There is hope for restored penis size after surgery - two articles

Not sure why the gaps in responses to this thread. I guess it all depends on how desperate someone gets and then looks around on the Internet. I am not recommending one treatment or another for prostate cancer, but anyone thinking about having surgery needs to know what can happen. Most doctors don't talk about this or minimize the risk. I went in to this knowing I would lose probably 1/4" and maybe 1/2". I used to work with someone else who had the old style surgery. His cancer returned and he then had radiation. He told me that the radiation messed him up more than the old style surgery. He did not experience this problem with that surgery. My urologist claims there is no difference in what I am experiencing between the 2 surgeries. The numbers I am finding online does not support that. I am canvasing the Internet trying to get answers and not finding any. The normal answer is to be glad you don't have cancer anymore. I just know that what I am experiencing now is not acceptable either. I had neck surgery in 2000 with other surgeries previous to that. Nothing has compared to this. I have not had one day of peace since the surgery. It is embarrassing to talk about, but after awhile it gets hard to hold it in.

Oldbeek, I have tried to accept and play the hand I have been dealt. I would give several thousand dollars to be even 3.5" erect, much less 5.5 flaccid, but that is not the issue. I have a great wife and can live with no sex. Try living with pain every time you sit down from your body trying to pull it in to the point of looking female. I retired early because I had to sit a lot at my job. There is a point where quality of life kicks in! I have looked at all the possibilities I can think of to fix this even to the point of becoming transgender and getting it removed. I think my urethra is about the right length for female anatomy. I have had similar answers on other websites. I think that is why some of the others like me don't post. I am just hoping someone has an idea I haven't thought of. My urologist doesn't!

Thanks for the suggestion, Oldbeek. I have considered talking to my urologist about the implants, but wonder if they might be dangerous because of the tug-of-war going on when I sit. I have looked at what they implant and don't think it will work. If you go back to my first post I discussed it there. I am looking for suggestions and yours is a valid one. I have had some comments on other forums that were uncalled for and I may be too quick to respond as I did to yours. I know I have tried to be very respectful at all times to my urologist until my last visit. I didn't allow him much air time. It is starting to wear on me. I have not talked to my family doctor at all about this, but plan to at my next visit to see if he has any suggestions. His appointment is about 3 weeks before I see the urologist again. I do not plan to stay this way much longer even if I have to sell the house to get some kind of surgery to fix it. I just don't know what can be done.

Well, at least the results seem consistent. And not at all in agreement with the first study which showed only minute and insignificant losses, as did the 2nd study to a lessor degree. Another confirmation for me that studies must be taken with a grain of salt.

EDIT: drawn in on another Zombie thread. Oh well, the info is still valid and current and this is a thread every one considering surgery should read.

Thanks, Oldbeek. I am going to wait until my 2 upcoming doctor visits to see what they say and then I may look up one of the people you suggest. Up to my last visit I was only keeping my urologist informed of what I was experiencing, and not really complaining, hoping that I would experience the improvement many say they get after about a year. I hammered the urologist hard on my last visit. He told me he had never had anybody as animated as I was and said he was going to confer with some other doctors. I will see what he comes up with and what my general practitioner has to say. Along with researching cancer sites I have dug into experiences of land mine survivors and even FTM transgender surgeries to figure out what they do. I learned a lot, but not much of it good. Doesn't seem to be any way to put Humpty Dumpty back together again. Successful surgeries for urethra lengthening are very few. The urologist told me he took about 3 inches of mine, which pretty much corresponds to my problem. I just don't understand the urethra tugging going on when sitting down vs standing.

DJBearGuy said...
Hi JPT et al,

I lost about 1.5 inches myself. And erections were very painful for years. Never had the nerve to try a vacuum pump as I thought it would be painful. But, I'm now at the point where I might try one.

For this and other reasons, if I were diagnosed today, I might go to radiation rather than surgery.

...............................................................................................
I hear 'Ya, Bro!

Just Passing Thru said...
Thanks, Oldbeek. I am going to wait until my 2 upcoming doctor visits to see what they say and then I may look up one of the people you suggest. Up to my last visit I was only keeping my urologist informed of what I was experiencing, and not really complaining, hoping that I would experience the improvement many say they get after about a year. I hammered the urologist hard on my last visit. He told me he had never had anybody as animated as I was and said he was going to confer with some other doctors. I will see what he comes up with and what my general practitioner has to say. Along with researching cancer sites I have dug into experiences of land mine survivors and even FTM transgender surgeries to figure out what they do. I learned a lot, but not much of it good. Doesn't seem to be any way to put Humpty Dumpty back together again. Successful surgeries for urethra lengthening are very few. The urologist told me he took about 3 inches of mine, which pretty much corresponds to my problem. I just don't understand the urethra tugging going on when sitting down vs standing.

You need talk to a surgeon that does reconstruction after traumatic injuries. These are the guys that specialize in getting you back to normal. These are the same guys that perform implants. They fix things after you get all f_____ up by someone else. Go to the top repair guys and get it fixed. You wouldn't go to a GP to treat prostate cancer, so why are you asking a URO that specializes in RARP ( and removing 3 1/2 inches of urethra sounds like he may have not been the greatest at RP guy around ), about a specialty restoration job.

Just Passing Thru said...
Hi Oldbeek, I agree that the 3" taken out was too much. My prostate was very large according to my doctors and it somewhat affects how much gets removed. I think I commented in another post, but I have researched urethral lengthening attempted for land mine injuries and FTM transgenders. I thought the transgender surgeons would have an answer, but found that what they do is not what I thought. I have looked at a lot of online urologists and surgeons and asked questions and apparently there have been very few successful urethra lengthening surgeries. There is one surgery that can cut some of the supporting structure to lower the penis and make it maybe 1/2 inch longer. I am in an area where I would have to travel quite a long distance to get to any of the surgeons you listed, but I will be contacting and travelling to see someone different in the near future. This is unacceptable. If more of these doctors had to live with the results, I think we might have better answers.

Both Kramer and Eid have facilities for lodging in nearby hotel/motels for patients from out of town. They both have concier services available to assist patients doing it without assistance. I was considering flying to Dr Eid in NY, from Los Angeles when I found my surgeon that has just retired after 30 years.

oldbeek said...
I did some checking on another site that deals with implants. FrankTalk.org. We were discussing it. Your urethra stretches to great lengths. Their are showers (large when soft) and growers (small when soft). Both grow to the average size when aroused. The growers urethra stretches maybe 4 inch between soft and hard. I was very short after RP, but adding the implant which is always somewhat ridged, the urethra is always stretched out. After rp, I hardly had anything to hold. Now after implant I am 5.5 inches all the time when soft with no pain from it at any time.

Kramer vs Eid. Other than locale, I wonder how one would choose?

oldbeek said...
Kramer seems to care more for his patients. There is a subject right now titled Eid vs Kramer at franktalk.org where they are discussing their pros and cons.

Thanks! I'll have a look!

Hi Oldbeek. I just took a look at Frank Talk and realized you started a discussion about me. I have done a lot of searching for information from a lot of sites, but never came across Frank Talk. I want to say THANK YOU for trying to help me! I will have to see what I can learn from the new website. I noticed MK added a comment to your post. I have seen some of his comments before and even replied to him. I think he and I had similar outcomes post surgery. I think genetics and size of the prostate play a part in this as well as the skill of the surgeon. If you start with 10" a 2+" loss might not be a problem. That said I might just have an implant in my future. My worry is possible erosion of the "internal skin" from the changing length and tugging I have already mentioned. Hopefully the right doctor can assess that issue and make sure it doesn't happen. I have read different opinions on several different sites about whether the urethra is stretchable or not. Thanks again!

Post Edited (Just Passing Thru) : 5/9/2019 11:16:04 AM (GMT-6)