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Posted 5/10/2007 9:05 PM (GMT 0)
Dear Pete,
How wonderful to hear the progress you have made. We will all be waiting to hear from you tommorow.
I think the worse part of surgery is the anticipatory anxiety....what is going to happen, how sick will I feel? I know from experience how many patients head into surgery with tears in their eyes and after surgery they are so glad it is behind them they shed more tears.
Bless you my friend.
Posted 5/11/2007 1:23 PM (GMT 0)
Hi Pete!
Glad to hear you're doing so well. Just remember, as good as you feel, the lifting and straining restrictions should be remembered. Our Dr. said to lift nothing heavier than a phone book (ours is about 5 lbs) and Bob didn't do anything more than that until after his 6 week post op. check up, and has made a wonderful recovery.

We feel so good, but the body still has to heal.

;o) Bob & Linda
Posted 5/11/2007 6:46 PM (GMT 0)
Hi Pete, Glad to hear you made it thru the surgey well. I am 5 weeks out since surgery and beginning to gain some control over continence,Yeah!!!!
I hope & pray that your pathology comes back good. I found reading this site to be very helpful in understanding my condition and I'm sure you will too! Good luck, take it easy and enjoy looking forward to beating cancer.

Anniea
Posted 5/11/2007 9:48 PM (GMT 0)
Catheter OUT!!!! yipppee, final path report, less than 1% involvement, Gleason 3 + 3

, no bladder neck involvement . Thanks again for everyone's support

Posted 5/11/2007 9:51 PM (GMT 0)
Great news Pete! Time to celebrate.

Joe
Posted 5/11/2007 10:05 PM (GMT 0)
Way to go Pete!!!

Best path report we could have hoped for. Now the recovery begins. Take it easy even if you feel really good. Healing takes its own sweet time...

Jim
Posted 5/14/2007 5:51 PM (GMT 0)
Hello all, sorry I missed a few days there. Catherter was removed Friday am using the pads but have had very little drips or leakage. I think starting the Kagels well before surgery really helped. I had also mentioned a while back that I was enrolled in a study regarding overcoming erectial disfunction

 after surgery. It is a ramdomized study of three goups, I am in the contorl group so I probably wont be posting much on the subject. Dont go back to see the Dr. till June so Ill quite down unless something comes up that you all need to know about!

Posted 5/15/2007 5:55 PM (GMT 0)
Glad to hear your pathology was so good and that you are feeling great. We keep checking on how you're doing since you're a week ahead of me. Hope you have good results in your ED study group.
Curt
Posted 5/15/2007 7:16 PM (GMT 0)
Curt- Glad to hear things wwent well with you too, good luck with the pathology report. As to the leaking you experiencing I think the fact that it only happens when your having BM's sounds like its something that is not uncommon. When do you get the sucker out? The 18th? I should tell you a little about that, I first had the xray cistogram, they fill your bladder with contrasting fluid through the catheter ( not uncomfortable) and check to see if the stiches have healed, if there is any leaking or blood clots. Then the catheter comes out. Its held in place by a balloon (I didnt know that) they let the air out and pull the sucker out , but before they do that they fill you wil saline again through the catheter. The removal doesnt really hurt, then they wait to see if you pass out the amount of saline they just put in.
Posted 5/15/2007 10:31 PM (GMT 0)
Thanks for the lowdown on the removal procedure. I don't have a date yet for removal. The Dr. said 2 weeks but the discharge papers said 10 days. We live 3 hours from our surgeon and so are supposed to have staples and catheter removed by the local urologist. They said we had to get a note faxed from the surgeon and he hasn't done it yet. Have to call again tomorrow to see if he has followed through yet.
Posted 5/16/2007 6:36 PM (GMT 0)
Update time twelve days post robotic laproscopic surgery. Things seem to be progressing well. Feeling fit and the aches and tenderness in my mid section are starting to go away. I have been doing well with the incontinance, have very minimal drips (probably if I had worn a pad pre-surgery would have noticed about the same amount!) Kagel-ing regularly. On the erection front not much to reprt, some morning stirings but thats about it. Dr. advised against any direct stimulation for at least two weeks post surgery ( so Im definately looking forward to this weekend!)   

Posted 5/16/2007 7:27 PM (GMT 0)
Hi ~ Pete, You are really coming along nicely…..   You’ve set your goal on HealingWell and this is a good thing!   It truly will pay off in the long run.   I enjoyed reading *Pianoman ~Tom’s  posting on Mamma bluebird thread you started…   We say these things to help remind you that you are on a wonderful stepping-stone… recovery/healing.   Hugs comin’ at you!!!!! Keeping you close and glad you’re staying close too!!! In Friendship ~ Lee & Buddy   **********  Posting below….from thread titled: *** Mamma bluebird by Pete42 (May 14th)   Fantastic!!!!   Pete ~ You did “Great”….. Thank you for this special thread *** …   I’ve just read your postings and you truly have done well.   Now ~ you know mama bluebird chirps~chirps~chirpsss!!!   You are on the healing/recovery stepping-stone and you must stay here awhile.   Don’t you dare go and hurt yourself because you are feeling so good….   (hernia surgery is not what you want to look forward too)…. Okay…. enough harping … hmmm chirping….   We are so excited to hear from you and your daily/weekly updates….. keep them coming!!!!!!!!!      I just went and looked at your Group Hugs and you were surrounded with STRENGTH…… You took care of yourself and you started Kegels early!!!!   This says so much and others will read your Journey and will gain so much from it.   Thank you for you my friend. Take care and know we are there with you in thoughts and prayers. Hugs from Lee & Buddy     Pete42 Threads: Decision Made Proton Therapy Mamma bluebird   Thread for Pete from Forum Friends: Group Hug ~ for Pete42 ~ Surgery Day coming up!!
Posted 5/17/2007 10:31 PM (GMT 0)
You are coming along great pete :) good to hear!
Posted 5/18/2007 5:31 PM (GMT 0)
Two weeks post op. I would say that things are coming along really well. I started back to work on Monday ( I have a desk job) I have been staying a little longer each day but usually can last 5 hours or so. I'm experienceing various aches , almost like an old house creaking and breathing! Nothing serious, I'm up to walking 2 plus miles a day for which my yellow lab Maggie is VERY appreciative. Continence is good, I thik I can ditch the pads, I'll try without this weekend. Not much in the ED department , an occaisional stirring but this can be "achy" as well. Gonna try some play time this weekend (Too much info?!).

Posted 5/18/2007 6:25 PM (GMT 0)
HI Pete,
I am so happy that you are doing so well and 2 miles a day, that is great.
To much info?????? You made me laugh This is your site, and I feel like you have the right to tell your story.
(((((((((((((HUGS)))))))))))
Posted 5/18/2007 6:50 PM (GMT 0)
Pete - sounds like you're doing great! It pays to progress at the pace that's right for you.

Peace,
Susan
Posted 5/20/2007 3:54 PM (GMT 0)
Hi Pete,

I have not had a chance to check in since before my own surgery. I'm happy to hear that you are comming along so well.

You mention getting a cystogram test above. I don't remember CoH telling me about that test. Does CoH give all of us the cystogram before cath removal?

Cheers,
Joe
Posted 5/20/2007 7:21 PM (GMT 0)
I would imagine the answer is yes, Im sure that they have to be sure the stiches are taking before they remove the cath.

Posted 5/23/2007 3:56 PM (GMT 0)
quick update, things going along well. No more pads! Three weeks out.

Posted 5/23/2007 8:42 PM (GMT 0)
Congrats Pete, I just put my first Pad on today. I hope I do as well as you have.

Cheers,
Joe
Posted 5/24/2007 9:32 AM (GMT 0)
Hey Pete,
Sounds like you're doing good? I get the catheter out tomorrow. It's been two long weeks. I'm going to make a fishing lure out of part of the hose. It's been such a pain in the a** that I've decided to get some happiness out of it somehow. Maybe I can catch a bass or a pike on it.
Curt
Posted 5/24/2007 5:00 PM (GMT 0)
Curt- I know that tomorrow cant come fast enough for you. Im sure everything healed nicely and you'll have no problems post removal. Let me know how it goes and if you have any questions. Pete

Posted 5/25/2007 6:49 PM (GMT 0)
Quote from Pete42 on new thread titled: CVK started by Pete42 J Curt and Vicki - Waiting to hear how everything went today!   Reply post “Quote” from CVK on thread started by Pete42: CVK Hey Pete, The catheter is out. I have some irritation from when they pulled it out, it's starting to subside a little bit now. I'm having some leakage problems right now. Everytime I take a step it wants to squirt. I'm having a hard time being able to control it because of the irritation and I'm having a hard time determining what's going on right now, due to that. I can't tell if I have urinate or if it's just the irritation. It's only been a couple of hours though and I'm sure glad to get rid of the catheter. It feels so much better walking around without that thing jerking. I'll keep you updated. Curt     Hey Curt & Vicky, Just a little note to let you know we are “ Thinking of You” and helping to keep your journey together!!! I hope you don’t mind me copying and pasting this info here too!!   For those who will read later down the road will definitely want to see the story continued…   J   We will look forward to hearing how things transpire over the next few days for both of you.   You’ll hear this time and time again…. But it is true.   Take one-day-at-a-time and know we will be here for each of those days!   Hugs ~ to both of you.   In Friendship ~ Lee & Buddy
Posted 6/4/2007 2:46 PM (GMT 0)
Just checking in on you!!!!! Hugs from Lee & Buddy
Posted 6/4/2007 3:30 PM (GMT 0)
Ain't you sweet! Im doing real well. Feeling fit and having little to no incontinence problems. Slowly working my way back to the gym. Had big party for #1 son's high school graduation this weekend. Everyone comenting on how great I looked! No real progress on the erection front but Im trying not to get too anxious about that. Thanks for thinking of me Mamma bluebird, you're the best.

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