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Update . Side Effects Urinary Incontinence / ED

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Posted 8/25/2018 1:38 PM (GMT 0)
Hello Everyone

I am in my 9th day of recovery from RLRP Surgery with Dr Eastham at MSK I had my surgery at the Josie Robertson MSK Cancer Center . I removed the Catheter myself yesterday and feel very good HOWEVER . complete urinary incontinence ever since !! I am running through a box of Depends very quickly !! Very Hard Adjustment because I am so active 2 mile Walk in Morning and 3 mile walk in late afternoon . I need these walks just to help me cope with these side effects Anyone have any helpful ideas ?? I DO KEGEL EXERCISES but no help so far


I am taking a low dose of Viagra to stimulate blood flow to the nerves responsible for erections Right now I take 20 mg a day and will continue for 1 week after catheter is out and do a "challenge" load of 100 mg once a week :Looking for feedback and comments if interested .

Thank You all for your support and help . Keith
Posted 8/25/2018 2:22 PM (GMT 0)
Sounds like you're doing well.

Sorry, but 9 days is nothing in terms of healing - the incontinence will get better over the next few weeks.

Walk, Kegels, plenty of water and time.

Rest and heal - before you know it this will all just be a bad memory.
Andrew
Posted 8/25/2018 6:43 PM (GMT 0)
Agree, 9 days early. If you said 9 weeks I'd be concerned. Good luck in healing.
Posted 8/26/2018 4:30 PM (GMT 0)
sharpcut, I am 5 months post RALP and am about 50% continent. When laying down or sitting, I don't leak much and can now get up from those positions and make it to the bathroom with much leakage. However, I a very after and have little control while walking, running, etc. I've been working on my 1965 Triumph TR4 and and the crawling under, getting up for the wrench I don't have, squatting to pick something up, well, dryness is about as much a possibility as keeping a British car from leaking oil.
Posted 8/27/2018 2:04 PM (GMT 0)
Hi!
Incontinence gradually improves, but has not totally stopped.
I am (too) new here. Not great with computer. Current age 69 yrs old. Diagnosed CA of prostate by biopsy on 9-30-2015 (2 of 12 cores, positive CA.) Gleason 6, highest PSA was 1.29 . Decided to have Clev. Clinic-Robotic Lapro surgery on 3-24-2017. Negative margins, etc. Since surgery, PSA <0.03 which I think they consider as "undetectable". Almost total ED, have prescription Viag., not tried. Have problems with anxiety/depression since diagnosed. No longer wearing Depends. Incontinence is quite aggravating. Has improved, not normal. Urge, caffeine coffee, and sometimes lifting causes leakage. I love coffee in the AM, which means restroom must be near-- hate decaf. Also, need to work on more consistant Kegals. Like to travel, which means I have to pretty much have to dehydrate myself, especially no coffee/cola when driving. Also, have to use Men's room stall if I wear a Depends-pad. Can be quite humiliating, embarrassing. Quality of life not what I expected, but I am alive to enjoy my family.
Posted 8/27/2018 3:57 PM (GMT 0)
Keith,

Just to give you some kind of timescale for your expectations, here are some rules of thumb for incontinence after RP.

Very few men are dry when the catheter comes out. Most leak like a hole in a bucket. A majority of men (something like two out of three) will be dry at three months. Those who aren't should ask about some sort of physical therapy or biofeedback training. These can help... somewhat. Of the men who still leak at three months a majority (again about two out of three) will be dry at one year. Those few who are not should talk to their surgeon about a sling or an artificial sphincter.

As for ED what you are doing now is sensible ... for now. If you aren't making progress in another month come back and we'll outline some next steps you could talk to your doctor about.
Posted 8/28/2018 2:44 AM (GMT 0)
I am rather surprised that I have heard of a few men that have removed their catheter by themselves. My urologist did a voiding trial where saline is back filled into the bladder before the catheter is removed to check ability to hold urine and the ability to empty the bladder completely also.
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