3 1/2 year update....

Hi Ms. My hubby Gary has been on some form of HT for most of past four years. His T levels were never that low, but the lack of energy and loss of muscle mass has really bummed him out at times. He has become accustomed over time and tries to make the best of his feel good days. Hope Mr gets some T back soon and psa stays down there where it belongs!
Beth for Gary

Hello Mr & Mrs WorryWart.

Your hubby has been a forerunner for me, we were the only ones besides one fo the guys' partner that still had our prostates, albeit cancerous, at the first GFMPH Karen and I attended.

I also have PSA = 0.01 and T a whopping 3 when 300 is low end of normal else considered low T. Fortunately I do not have the fatigue and no longer have the hot flashes associated with Lupron.

I am on Zytiga and besides following Mr. WW to have (docs name removed for privacy) as my Medical Oncologist, hope to follow him onto HT after I have been on Zytiga for 9 months. Just crossing the 2 year mark on Lupron when my New Years eve 3-month / 12 -week Lupron shot carries me to March 25, 2015 as I started on 3-28-13.

If I can keep my PSA low, I start HT on Memorial Day 2015 and will have the same questions you pose about how to keep PSA low but increast T-level and Libido.

Congrats on gettign the first half done and best of luck on the second.

LupronJim

(edited for Mr. WW's privacy - 142)

Post Edited By Moderator (142) : 1/10/2015 12:09:01 PM (GMT-7)

great news on the PSA - congratulations!

Andrew

Wonderful news. tho the fact that it is this low, means arguably, that the refractory cells, seem to be non existent, with the additional tx beyond HT probably killing them off. I know zip about testosterone enhancement and its "potential" to wake up any sleeping cells that are fed by T levels. Again congrats and have a great year!

MsWW -- great to hear from you. Love that PSA number!!!

Keep beating down the beast and livin' large.

Best -- Jon

MsWW, boy this is some great news to hear from you guys.

I can't answer your question about returning T levels. I am still on the HT crap.

But I am sure happy to hear about the Mr's great numbers and response. Another "Bonus Day" for sure,

Sonny

Ms Worrywart, I am glad Mr Worry is doing well. I hope he gets a solid T recovery and the PSA stays low!

I know I am being captain obvious here and you know this, but some newer folks might not get this point: one cannot start the countdown to T improvement until the last Lupron or similar meds wear off. For example, if the last Lupron shot is 4 months, then it is four months later, at the earliest, before the body will begin to respond with any kind of progress toward T production. When my last Lupron shot wore off, I was told it would be 6 months more before I would notice any movement in T levels and 12 months to get to some degree of normal. Fortunately, that prediction was inaccurate. I started noticing "changes" almost immediately and was back to normal within 4 months. I was also told that recovery was somewhat influenced by prior T levels; higher pre-treatment levels generally are a positive sign for a faster recovery. I have no idea what my historical levels were but I suspect they were high.

SC

Great to hear that the PSA is holding ... a prayer here that the T gets back to normal range.

Keep living large and have a great new year!

Ray

PS I hope to follow you in a year or two!