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Prostate Cancer
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Posted 2/1/2022 10:35 AM (GMT 0)
One year ago today I had my RALP. I had my blood drawn yesterday for my upcoming visit and I'm still undetectable. The lymphedema in both legs that presented itself a month after the RALP seems to be under control. I wear compression socks almost every day and I try to elevate my legs as often as possible. I'm continent for the most part except for stress incontinence and incontinence due to urgency. The ED has started to go away but I am still taking 50 mg of Sildenafil daily. I do have a penis that points left (not curving left) and it's not as long or thick as it once was. Overall the blood draws are not as stressful as they were for the first few times and my URO has even turned me over to his nurse practitioner. I'm told that is a sign that he is confident that he was able to remove the cancer and isn't worried about recurrence.
Posted 2/1/2022 12:42 PM (GMT 0)
Cool beans!
Posted 2/1/2022 2:27 PM (GMT 0)
Hi GH, I'm glad your PSA is still undetectable! All of us post-treatment men have to monitor our PSA for a good number of years. I suggest you condense your diagnostic workup and biopsy in you signature and put in the salient details of your path report, which I just looked up. For men who opt for surgery, that report is paramount, and biopsy info becomes background. Are you monitoring your PSA every 3 or 6 months?

All the best,

Djin
Posted 2/1/2022 2:49 PM (GMT 0)
GH,
Seems like you are recovering well enough. It's a process. Glad your PSA is staying undetectable. Don't be surprised if the anxiety continues to find you at PSA time. For most of us, I don't think it ever goes away, but it can be managed.

Good luck ahead!
Posted 2/1/2022 5:33 PM (GMT 0)

DjinTonic said...
Hi GH, I'm glad your PSA is still undetectable! All of us post-treatment men have to monitor our PSA for a good number of years. I suggest you condense your diagnostic workup and biopsy in you signature and put in the salient details of your path report, which I just looked up. For men who opt for surgery, that report is paramount, and biopsy info becomes background. Are you monitoring your PSA every 3 or 6 months?

All the best,

Djin

PSA every 3 months for 2 years, then every 6 months for 3 years.
Posted 5/9/2022 10:40 PM (GMT 0)
I had my 15-month follow-up last week. The PSA came back <0.04 which was different than the previous <0.06. I had it explained to me that when COVID came along they adjusted some of their testing methods to have the chemicals necessary to test for COVID (no idea what goes into this testing). Now they feel they can go back to their original methods and thus the <0.04. I asked about the other sensitive test I've read about and was told that at The James their ultrasensitive test is <0.04.
Posted 5/9/2022 10:46 PM (GMT 0)
Always good to hear of a success story. Hopefully many more years of great results to come, my best to you,
Jack
Posted 5/16/2022 6:36 PM (GMT 0)
Yea!
Thank you for posting. It's good to hear positive news.
I'm nearly six months post SBRT so I'll have to wait a while to see anything but so far so good.

Glen
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