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Posted 10/28/2015 6:58 AM (GMT 0)
Hi caregivers New and veteran members a. Susan and I "bumped" the caregivers corner thread in hopes that we might generate some interest from members to begin posting here again.
Beth
Posted 10/29/2015 4:19 PM (GMT 0)
Hi Friends, I read this and had to post.  The comfort I got from this site and all you made me face my trial with strength and courrage.  I hope many more caregivers join as it is such a help.  I am doing good.  I hate making decisions without talking with Steve.  A very hard part is the life insurance money is coming in and I am having to decide what to do with my life. People say take more time and than people say move on and it seems I do one some days and the other the next days. No matter how much time you and yours talked when you have to do it alone it is hard. Beth and Susan Keep focus on what is important and do what you have to do to get though this very difficult time. Have family close and let them help it was my salvation many times. I know you can not imagine it being harder that what you are going through now but believe me it is sooo much harder when he is gone. I think and pray for you and all the men who are "living with Pca"  Carol
Posted 10/29/2015 5:09 PM (GMT 0)
Carol,
It is so good to hear from you. Think of you often and I can't imagine how difficult things are for you without your true love to come home to. Thank you for your kind words and wisdom. Betty best to you as you struggle through these decisions. Don't push yourself to "move on" til you're darn good and ready. But do take time to do something good for just you! XOXO
Beth
Posted 10/29/2015 5:56 PM (GMT 0)
oops\

Post Edited (Ken) : 10/29/2015 11:13:04 PM (GMT-6)

Posted 10/29/2015 11:05 PM (GMT 0)
Hello,

My husband was diagnosed May 2015. The journey has been a complete roller coaster as all of you know. We just finished chemo today after 6 treatments of Taxotere. His PSA was at 112 when we started the hormone therapy (Firmagon) and the chemo. In July it had dropped to 12. They took blood today and included a PSA with it, so we are anxious to find out the results. They have not run a PSA since July.
He has been having worsening pain in the last month or so and the oncologist wants him to have a PET scan in the next few weeks. He said the chemo and hormone therapy should be making the pain better instead of worse.
Even though I am glad that his chemo is done I felt like we were letting go of our life line when we were walking out of the office. I know he is still on hormone therapy, but I guess I felt "safer" knowing that the chemo was part of our battle.
Every day is different with this unpredictable disease. I am so scared that I am going to make the wrong decision or choice for him. He forgets things really easy lately and I am working hard to be the best advocate I can for him. Has anyone felt this way? Does the fear and anxiety get easier?
Thank you for listening. It is a comfort to be here and talk to people that really do understand what we are going through.
Posted 10/30/2015 12:45 AM (GMT 0)
Hello,
I think we are pretty much where you are now. My husband was diagnosed in May as well. Like you, I am so afraid of making the wrong choices - I think we all feel that way. We are waiting for results of yesterday's bone scan. When we thought they were through, they wanted him back in for another "look" and also some x-rays, so we are very anxious. He has a ct-scan scheduled for next week. My husband has just received his second Lupron injection and also takes 50mg Casodex daily. So far, no chemo, as his PSA went from 52 to 12 to 0.65. We plan to discuss again on the 12th of November as I feel we should be doing more. Like your husband, mine also seems more forgetful. The people here are such a source of information and inspiration and the Caregivers in particular inspire me every day. Like you, I find comfort here with others that know exactly what our guys are going through. Take care - Suzanne
Posted 10/30/2015 1:18 AM (GMT 0)
Hi newer members and old timers,
We're hoping to revive the Caregivers Corner thread for ease of keeping us together and continue what was started. Here it is:

Caregivers Corner, Treatments for Advanced Disease, Results, Side Effects, etc. (Part 5)
View Page : 1 2 3 4 5 6

If you don't mind copy and paste your post there so we all can "meet" you.
Hope to see you there.

Susan

2005 Husband dx 2005 at 63 yo Gleason 4+3
2006 LRP First post surgery PSA 11.8 Stage IV Start Lupron
2010-2014 Casodex, Provenge, Nilandron, Zytiga, Orchiectomy, Xtandi.
PSA cont rise. Spot on spine & enlarged lymph nodes.
2014 Xgeva & Taxotare
10/31/2014 Last Taxotare due to SE’s PSA was 14.82 now 1.3
2/27/15 PSA 10.48
3/20/15 PSA 13.68 Multiple lesions found in liver
3/27/15 Start Jevtana w prednisone Neulasta 24 hrs after chemo
6/19/15 Stop Jevtana PSA 63.40 CT shows left kidney hydrophenosis caused by tumor pressing on ureter and increased liver lesions
6/19/15 Start Taxotare and carboplatin
6/26/15 Nephrostomy
7/10/15 PSA drops to 9.63 after first cycle of Taxotare and carboplatin
7/31/15 PSA now 2.6 after 3rd cycle
8/21/15 4th cycle PSA 2.4 CT scan next. Great results – Kidney issues resolved, all lymph nodes reduced in size and liver lesions improved
9/11/15 5th cycle PSA 2.1 Nephrostomy removed
10/02/15 Chemo break due to neuropathy in feet to right below knees & up to
first joint in fingers
Posted 10/30/2015 3:05 AM (GMT 0)
Carol, (living with pca) thanks for posting, I was wondering about you and Sue.

Susan (myman) I concur with your post. I too invite all of you to the other Caregivers thread. Susan you are the greatest!
Posted 10/30/2015 4:34 AM (GMT 0)
Hello all. I started this thread in hopes of leading more caregivers to "the corner" Let's let this one go.. perhaps the mods will lock it for me. See you over there!
Beth
Posted 10/30/2015 1:34 PM (GMT 0)
I am still learning the ropes to this site. I tried to copy and paste my above post to where you requested and I don't think it worked. Not even sure I was at the right place? Can someone help me with this?
Posted 10/30/2015 4:23 PM (GMT 0)
Team Chris,
Don't worry about copy and paste. Just find the thread titled "caregivers corner" , cluck on it, and post a new reply. Sorry we caused confusion for you. You don't need that right now shakehead
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