HealingWell
Search Close Search
☰

Penile Curvature

Support Forums
>
Prostate Cancer
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 2/14/2009 7:27 PM (GMT 0)
I have posted several times about penile curvature after RP.  Some Uro's say it is from the injections. At least mine did.  Some say it is a result of the surgery.  Some of the guys here report curvature and have never injected.  I have an appointment with a new Uro who is not a surgeon and I will ask him about it.  I have had it over 9 months now and it has stayed about the same.  I am not sure if it is peyronies or kelami's which is caused by manipulation of the uretha during surgery or inflammation from the catheter.  Does anybody have any pertinent information based on their own personal experience with this condition?
Posted 2/14/2009 7:48 PM (GMT 0)
I think in my case it is due to the injections as I did not experience onset until after about 6 months of injectioin therapy. I have always been careful to alternate sides, use the smallest dose possible (in my case .15ml) and in the year and a half of injections have only done about 18.

I have a good friend who is also experiencing it. He was a bladder cancer patient who had his entire bladder removed a new one of sorts fashioned from a bit of intestine I think and in the process they removed his prostate. He has never used injeciton therapy.

Scott
Posted 2/15/2009 12:54 AM (GMT 0)
Bootheel,

If the curve is still unchanged (or gets better), wasn't painful and came on suddenly, it is Kelami's syndrome, not Peyronies. At least the medical description it would be Kelami's. There isn't much written on the subject but it's thought to happen in up to 20% of post prostatectomy men. Beta blockers, Caths, injury, injections, Duprenes contracture, chronic venous leakage....there are many potential causes. The usual complaint is a sudden onset, typically not painful curvature. The pump is supposed to help. Perhaps check on the "Peyronie's Society" forum for some answers and ideas.
Swim
Posted 2/15/2009 5:23 PM (GMT 0)
Thanks for the info swimom.
It hasn't changed, isn't painful and it did come on suddenly so that puts my mind at ease. It usually happens when I inject. I don't see it when I use the VED with the rings. Thanks again for the info.
Posted 2/16/2009 2:05 PM (GMT 0)
I have no idea what Kelami's is, but I can tell you that for me, the onset of Peyronie's was painful. It got to the point where it was uncomfortably painful as I was achieving an erection, the actual sex was fine, and then it would be painful again as I "decompressed." And I understand Peyronie's does not go away. Oh joy.

Just my two cents,

kcragman
Posted 2/16/2009 9:07 PM (GMT 0)
Hey Swim, don't know you.

Thanks for the references. In my case it is not painful, just can't have a proper penetration due to the new geometry, and it was sudden onset.

I am praying it goes away.

Scott
✚ New Topic ✚ Reply