5 wks Post OP

Your husband should be hopeful. You didn't disclose his pathology, but currently there are various treatment options if recurrence occurs.

As for incontinence, it may be too early to expect a dramatic improvement. It can happen gradually, or in some cases, things change for the better all of a sudden.

Get educated, and share on the forum. There are many helpful folks here who have been down the same road as your husband.

I m so happy to hear a good word about Roswell that is encouraging! the Pathology report said bladder neck Pos, along with SV, nodes perineural invasion.

This is the kind of info I am looking for They are stating at Roswell that nothing can be done until the PSA on Oct 13th 8 wks post OP and I am desperate to get Treatment started. Thanks

Thanks PeterdisAbelard maybe the scotch will get him onboard he needs to talk to people and leave the comforts of home

JK,

I am the scotch guy at GFMPH, Come on out.

Back to one of your comments that you wanted to get further treatment stated immediately. For some factors, you can. But also understand that it takes time to recover from surgery, and to see the results. That is key to planning the next steps. My uro/surgeon has a schedule, and I suspect yours does as well. They know that internal healing can take months, and that progress may be very slow. But progress is good, so we take it as it comes.

JK,

How old is your husband? Mine has similar numbers as yours. Randy's PSA was persistent after surgery, so he was started on ADT to stop any progression until he could begin SRT. He waited until he was fully continent before he began SRT. Your husband's body will need time to heal, and ADT buys him that time.

We're 3 years out from surgery-a year and a half from SRT. Randy works everyday, plays with the grandkids, tinkers with his boats and cars, and does (almost) anything he wants. While, at this point, we know Randy's disease is systemic, there have been no detectable mets to bones or other organs. If you met him, you would have no idea there was anything wrong at all.

I know how very scary that pathology report looks. You expect to walk away from surgery and be able to put the whole thing behind you and that kind of pathology knocks the feet right out from under you. There's lots of good information and support here. All is NOT lost. Stay away from nomograms. They're just plain scary and useless. If you can get him to meet at GFMPH, I'm sure that would be helpful. We've never been able to attend one, but I hear they're great. There are some really smart guys in this group. My email is available if you need to talk.

Donna.

Thanks for the support . It is so helpful from those that have been here. He is just 58 yo Dx in June. I encouraged him to attend the wkd in Rochester. Maybe we can make it next yr. He s not comfortable with the leakage. That is the least of my worries! It's very encouraging reading the threads with all the POS results etc thankyou . Stay strong mind body spirit

The incontinence is bad. But in most cases it will get better. For me, I leaked very badly for about ten weeks after surgery, and then experienced a rapid improvement. Improvement is not necessarily gradual or continual. After nine months I was completely dry.

Thanks nyc lawyer yes I agree the recovery is the most important thing his surgery was 3 mo behind yours good to see your margins, bone scan SV and LN clear !