I have made it almost 5 Years with Gleason 9, I hope you do to.

Congrats on the milestone!

Even though my husband was diagnosed as a G7, I remember watching your updates. I also appreciate your replies when I had questions.

August 4th was our 3 year marker of when Mr. WW and I first met with the oncologist at MD Anderson. Those were some very dark days.

Now, we live life out loud and above cancer. We try to live it to the fullest with lots of days filled with laughter. I hope you are doing the same. :)

Naples said...
G9 Club
As I am new to the club, I'm encouraged with the number of 5 year plus posts. I start radiation after Christmas. I'm 61 and not really ready to fully retire... but if it's a tough road ahead, I will. Anybody still working with this stage of the disease?

Thanks

Code name: Naples

Not sure I will ever stop working. I chose radiation since I'm self employed and don't get sick days. I think staying busy is important especially with PC. Hang in there.

I'm also self employed. Was thinking about the bucket list. It's still early for me as I was diagnosed July of this year and told in September that I had advanced disease. My urologist tells me I have a rare case and is not optimistic for me. My oncologist is much more optimistic. I have taken the urologist off my short list. This diagnosis debate can really mess with your mind. I'll soldier on and see where it goes.

Merry Christmas and Happy New Year to all.

Thanks guys. You inspire me. PSA jumped 4.9 to 9.0 in 3 months
Biopsy 6 of 12 cores positive mostly 4+5. Not what I wanted to hear. I got the aggressive stealth variety and have no symptoms what so ever.
Just had the Pelvic CT and bone scan. Get my results in a week. I will not play poker with the nuclear technician. He wouldn't give me a wink as to good or bad.
I'm willing to fight this whenever and however it makes sense. But nothing inspires like success stories. So thank you for the posts.

Hey Aint,
First off, welcome. Sorry you're here, but this is a good forum to be in. I see you tagged onto a post thats almost 10 months old. There's a thread on the forum for us GS9 and + guys. Redwing57 is the man in charge of the roster. Introduce yourself in there and he'll be along to add you to the crew.
Best of luck.
www.healingwell.com/community/default.aspx?f=35&m=3897208

My husband is also G9, just blew past the 3 year mark and still going strong. He still works, and enjoys his life. We're looking forward to many, many more years. The goal at this point is to dance at our granddaughter's wedding. (She's 8).

Congratulations, Devastated.

Hi there. Aintgottimeforthis. Don't none of us got time for this!

Sorry to hear of your situation, and by now you've surely done enough googling to know the G9 means you'll be doing something about it. Don't fret too much over what you find in such searches. A lot of the information is old, and the survival is generally quite good. There are quite a few of us here, and most doing very well.

Here's a link to the G9 Crew thread. Welcome to the least favorite chapter of the club no one wants to join! That's intended as a gathering place for those of us facing that diagnosis. Our concerns tend to be focused on aggressive and multiple treatment options, and typically less on the side effects. This warrants throwing everything at it.

Do stay with us. There are many here with a lot of experience, and a few with a lot of knowledge. Feel free to ask, vent, rejoice, whine, ask some more. We're here for you! It's the worst at the beginning, as you try to decide what to do. At least with a G9 you don't have to dither a lot about whether or not to do something. It's only a question of what you want to do, what's most appropriate, what spectrum of side effects you think you can best tolerate.

The Gleason 9 (and 10) Crew - Welcome and how ya doin'? (Part 3, continued thread)

For better support, I'd suggest either posting on the G9 crew thread, or start your own thread. Also, put your specifics into a signature so people can give you better responses.

Congratulations, Devasted1. Thank you so much for the post. It's the kind of message that new G8's like me need to hear.

Good on ya!
I’m 4.25 years out from dx as Gleason 9. Last Psa was .16 , not undetectable but not bad. Handling ADT3 well and nothing is stopping me from doing what I want. I’m hoping for at least another 4.25 years!
Bob

Thanks for the hope inspiring report, Devastated!

My father was diagnosed in 2009, gleason 9 & 10, large tumor, seminal vesicle involvement.
He underwent ADT and IMRT, and low dose taxotere (as part of a study). It was a very rough year of treatment and recovery, but knock on wood, he has been doing great. 8 years now, still psa 0.

Naples - your latest PSA reading is very encouraging!
There are lots of folks beating / living with a past of g9, don't pay attention to the 5 year thing and move on with life.