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Personal Question about ED Headling...

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Posted 1/13/2009 10:16 PM (GMT 0)
I finally got the pump and found that it, with the help of Viagra, produced SUCCESS!!

However, and I hope I don't embarrass or offend anyone, but when erect, I have a distinct pointing to the left as opposed to the "pointer" going straight ahead. I don't remember being like this pre-op, even though that was many months ago!

Has anyone else had this type of experience? Is this part of the healing process (i.e. some "chambers" healing before others)? Might this have to do with my "unilateral" nerve spare (nerves spared on the right side and NOT the left!)? Any insight is appreciated...

Also, I'm due for the three-month PSA tomorrow afternoon. I share the "test anxiety." Please keep me in your thoughts...
Posted 1/13/2009 10:27 PM (GMT 0)
Kark...I haven't had that type of experience...but seems to me that this could be a serious situation (Pyrones disease comes to mind) and needs to be checked by a doctor so that it doesn't become permanent. But others with more experience will chime in as to whether this is a normal condition or not.
Posted 1/13/2009 10:35 PM (GMT 0)
What does the treatment for Pyrones Disease entail?
Posted 1/13/2009 10:37 PM (GMT 0)
Gosh Kark...I have no idea...see if you can search google for some ideas until some of the members here can tell from first hand experience dealing with this type of disease.
Posted 1/13/2009 10:44 PM (GMT 0)
Kark,

400mg of vitamin E a day...nothing more since yours "may" be Kalami's and not actually Peyronie's. Kalami's is a condition otherwise known as, urethral manipulation sydromea nd yes, it is more common that Doc's are will ing to admit. It may wind up fixing itself as ED improves. The cause is different and it acts differently in most cases than would Peyronie's. Pump excersise is good for it but, don't over fill the tissues. Normal is good...the good year blimp is bad....simple to remember. You're already doing the right thing!

PS: Paul has had this same problem (which isn't a problem at all really) since about a year post-op. Hasn't gotten worse not better. Stays the same.

swim
Posted 1/13/2009 10:48 PM (GMT 0)
Thanks for the replies. Here is a link to information from Web MD

http://www.webmd.com/erectile-dysfunction/tc/peyronies-disease-topic-overview
Posted 1/13/2009 10:57 PM (GMT 0)
Kark,
I have the same situation. One Uro told me it was from the Bimix injections, another said it was from the surgery. I didn't have it prior to RP. It hasn't become any worse over time. The Dr. couldn't feel and hard tissue anywhere so I'm thinking it may be kalami's. Check it out with your Uro for sure.
Posted 1/14/2009 2:09 AM (GMT 0)
My curve has stayed the same since surgery. Everything seems to be staying the same for me. I would still ask your doctor about it.
KW
Posted 1/14/2009 11:33 PM (GMT 0)
I have a left pointer myself, 3 years post op.

It hasn't gotten better or worse so I hadn't given it much thought until I saw this post.

I too use Bi-mix, but I doubt it had anything to do with it although I have wondered about it.

As long as the thing kind of works I guess I am content!!

Posted 1/15/2009 2:00 AM (GMT 0)
Hello Kark,
From what I've read in the info on my pump, there may be some curvature either to the left or right. I've got to believe that it has something to do with nerve sparing during surgery. I am going to lose some of the left side on Monday and was told to practice with this device now and then compare the results with post op usage. Along with ED meds, this is supposed to enhance the healing process. Maybe over time it does and only time will tell. I have also read that sometimes the nerves will regenerate with exercise. Here's to hoping that this is the case.
Bob
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