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New here - Gleason 8 - Question about balloon
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Sollicita
New Member
Joined : Aug 2014
Posts : 6
Posted 8/20/2014 1:07 AM (GMT 0)
I've been lurking for about
two months, since my father got his diagnosis, and I really appreciate all of the knowledge and support that you share.
My father is doing hormone therapy and radiation. Today he went in for his radiation simulation was surprised to learn that the doctor is recommending using a rectal balloon for the treatments because of my father's pre-existing bowel issues. While is my father is glad that the doctor is attentive to his particular needs, his first experience with the balloon was unpleasant and he's very down about
it. (Plus based on the dietary guidelines, he thinks he is not going to be able to eat very much during the process.) He's envisioning two months of hunger and discomfort.
I don't have any words of comfort because I don't know what I'm talking about
. Can any of you provide some perspective?
Break60
Veteran Member
Joined : Jun 2013
Posts : 1870
Posted 8/20/2014 1:53 AM (GMT 0)
I've never heard of it but you should be glad the RO is aware of the previous problem and is trying to avoid side effects of radiation to the extent possible. I assume the balloon is inflated before each session to keep the rectum away from the prostate bed which will be radiated. This is the same reason the bladder needs to be full and any gas is eliminated / avoided before each session. Your dad needs to understand the importance of following the procedures recommended by the RO but maybe he should get another RO's opinion to satisfy himself. Radiation is tedious because it takes so many treatments, but they are non events if done by experienced practitioners. Side effects however are common at least for a while. Watching his diet will be important particularly if he is prone to GI discomfort.
All the best
Bob
Anxious in Florida
Regular Member
Joined : Sep 2011
Posts : 71
Posted 8/20/2014 11:28 AM (GMT 0)
The balloon is used extensively with Proton Therapy, hense "The Brotherhood of the Balloon". It was a little uncomfortable but they used it with my radiation treatments about
30 times. No lasting side effects and it seems like a small price to pay to spare future problems. Most of the time a good diet is recommended with any treatment and for most diseases. Do what the doctor says. He has your best interest in mine.
Tall Allen
Elite Member
Joined : Jul 2012
Posts : 10645
Posted 8/20/2014 6:32 PM (GMT 0)
It's an immobilization device. Prostate motion between and during sessions can lead to the radiation missing its target and hitting other organs. For many of us who have had radiation, prostate motion is tracked using gold fiducials or radio transponders, sometimes they use balloons instead.
- Allen
SkeeterZX22v
Regular Member
Joined : Apr 2011
Posts : 257
Posted 8/20/2014 11:54 PM (GMT 0)
At IU Health in Bloomington, it is standard practice to use both the balloon and gold fiducials to ensure accuracy and to minimize rectal damage. I have no rectal problems whatsoever and I am approaching 3 years since I completed my proton treatment.
Sollicita
New Member
Joined : Aug 2014
Posts : 6
Posted 8/21/2014 11:43 PM (GMT 0)
Thank you all for your replies. It sounds like those who have used the balloon endure and move on just fine. I am hoping that the treatment won't be as bad as he fears -- he's just really down in the dumps about
it. After the turmoil of the initial diagnosis and then deciding on a course of treatment he seemed to be much better emotionally. I guess the simulation brought reality home again. For the record, his diet is already as healthy as can be. He doesn't want to give up his vegetables!
Also, I'm curious. I've seen very few Gleason 8s on here. Is it really that unusual?
John T
Veteran Member
Joined : Nov 2008
Posts : 4315
Posted 8/22/2014 12:41 AM (GMT 0)
Why would he have to give up vegetables? There should be no effect on his diet and he should be able to eat healthy during his treatments. Many radiation patients find taking Metamucil daily helps with bowel issues that are common and temporary. Good luck to your dad.
Sollicita
New Member
Joined : Aug 2014
Posts : 6
Posted 8/22/2014 12:58 AM (GMT 0)
Hi John - I think they're afraid that the combination of fiber and radiation will exacerbate his existing bowel problems, but I'll have to ask him.
Post Edited (Sollicita) : 8/21/2014 7:01:34 PM (GMT-6)
PeterDisAbelard.
Forum Moderator
Joined : Jul 2012
Posts : 6432
Posted 8/22/2014 1:59 AM (GMT 0)
My RO suggested a low-fiber diet but didn't stress it much since I didn't have many bowel problems. I expect if I had experienced a lot of excessive loose bowels he would have reminded me of his suggestion.
Nomar Lupron 4 Me
Veteran Member
Joined : Apr 2013
Posts : 1922
Posted 8/22/2014 3:05 PM (GMT 0)
The head of radiology at Univ of Florida & Shands told me he uses two teaspoons of air in a balloon inserted into rectum for immobilization purposes for everybody, so not related to your dad's pre-existing bowel issues.
Shands is an hour plus from where I live and I was not convinced the use of balloon justified the difference in distance versus local RO within 5 minutes of my house (twice a day for 7-9 weeks).
Of course IMO 7-9 weeks is way too long vis a vis the 2 week program Dr Chris King at UCLA uses for high risk G9's as an offshoot of his clinical trial for 2 weeks of SBRT for G6's and G7's. So that's the route i intend to follow in October after GFMPH the last week of Sept.
LupronJim
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