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Caregivers Corner, Treatments for Advanced Disease, Results, Side Effects, etc. (Part 5)

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Prostate Cancer
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Posted 5/10/2015 12:47 AM (GMT 0)
Happy Mothers Day to all you Wonderful Ladies and I hope you all have a good day tomorrow.
Krissy - yes, you SHOULD get more gifts tomorrow especially since you're working!

SeattleJ - Welcome and Thank you both for the Mothers Day wishes! I see you just completed SRT - I bet you'll have great results! You mentioned your wife had cancer also - what a rough road you two have had - lets hope those hard times are past.

Sal, Happy Mothers Day - so glad your sons are nearby.
Sal & Ted - Thinking of you both today.

Susan
Posted 5/19/2015 4:47 AM (GMT 0)
It is with a very sad heart and tear filled eyes that I make this post. My very, very strong, diligent husband and PC Warrior has left this life and has claimed victory over this terrible disease and has left his earthly body for a heavenly home not filled with treatment's, oral medications or IV infusions on Tuesday evening, May 12,2015.
It was a terrible 5 or 6 weeks and hospice wasn't much better.
I will not view this site for awhile, it holds to many memories.

Will post more later....
Sal
Posted 5/19/2015 5:05 AM (GMT 0)
Sal,
Not a day goes by that I have not thought of you and prayed for you to find some comfort in this most difficult time. You soul mate of so many years...I know you will be united again. So sorry for the pain you endure for now. Thank you for sharing some of you with us.
Beth
Posted 5/19/2015 9:40 AM (GMT 0)
Sal ;
My deepest sympathy to you and your family. I as well have been thinking of you and Ted often the past few weeks. So very sorry
Sue
Posted 5/19/2015 9:49 AM (GMT 0)
Sal,

I'm so sorry and send condolences from Paul and I. He was a courageous warrior right up to the end. May the memories of better times soon replace the sorrow and pain.

We're here for you when you're ready. Hugs!
Posted 5/19/2015 11:37 AM (GMT 0)
I am so very sorry Sal.
Posted 5/19/2015 12:06 PM (GMT 0)
Sal,
You and Ted have been and will remain in my thoughts. I love your screen name--Tednsal-it shows how united you have been even through these tough times. My sympathies to you and your family. His suffering is over now, while yours continues. Prayers coming your way.
Beth
Posted 5/19/2015 12:17 PM (GMT 0)
Sal,
So sorry to read your post this morning even though I knew it was coming. Frank and I
will hold you in our hearts and offer prayers for your comfort going forward.
Lisa
Posted 5/19/2015 1:01 PM (GMT 0)
Sal,

So very sorry to read your post this morning. I will continue to pray for peace for you and your family!!

Thank you for taking the time to share the sad news with us.

Dave
Posted 5/19/2015 1:23 PM (GMT 0)
Sal dear,
My heart goes out to you and your family. Even though you knew how this would end, the emotions cannot be imagined. You have been a friend to many here sharing what Ted and you went through and that is so appreciated. We are and will be here for you. Thinking of you still.

May the road rise up to meet you,
Susan
Posted 5/19/2015 3:55 PM (GMT 0)
Sal,

Like so many of the men whose caregivers post on this thread, Ted was a very lucky unlucky man -- lucky to have you by his side to the end. So sorry for your loss. There are a lot of thoughts and prayers heading your way as you put things back together.
Posted 5/20/2015 3:20 PM (GMT 0)
Sal,

I am so sorry to read this! My heart and prayers go out to you and your family. May you have peace knowing you both fought bravely and you were with him the entire time. Please take care of yourself!
Posted 5/21/2015 1:37 AM (GMT 0)
Sal,
I have thought of you frequently and I am so sorry to hear this news. My prayers are with you. I pray for your peace and comfort and that in time you can look back and smile at the wonderful memories you shared. So sorry.~Miki
Posted 5/21/2015 3:18 AM (GMT 0)
Sal, so sorry for your loss.
Posted 5/22/2015 9:23 PM (GMT 0)
Sal so sorry to hear your sad news. Your in my thoughts and prayers
Posted 5/23/2015 2:57 AM (GMT 0)
Sal & Susan,
God bless you both; you went the distance!
Bill
Posted 5/23/2015 5:34 PM (GMT 0)
You're in our thoughts, Sal.

Susan
Posted 5/31/2015 5:30 AM (GMT 0)
Oh Sal, I haven't been checking in recently. I am so sorry to hear your news. Please take as good of care of yourself as you did for Ted.
Posted 6/6/2015 1:24 AM (GMT 0)
Dear Sal,
I just saw your post and am so sad for you and your husband. You are so courageous and fought side by side with him and I'm sure he was grateful for everything you did for him. Such a great loss and such a void left behind that only time will mend. Peace be with you.
Posted 6/8/2015 4:13 AM (GMT 0)
Hello All.....I do not think that I will visit this site for awhile, hurts too much now. Reliving all of the situations and issues that have happened during our PC journey is to overwhelming to handle at this time for me. I appreciate all of your condolence remarks and kind and encouraging words. I may have been strong while on this PC journey, but I am weak and fragile now. No focus and nothing to do anymore, no pills to put in the pill box every week, no bed to pull down, no more "we" or "our", no two cups to put out for coffee, too many "no more's"......and they keep coming every day, the "no more's".....only pictures to look at now, no more laughter, just thoughts of "what now".....don't know Who I Am, I've been a caregiver for so long, I've lost myself. I'm now a single person, a widower, no longer a "twosome".....

Please caregiver's, be strong for yourself as well as for your partner, but don't lose yourself, because if the PC takes away your "twosome", your left to pick up the pieces by yourself. Love that partner and do as much and "say" as much as you can to each other, know and understand the inevitable and plan for it!

radsgrrl22 (Susan), e-mail me if you check this site, I would like to correspond with you if at all possible...

Again, thank you all for your support with information as we traveled this path in regards to treatments, their side effects, the availability of drugs, anything and everything that I learned about was helpful and beneficial and I truly was inspired by each and everyone of you throughout our journey.

Peace, Love and Hope for a CURE....

sal (tednsal)
Posted 6/8/2015 6:01 AM (GMT 0)
Sal,
I was just thinking about emailing you and letting you know you are in my thoughts. I am trying to prepare myself for being alone, but I just don't know how really, except I plan to try to stay busy. I bet when the time comes though, it will be easier said than done and you had twice the time of twosome with you soul mate than I have had with Gary.
I hope that you are able to find a degree of happiness in your everyday living at some point, and your memories of Ted will one day bring more joy than pain. Keeping you in my thoughts and prayers Sal.
Beth
Posted 6/16/2015 5:39 PM (GMT 0)
Thinking of you, Sal.

BeeJane suggested on SueSaddened's post that perhaps Sue's could be combined with CareGivers. It would help keep us all together and not have one or the other pushed so far back. Of course, since Sue is the original poster on hers that would be up to her and I supposed Peter as to whether that can happen.

Susan
Posted 6/21/2015 7:56 PM (GMT 0)
Hello Ladies, This thread has fallen too far back.
I want to update on my husbands situation so I'm going to repost what I put on Sue's thread:

We spent the day at Moffitt Friday and here is an update:
The Jevtana is NOT working. Don's PSA has almost doubled in 12 wks.
The lesions on his liver have grown in number and size. So much so Doc wonders if this is not pc in the liver but liver cancer.
Lymph nodes have grown and are pressing on the ureter on his left kidney so it's not fully emptying. He has an appt with a urologist next week to have a stoma (or something like that) put in to keep the kidney draining.
So, instead of Jevtana #5 Don went back on docetaxel and carboplatin was added. He'll get 3 cycles and then retest to see whats happening in there.
Tough day but he's sleeping now and tomorrow is another day.

Now, I had help with handling all of this so I could prepare Don before we went to our appt today. I'd gotten the results of his CT and Labs online Sunday night and was shocked. I couldn't even try to explain to him what was happening cause I didn't understand myself. Krissy read the report for me and guided me through it so I could talk to Don about it in a calm manner without making not good news even worse. I will be forever grateful to her for that.
Now, THAT is what we do for each other here. Every one of us in our own way. Together we are strong, helping and encouraging each other and in turn as partners to our men. By choice I believe that as we consciously unite we better ourselves and each other.

I wish you all well. Be strong and trust yourself.
Susan
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Posted 6/21/2015 11:00 PM (GMT 0)
So sorry to hear about bad news from ct scan for Don.  My husband Steve got his PSA results yesterday and it went up from 151 to 304 in three weeks, so no more chemo/ Jevtana as it is not working.  We are going to CTCA next week to see if they can offer any suggestion as our oncologist is out of treatments. It is so hard to discuss with each other the results and what treatments are offered. I wish and pray for the best for you and us. Carol
Posted 6/22/2015 1:02 AM (GMT 0)
It's kind of a double edged sword...the chemo isn't a great choice because of the damage it does but when you know there are so few options it becomes the one you put your hope in. Then when it's not working it's a crushing blow. No one is forced to make these choices, permission has to be given and the paper has to be signed. Strange situation to be in for our mates and us.
Well, Carol, looks like we need all the help we can get and I am with you in this. I'll be looking for your appointment results and hope you and Steve can find a treatment that he's comfortable with and gives a great result.

Susan
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