Posted 2/4/2016 12:28 PM (GMT 0)
To my new friends! I had cancer prostate surgery on June 1, 2015, removed prostate and my lymph-nods. For the next unlucky male, I happened to document each day so I could help the next guy. On June 28th, I noticed same pelvic pain. Its "HORRIBLE". have been to a number of dr's. (2-Urologist, Neurosurgeon, Radiologist, PCP, Physical Therapist, Chiropractor). On Oct 28 I had my first nerve block(Mpls), was a bust, didnt do anything, Dec 8th had second block did absolutely nothing, didn't notice any difference, on Dec 29 had a Ganglion Impar Block, total bust/waste, not "any difference"...none! On January 14th, had a Superior Hypogastric Plexus Block, once again, zero difference. That's 4 blocks, none helped. I've applied to get into Mayo Clinic, it will be 2 weeks today, Thursday Feb 4th and still havent heard back from Mayo. (Also have had colonoscopy, PET, Pelvic,brain scans, Cystoscopy (that was fun!!!!!)
Just so you know, (don't want to gross anyone out but here goes)pain is between my anus and scrotum, it feels like some has taken a red hot branding iron to my bottom and or a grinding wheel and grind it until raw. Nothing is visible, all internal. I'm totally ok when I lay down in a bed. I can lay in a reclining chair, must be all the way back though. When I sit at my desk at work, I've taken a camo foam hunting pad, and cut a U about 4" in the center that I sit on. When I drive I "MUST" sit on a donut. I only wear sweat pants. There is no "quality of life", and no one seems to know anything. So with that being said, I'm searching for some answers/help. I've yet to find another male, with these issue so I guess "I really am unique"! Taken Duloxetine, Gabapentin, and now on Lyrica. Humility was lost months ago! When discussing with 2 urologist, one with 1000+ surgeries under his belt and the other, over 700...neither have ever seen anything like this? Wishing all a speedy recovery!