Leakage after one week of catheter removal

I had my RP on 3/4/15 and the catheter removed 10 days latter. The first two nights after removal I stayed dry all night. Since then I wake up twice a night mostly dry but have to hurry to the bathroom and by then have started leaking strongly. During the day , I have little or no leakage while sitting but almost always have a surge when I get up. When I'm walking I may have very little leakage to heavy.I've noticed the last several days my stream is considerably stronger and stopping and starting is easy. I'm 68 and run and exercise 5-6 days per week. Now, I've been walking 2-5 miles a day. I have fair, sensitive skin so change my depends frequently because of irrational. I know this is early but when leaking is heavy, it is very depressing. Any comments are appreciated.

Plan on it taking a few MONTHS to get better and you won't be disappointed. If you stop leaking sooner then that's great.

Welcome John! I had my surgery two days before yours and we pulled the catheter at nine days and I was immediately continent and have stayed that way except for leaking during stress or trying to pass gas. From reading about others experience with continence, it varies all over the place from being immediately continent (like me) to taking a year or more to achieve control. Like others have mentioned - hang in there , keep walking and doing your kegels.

John, i'm thinking about surgery and that is one of my big concerns. Good Luck!!!!

Hello John, sorry to see that you're here, but welcome aboard. I fully understand where you are at. My surgery was 2/23/2015 so I am just a month out. My catheter was out 10 days later and I went back to work after two weeks. I am a building inspector and spend more than half of my day on my feet. What a bad idea going to work after two weeks, I should have waited for at least three. I was also very frustrated about the leaking/pouring but after several of these great people here have told me, "relax, it takes time". I wore depends and man pads for a solid week and am just on the man pads now. (I even had an erection after 2 1/2 weeks and let all here know of the news). I have never had any leaking at night while sleeping or just sitting in my recliner (one of my favorite spots) but when I get up, the "faucet" gets turned on. Before surgery I was an extreme coffee drinker but now I am down to one cup and absolutely no sweet tea. I still get very upset about the leaking but can say that it is getting better every week. This is the worst thing about the surgery and wasn't expecting so much of it. Please keep up with us all on your progress.

It is still early for you to be totally dry. Think around 6 - 8 weeks (around 2 months) and it should be better. At 3 months, your surgeon will ask how it's going. Be honest!!

My surgery was mid October and the catheter was in 17 days. Now in March, keeping dry is almost a given - FOR ME. Everyone is different so do not get discouraged.

Don
_______________________________________________
Age 61 @ DX, 62 Now
DRE: enlarged w/"ridge"
Pre-Op PSA: 6.8
Biopsy: 5 of 14 positive, 12%(3+3),11%(3+3),20%(4+3),5%(3+3),4%(3+3)
da Vinci: 10/17/2014 Both Nerves Spared
Cath: 17 days
Post-Op Path:
Histologic Type: Adenocarcinoma
77gr - 4.5cm x 4.7cm X 4.2cm - 10-20% Involved by tumor
Largest module: 1.6cm Bilateral Lobes
Gleason Grade: 3+3=6 (down from a 4+3=7 in biopsy)
TNM Staging: pT2c pN0 cM0
EPE: Absent, SMI: Absent
Margins: uninvolved, Lymph Nodes all benign
Bladder Neck Negative for Carcinoma
Perineural Invasion - present, Vascular Invasion - present
PSAs: (Roche ECLIA methodology):
01/22/15 - <0.1 (Three Month test)

if your walking 2-5 and you are a runner and a long time consistent fitness buff, I think you are probably jogging a bit during those walks. I also think thats a good thing. The negative of that is that you will leak more doing that. So accept the trade off, because in the end you will get your fitness back sooner than most and eventually have the continence that you want as well. Trade offs are a permanent part of life. Dont't stress over them, rejoice in them…opportunity. Perfection simply does not exist in the physical, the pursuit and knowledge of perfection is the gift that keeps on giving. Don't screw it up by wasting time expecting it. I say this be cause you know as well as anyone that the complaint of your thread is pointless. Don't react to my words… react to what Im saying...

John,

Sounds like your doing very thing right, it just takes time, or do that's what everyone says?

I am rapidly approaching the 18 month mark, and I wish I was as dry as you! I have tried the no canine, no alcohol, no OJ, even no waster...nothing really works. I went through 5 months of PT and have quit two jobs because of my leaking. I meet again with my URO to come up with a game plan in two weeks.

So hang in there it could be worse and it's way to early to get worried about things that you can't change. My brother had his surgery last month and is already dry, almost immediately. It affects everyone diferent and there is not much anyone can do to help it get better any faster, just is what it is. I wish you a speedy recover and membership into the zero club and years of good health for many years to come. But three weeks is way to soon to get too excited about still leaking, relax, have your beers and enjoy life! All the best.