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Posted 8/29/2017 4:02 AM (GMT 0)
Just discovered today that Dr. Myers, Dr. Epstein and other prominent specialists will be presenting at this conference:

http://pcri.org/2017-conference/#invitation

Has anyone attended this conference in the past? Anyone planning to attend this year? I guess any little bit of new information would be worth it, so I'm curious about the experience of others.
Posted 8/29/2017 4:11 AM (GMT 0)
My husband and I attended two years ago. A wealth of knowledge is there for the picking. I would definitely recommend you attend if it is within your means.
Posted 8/29/2017 4:18 AM (GMT 0)
Thanks so much for replying, Teacher Lady! After seeing the presenters and the session topics, it sure seems worthwhile. My husband can't attend, but has asked me to go if I get some positive feedback from this forum. Guess I'll start looking at flights. 😊
Posted 8/29/2017 4:50 AM (GMT 0)
I've attended a couple of times. I think the most useful part is the community with fellow patients. Scholz often invites the same speakers, and they tailor their presentations to a lay audience (often expressing opinions rather than clinical findings they would show to a professional audience), so I don't find it useful anymore personally. More gee whiz than sober. If I didn't live in LA, I doubt I would have attended.
Posted 8/29/2017 2:08 PM (GMT 0)
Thanks for the input, Allen. We too are more interested in something between what might be tailored for lay people and what is appropriate for the presenters' peers. I'm particularly interested in the nutrition portion, as that is the part that might be most useful to us at this point.
Posted 8/29/2017 2:16 PM (GMT 0)
Thanks, 57P, I just signed up and bought my ticket! I am at the beginning of the journey and the topics/speakers are just what I need! Denis
Posted 8/29/2017 2:23 PM (GMT 0)
So glad I posted so you would be aware of it, Sub!
Posted 8/29/2017 2:25 PM (GMT 0)

Teacher lady said...
My husband and I attended two years ago. A wealth of knowledge is there for the picking. I would definitely recommend you attend if it is within your means.

What part of the conference did you find most informative and meaningful? Treatment options, emotional support, sexual, nutrition? I'm curious, because I'm most interested in nutritional and support sessions. Thanks again!
Posted 9/7/2017 12:46 AM (GMT 0)
57
I attended last year for just one day, heard Dr Myers and Dr, Kwon, part of Dr Kwons talk was very emotional and genuine when he talked about how patients affect him personally, and really wanting to help us patients. All very informative , and educational, motivational and I do believe there was some studies mentioned. But by far and away the best part was meeting Todd Seals, (Todd1963)Tony Crispino, and Joel Nowak. That made my day! Wish I could go this time, but dont think I can afford it!
Wings
Posted 9/7/2017 3:39 AM (GMT 0)
If I attended this year it would be my 8th conference. I partially agree with Allen but not entirely but that may be my own personal biases. I am skipping this year for family reasons. My son turns 31 today and we are having a fun weekend together.

Having attended many of these since 2007 I can tell you that the presentations today do not reflect the same information from 2007. Progress is good and so is an improvement in common sense. Most of the advanced PCa presentations I see are from Drs. I tend to know well. And they are not attracted to the biases of PCRI. Still I think the conference is an excellent one for any patient.

Like I mentioned, I don't live in the LA area anymore these days, but I have been to 7 of the last 10.
Posted 9/12/2017 4:09 AM (GMT 0)
My husband was about 4 months post prostectomy when we attended the conference. He is a Gleason 4+3, clean margins but with a bit of extension to the seminal vesicles. At that time our heads were reeling. Had we done the right thing by choosing surgery? Just what did it mean to be "intermediate risk'? What would we do if his PSA tests were no longer undetectable? Going to the conference gave us some much needed education and at least a starting point if the monster returns. We attended sessions to learn about sexual recovery and the best practices (no pun intended) to get things going again. We live in an area that does not have a large teaching school nor a lot of choices in urologists, so the conference filled an educational void. It really let us take a peek at whats out there. I can see where one could find the conference redundant but for us it was more eye opening than not. Do I believe everything I heard? No, but a it sure helped answer our questions of "what next?"
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