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Posted 12/8/2015 1:21 AM (GMT 0)
Seems we missed adding this....so here it goes.
Looking to hear some good numbers, could use some good cheer from others right now!!!


My results, went today for Taxotere treatment 4 of 6 and blood results were:

The CBC and other blood tests were good. Alk Phosphate dropped from 480 to 370.
My White blood Cell count is staying good. Hemoblobin and Hematocrit rose and while still below normal, highest it been since started testing
Red blood cell count is in normal range for first time since i started this journey in May.
PSA, just got a call, it dropped, just not near as much as I wanted.
Went from 18 to 14. Its a drop, so I'll take it, just was wanting and expecting more.
but all went good, and overall good results.
Posted 12/8/2015 5:34 AM (GMT 0)
J,
That's really great news! Did you read Shaba Doug's thread about chemo? You may just get in the zeros too! After starting at 5620, wouldn't that be a kick!
Gary's didn't go the right direction. He's over a thousand now. So one more round of chemo Thurs and then back on xtandi today. Praying it works quickly and for a long time, as this is the last tx that is on the front burner.
Beth
Posted 12/8/2015 1:39 PM (GMT 0)
Jordan, That's good news; it's heading in the right direction! BTW, your blog is inspiring! Best wishes for a happy holiday season!
Posted 12/8/2015 2:59 PM (GMT 0)
Thanks so much for the encouragement... Beth I've been praying for Gary, I know the Xtandi will work for him. Just have him keep thinking about that Alaskan cruise! So much easier when you have goals. He's obviously a fighter!

Sue...thanks for the nice words about the blog. It really is a great release for me and a way to reach people in a positive way!
Posted 12/9/2015 9:54 PM (GMT 0)
Hello JPENN ~

Thankful, very THANKFUL, to hear the news of another lowered PSA score for you --- you are battling right through your series of treatments --- you've got the Taxotere doing its important work right now --- you are seeing the impact of the "early chemo plan" in action, first-hand ...

You've seen the PSA going down, down, down with each Taxotere treatment ... when I was at this stage in the same series of chemo treatments just a few months ago, my doctor reminded me to stay the course, and reminded me that the chemo had its hardest work yet to do ... with the last few treatments still left to go.

Getting to the halfway mark is always an important milestone for any of us that undergo a series of treatments ... you are now already past the halfway point ... the "fifty yard line" is already behind you, so to speak ... and that's where you NOW will begin to see the "field goal line" ... it's looming on the horizon for you ... it's really in sight, isn't it ?

It DOES take some courage and confidence to start a series of chemo treatments ... there are some worries and anxieties, getting started ... with your input, and with input from MANY others, it's been great to pull together our collective experiences on some recent threads about chemotherapy treatments ... in the interest of helping our "other brothers", present and future ...

Meanwhile --- you have my unwavering support and daily prayers, as your treatments continue.

Your fellow "chemo comrade" ---
Iowa State "Cyclone"
Posted 12/10/2015 7:11 PM (GMT 0)
Folks - my PSA went from 3.35 in Oct to 3.51 in Nov to 3.78 this week. Does this mean the Zytiga is about to stop working for me? I go next week to see the onco.

I want to ask opinions here about Provenge. The PA at my urologist yesterday seemed to think I might want to think about Provenge now rather than later. I think my onco is going to say chemo is my next stop ( he said that before). Anyway, the PSA is starting to trend upward and I need to make a plan. Do you think Dr Snuffy Myers would see me and have some thoughts on what to do?
Posted 12/11/2015 1:16 PM (GMT 0)
JPenn, Congrats on the good results. You are in my prayers.
Kirk
Posted 12/11/2015 2:17 PM (GMT 0)
Thanks Kirk....

Faustman - I'm not at your point yet, but will get there i'm sure.

Provenge is a great option for many, and many on the board have had some success. Do a search on it to get some ideas.

What I have seen is though it is more effective PRE chemo....so if you are going the Provenge route, do so before doing any chemo. They say you can do it after chemo, just not as effective.
Posted 12/11/2015 11:29 PM (GMT 0)
Just met with my MO and the results are good. PSA <.01, T-393. Annual Bone and CT scans clear! He said "cancer free". Not too bad for a T3B, GL9 with all the positive margins etc. Gives me a lot of hope and makes me feel VERY THANKFUL!!!
Posted 12/12/2015 7:45 AM (GMT 0)
Don,
That is just great! I hope you are "cancer free" for a very, very long time!
Beth
Posted 12/12/2015 9:49 PM (GMT 0)
I'm still getting used to life with Testosterone again ...

My PSA is rising (since I still have a prostate and no longer have Lupron), but not too fast yet and I hope it stabilizes soon. I talk with the Dr in Marina Del Rey next week ... will know more then.

Nov PSA = 0.25 & T = 135 (3 months after coming off of Lupron)
Dec PSA = 0.40 ...

Gives me a pause, but I have a plan to get scanned with either C11 or 68Ga-PSMA (which Tall Allen has mentioned) once I get to 1.5-2.0 PSA; then come up with a plan from there ....

Enjoy the holidays!

Ray
Posted 12/12/2015 11:52 PM (GMT 0)
I wish to report results of my tests....but that won't be for 5 weeks!!!

So, I'll wait until January test results!

I started my HT vacation on 12/1, so hoping this first round of tests will be fine.

Mel
Posted 12/17/2015 4:55 PM (GMT 0)
Good news here!

Had surgery on 9/1 and have been progressing since with all the expected stages. This forum has helped so much! Anyway, my visit yesterday with my surgeon was as good as it gets. PSA of <.02 and dry as a bone. I was a 3+4 going in and upgraded to an 8 after. But, the margins were negative, so I've had fingers crossed and obsessed about the 8 since I first was told. The biopsy showed EPE and b/c of that I joined the PT3 club as the EPE was an automatic PT3 even though the margins were clean. Yeah!

Paul from Florida
Posted 12/17/2015 5:29 PM (GMT 0)
Great news Paul!!!

Now, sit back and enjoy the Christmas season!!!
Posted 12/17/2015 7:35 PM (GMT 0)
More good numbers here. 7 years post SRT still <.04.
Happy holidays to me and hopefully, to all.
Mag
Posted 12/28/2015 10:15 PM (GMT 0)
Went in for my 5 taxotere treatment....so 4 treatments complete...PSA is down to 10....

Should finally reach single digits at next test in three weeks. 😀
Posted 12/28/2015 11:17 PM (GMT 0)
Jordan,
That is really wonderful news. I have big grin at reading this! HAppy happy 2016 smilewinkgrin
Posted 12/29/2015 2:21 AM (GMT 0)
Thanks Beth!, I was thrilled to get that drop again.

Happy New Year to you and Gary!!! May it be filled with joy and medical advances. 😀
Posted 12/29/2015 4:31 AM (GMT 0)
Another undetectable for me on Zytiga for past 13 months. All other blood indicators are good.
Dan in So Cal, treatment at CTCA Goodyear
Posted 12/29/2015 6:14 AM (GMT 0)
Wow, Dan, you are getting great results from zytiga. Congrats! Please consider adding chemo if you see a rise ( and I hope you don't) prior to xtandi. It does appear to be what worked for Gary this go round. Best wishes for an undetectable 2016!
Posted 12/29/2015 9:57 AM (GMT 0)
Great news, Jordan! Looks like everything is headed in the right direction!
Posted 12/29/2015 1:43 PM (GMT 0)
Looks like some great results.love to read this.
Posted 12/29/2015 10:47 PM (GMT 0)
An undetectable PSA for December, the best Christmas gift we could have hoped for. Best wishes to all for a happy, healthy and undetectable 2016. Love this forum!
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