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Gleason 9 - 5 years Out

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Prostate Cancer
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Posted 9/13/2018 4:09 PM (GMT 0)
We have had an incredible 5 years with PSA of <0.06 and even a <0.01 in December, 2017. The last result in June, 2018 was a .02. I've learned enough from this forum that you don't want to lose the < sign. Doc says we will watch with the next PSA next month. Of course, trying not to freak out. Any words of wisdom? I am a wife by the way, hubby would just as soon not think about this.
Posted 9/13/2018 4:32 PM (GMT 0)
You are in great shape...try not to be anxious(you are good)...doctors pick up on it on it and protect them self and will do whatever they can to reduce that anxiety...on e of the ways( no skin off their tail} and will overtreat...relax get regular psa tests and enjoy life...psa tests routinely fluctuate just as weight...you may have anxiety about that also..,or not...most folks do...there ain't a pca patient around who wouldn't love...to have .02...I will not get into the that schtick...too much confusion and misinformation on this site about that already...logo...and yes I probably add to same...hey its the nature of life...but can be navigated
Posted 9/13/2018 4:40 PM (GMT 0)
waiting is the most difficult part of this whole PC thing. If the PSA is rising you have treatment options left.

but don't get too far ahead of yourself. Confirm the rise. Until you see two or three rises above about .03 there isn't much to do.

If it does rise, it's back to the doctor for more treatments.

Andrew
Posted 9/14/2018 7:28 AM (GMT 0)
one more rise and i'd start SRT, and i'd be preparing for that contingency now. you've had excellent results so far!
Posted 9/14/2018 3:29 PM (GMT 0)
bump
Posted 9/14/2018 3:33 PM (GMT 0)
Can he has SRT (I think this means salvage radiation) if he has already had radiation treatments as part of his initial treatment? If it come to this of course.......
Posted 9/14/2018 3:40 PM (GMT 0)
Generally you can only radiate a body part once. If he's had RT to the prostate bed, then you can't do that again post RALP.

What kind of RT did he have?
Posted 9/14/2018 3:42 PM (GMT 0)
I believe he can but the term is not considered SRT...not sure what it is called...I know patients here get zapped in a targeted way for various reasons...if no help concerning that is forthcoming...do not be afraid to ask your medical team...or google
Posted 9/14/2018 4:47 PM (GMT 0)
my mistake. I did not see that he had radiation initially.
Posted 9/14/2018 9:33 PM (GMT 0)

Grillmaster said...
We have had an incredible 5 years with PSA of <0.06 and even a <0.01 in December, 2017. The last result in June, 2018 was a .02. I've learned enough from this forum that you don't want to lose the < sign. Doc says we will watch with the next PSA next month. Of course, trying not to freak out. Any words of wisdom? I am a wife by the way, hubby would just as soon not think about this.

I can relate to your situation! You are still below what some think is the important .03 level! Important in that unless you get above that, the vast majority are not going to advance to BCR. Then again, even if you actually graduate to BCR, that is still along ways from mets and beyond. So right now you are good! BTW, I JUMPED suddenly from .02 to .06 in 3 months(following a machine recalibration), but not only did I not progress from that over the next 6 months, but actually went back down to < based on my docs new higher standard of < .05. So who knows what I am doing, I don't. But point being: it can jump around for no apparent reason, as can the accuracy of what their machines are telling you.
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