evaluation before.

I will let you know about progress.

 

Tigerfan53 said...
Tony -- Sorry for your difficulties, but happy to see you are in the Zero Club.

Just my opinion, but I would try Trimix injections before going the implant route.
Trimix will do nothing to cure the curve, but it should give you an erection, once you get the dose right.

I've never used a pump, but although they don't help so much with erectile tissue rehab (because the oxygen content of the blood they bring into the penis is too low) ... they can provide usable erections and they can increase your length (and girth as JStars reported). However (and this is a question for pump users) - if you have Peyronies can you still use a pump? I'm guessing it would depend on the degree of curvature.

Hoping you find a workable solution -- Tigerfan

Yes Tony, sorry to hear about these troubles. I'm sure many of us worry about having the same issues.

The 1st few weeks after surgery I was convinced I had already had significant shrinkage, for whatever reason, even if it was only because I was being pulled more up inside than normal. Then I got my pump, and boy was that disappointing, small and cold! It seemed to me I looked about 1/2 size inside that tube.

Then I had my 1st injection, and things improved greatly. It popped up to normal size, and from then on I get back at least to full size when i pump. I have kept doing both occasionally, and most of that time taking Cialis 5 mg daily, all mostly for rehab. I have not lost anything at all so far(At almost 5 months), and I'm pretty sure I am even a be a bit fatter erect or flaccid and for sure hang loose more than before surgery(larger when flaccid). So far, anyway! Though I am early in the game, so who knows. I don't inject near as much as I should for fear of the PD, but you show that we RP guys get it even without injections!

But I have read from the experts that pumping might keep things stretched, but that cold and bluish erection indicates poorly oxygenated blood, thus rehab is minimal. But I have noticed lately that it is not cold any more when rehab pumping, but looks pink and feels pretty warm! It won't get cool anymore unless I put the rings on and leave them for a little while.

So this has me wondering if I am actually getting fairly well oxygenated blood in the old boy when pumping, thus being good for rehab? Maybe. Wish I knew for sure. Any opinions on that?

Bottom line to all of that: you may want to start pumping ASAP. Even though you are quite a ways out, it probably won't hurt and who knows, might help while you are trying to get all the rest figured out.

First of all, Vitamin E does nothing for Peyronies Disease (PD). The first line non-surgical treatment is prescription Pentoxifylline (pentox) taken with OTC L-Arginine, and a low dose ED drug like Viagra or daily Cialis.

Add to that VED and/or traction - and be CAREFUL NOT TO DAMAGE THE PENIS FURTHER.

OTC Acetyl L-Carnatine and/or ibuprophen may help, especially with any associated pain.

I think it is foolish to try to discuss this here. Most urologist are NOT informed on this topic and many give the very bad advice of waiting 6 months in which you lose precious time (and penis function).

Please take questions on PD to a place where thousands of men who have faced this condition dedicate their time to help others.
http://www.peyroniesforum.net

I did notice that and I will do so. Thanks for the heads-up