Update on G9 that lost the > PSA, but things are positive so far!

Hi everyone, I am from the 2011 summer bunch and although I have been browsing the forum, I haven't been posting much. I wanted to post a few weeks ago, but there were some very important active threads that I did not want to distract from at the time. There are those that are having a rough time along with their caregivers. And there are those that are sharing their successes with the fight. I am seeing a lot of new members that are carrying on with the spirit of this forum, both giving and receiving. This forum is still the best place to be IMHO for those affected by PCa.

I've updated my signature, so you can know my history. After open RP 8/2011, I was happily shocked to be pulling 0's and thought I was one of the very lucky ones. My surgeon wanted me to follow up with ART, and I researched the ole ART vs SRT debate. MY decision was SRT after much research if needed. And even at this point, have no regrets.

So, 35 months after my RP, I was shocked that my PSA came back from 0's to .034. I retested immediately to confirm. Yep, it was correct. The reason I was really shocked is because I had already lost 30 lbs, was eating healthy, joined a gym and had slowed my drinking down pretty drastically already. I had already planned for this just in case by bookmarking a couple of threads from those that had lost their 0 or never got a 0.

Please don't turn this thread in to a debate. I am just sharing my journey. I am borrowing a friends computer right now and will link the thread I will be referring to when I get home. This thread is about using supplements to keep the PSA from rising. After 30 days of going on these supplements and lowering my alcohol intake even more, I can report that my PSA dropped from .034 to .021. I also lost another 5 lbs.

I will also refer to this thread in the G9 thread when I get home later.

It's great to see some old friends on here and I wonder how some are that are MIA. Hopefully they are all well and just moving past PCa. There is always hope for all of us, and it is my hope that all are staying strong, especially the caregivers.

And yep, the rumor is correct-I plan on being at the NY GFMPH!

Startech,
I think you are still in the zero club if PSA was actually .034.
It looks like you are on ultra ultra sensitive PSA test so some fluctuation of tiny numbers is possible.
You are wise to watch the trend.
I'm on a vegan diet with the hope it might help.
Good luck.

Way to go !

Have seen the initial drop in many men who have done the supplement route. Most of the time it seems to creep back up. I hope and pray you are the guy who finds the magic formula.

I am watching !

See you in Rochester.

Goodlife

Good to hear from you startech. We all got some catching up to do in Rochester. Can't wait to see you
Jim and marie

Nice report and update, Star. Good to hear from you.

Even with that reading of .034, you are still way inside the parameters of the zero club, so no need for worries there.

David

Startech -- Great to hear from you. Sorry your PSA is up, but I agree with others that you're still a full member of the Zero Club. Looks like your doing great with the supplements (and the gym)...keep it up. Glad to hear you'll be at GFMPH.

All the best -- Jon

I had a appointment with my surgeon yesterday. Dr Ian Thompson is well known as a PCa expert and has conducted many trials concerning treatment of recurrent and/or stubborn PCa. I was surprised by his opinion. In short, he dismissed the supplements would work and wanted me to start SRT as soon as possible. He even suggested I skip NY and start right away. That is not gonna happen... I am going to NY!

I gave him the list of supplements and dosage I was taking and thought he would agree that the PSA going from.034 to .021 in 30 days was promising. Nope-he thinks the PSA is just bouncing and I just happen to test during a valley reading, and that I should not wait to retest, but rather find an RO immediately. He also told me that he did 2 separate trials on the effects of Omega 3 with PCa patients. "Both results were profound" he said. They found that Omega 3 was detrimental to PCa patients in the first trial and thought something was wrong. So they did another trial and it mirrored the first. So he advised me to stop the Omega 3 immediately.

I literally walked out of there shaking as if I had just been DX'ed for the first time. Well, I want to do more research on the results of this growth arrest program before I find an RO since I decided NY will come first.

Startech,

I basically have gotten the same advice as you about starting SRT right away once PSA's go over 0.2 after 2 separate tests. With a Gleason 9 you have to hit it quickly. You and I have a similar story. RALP in 2011 with G9 and reoccurrence this year. From what I have read you should start SRT before 0.5 PSA and for sure not later than 1.0. The radiation oncologist I am seeing at UCSF in San Francisco writes papers on this stuff so I am going with his advise (hit it hard early). Hopefully the CA is still in the prostate bed.

Best of luck on whatever you do.

Jerry A.

Hi Startech, meet you in Rochester in 2011. Sorry that your PSA is up. I have changed my diet to mediterrean (sp?) and take some supplements. Best of luck. Don't know if I'll make it to Rochester this year.

I remember you BB! Glad your stats are looking good. Would be great to see you again if you can make it! It should be another great time!

Thanks Gunner! I would love to meet with you and hear about your success with the fight on this beast. Come on out and have a good time with us!

Excited to see you, Mr WW and the rest in N Y! Its gonna be BIG this year!