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Incontinence getting worse

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Posted 6/2/2018 3:12 AM (GMT 0)
6 weeks post LRP and incontinence is getting worse rather ymthan better. Very depressing. I know it takes a while and I got some good encouragement on here but wonder if anybody else has experienced this?
Posted 6/2/2018 4:15 AM (GMT 0)
6 weeks is not that long...there are ups and downs in the recovery process...reread the posts from the beginning...stop pushing the river... that would be my advice....it is not a perfect existence...stop obsessing...it will hurt your recovery...not help it..." the good...the bad...the ugly "..what is your age btw if you can share...
Posted 6/2/2018 5:37 AM (GMT 0)
You've got a lot of healing left to do. Patience.

It's bound to be a bit up and down at this stage.
Posted 6/2/2018 11:24 AM (GMT 0)
I agree -- you need to be patient. Recovering full continence can take months and the journey has ups and downs. Keep up the kegels.
Posted 6/2/2018 12:25 PM (GMT 0)
I know that has to be discouraging, but as the others have already said, regaining continence sometimes happens quickly, but sometimes it takes longer. Try to keep a positive attitude and work on strengthening that sphincter by doing kegels. Make sure you do them correctly, and don't overdo it. Too many kegels can be as bad as none at all. A moderate walking program also can be helpful.

How bad is the problem? Do you have some control? Does the problem occur only when you sneeze or when you change from sitting to standing? Can you make it through the night? Is it a matter or urinary urgency, or does it just happen without any control at all?

Your pathology report is very encouraging, so don't let this temporary setback get you down.
Posted 6/3/2018 3:05 AM (GMT 0)
Thanks all. I am 64 and had been pretty good going through 4-5 pads a day. Now that I am back to work (a desk job) and more active it is more like 6-8. I get through the night fine but mid day when I am most active it gets rough. It is not total lack of control but the depressing part is going backwards. I get the message here that I just need to have more patience. I can do that. I am doing levels and walking a lot. I don’t mean to sounds whiny. I know I got lucky and got it early and it al looks clear so far.
Posted 6/3/2018 5:46 AM (GMT 0)
I agree that in all likelihood patience is the best medicine, BUT I’d certainly bring the lack of progress to your surgeon’s attention and see what he has to say.
Posted 6/3/2018 2:43 PM (GMT 0)
You are not being whiny...just going thru what most of us have...the key word is patience...like not worrying...easier said than done...we get it
Posted 6/3/2018 3:06 PM (GMT 0)
Too soon to be so worried! Give it some time & keep doing kegels!

You'll be fine---

Bobby Mac
Posted 6/4/2018 1:59 PM (GMT 0)
Takes time...
The fact you can go all night and remain dry is a very positive sign. Watch your caffeine intake, make sure you are doing the Kegel's correctly. In my recovery process I found that the way I sat/stood up would sometimes cause leakage. Takes a bit of time to figure it all out while things are healing.
Hang in there!
Posted 6/4/2018 2:22 PM (GMT 0)
I am two years out from ART and still have some small dribbles under stress. On the plus side, the pad gives me a nice bulge in my pants.
Posted 6/4/2018 10:24 PM (GMT 0)
I would give it at least another 6-8 weeks and if no improvement get referred to a physical therapist that can offer incontinence training. Didn't work for me but I can see how it could help if it can be helped. In addition to showing the correct way to do the kegels they will do other exercises for abdominal muscles. Mean time keep doing the kegels.
Good luck
Posted 6/4/2018 10:29 PM (GMT 0)
Boston, what kind of work do you do? If it’s physical work then that could be the reason you are using more pads during the day, physical stress will cause you to leak, we all get that.
Even if that’s not the case though, as others have said, it’s way too early in the game to be real concerned.progress for most of us in this department is not linear, setbacks are normal at your stage.
Posted 6/5/2018 2:09 AM (GMT 0)
It really really is too early...why complicate this....good golly miss molly
Posted 6/5/2018 2:54 AM (GMT 0)
Hi Boston,

I agree with theses other guys, do your kegels. Giver yourself a year if you
have too, it takes time. Myself I had AuS surgery, never gain continece. However
take your time and see how you do.

echotango

guys I will post my AUS later
Posted 6/5/2018 3:20 PM (GMT 0)
It took me 18 months to get back to 99%.
Posted 6/6/2018 12:32 PM (GMT 0)
Process of regaining continence is not linear like many pointed out. It is slow process that for most guys takes 3-6 months. I am not of the opinion that we will ever get back to 100% at 100% of times.
My recovery was very slow for first 10 weeks averaging 400+ ml for this first 10 weeks. Yes, I weigh my pads at that time. Most of my progress happened in weeks 11 - 13 where I recovered about 70% and was @ 98% by the end of 3 months. I reached my max at about 9 months to 99%. I still have stress incontinece when running, lifting, blowing the nose, sneezing, farting or do any strenuous activity.
So, when running or going to the gym, I still have small pad in my compression shorts.
I can live with it.
MK
Posted 6/15/2018 2:35 AM (GMT 0)
I felt the same at 6 weeks. Very depressing, sick of it. At 12 weeks it was like a switch was flipped, and things got much better. At 24 weeks it got even better. Hang in there, it will happen on its own time.

Mike
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