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TEST -- I ask for your comments on an ED questionnaire

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Posted 8/13/2009 3:19 PM (GMT 0)
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Posted 8/13/2009 4:09 PM (GMT 0)
Thank you Geezer. I just took the survey. I hope it gets approved.
Posted 8/13/2009 8:01 PM (GMT 0)

Hello, I have been an active reader, but until now, not an active writer to the forum.  First of all,  the HW Forum is a very good source of information and psychological healing for me, as well as informative in ways of post PC Radical Treatment pitfalls and problems common to the forum members.

Second, I like having the survey to indicate that there is light at the end, or somewhere, in the sexual tunnel.   I would be happy to share some of my thoughts for additional questions and areas of survey missed with the test version if you are interested.

Please contact me through the forum or by e-mail, at [email protected].

Ris

19 months post radical wide excision at the Mayo Clinic.

Gleason 4-3 pre-op,  4-4 post op.

6 of 20 nodes positive.

Genetic typing Tertaploid variant.

PSA less than decectable since Surgury in February 2008.

P.s   I know a lot about the DX 010 study at Mayo, and have a treasure trove of history on the Osbond, Tri-mix and other ED use.

tongue  

Posted 8/13/2009 10:05 PM (GMT 0)
This is my first time on the blog and just completed the survey so will be anxious to see the results and where I am at.  I discovered I had cancer by complete accident as I was fishing off the coast of Florida and drinking beer.  I fell and hurt my wrist which swelled up tremendously.  I was concerned that I broke it and stopped by my doctor to see if it was.  He said it was not but said while you are here let me have some blood.  I had to catch a plane and did not want to argue with him so do so.  A week later he called and said my PSA was 4.7 (I had never had a test before and did not know what a PSA was).  He said because of my age (52) he wanted me to have a biopsy which I did and they found out that I had cancer in 6 of the 12 samples taken and was a gleason 8.  I had robotic laposcopic surgery on 11/3/08 and took a couple of months off from work.  The cancer was contained in the capule and after the pathology report I was down graded to a gleason 7.  He spared the nerve on one side completely and said he had to shave some off of the other one.  I was incontient not to bad for about 4 months or so and now normal.  I had trouble with erections for the first few months but recently and I mean in the last few months I have been having erections when sleeping and with the help of levitra within the last month or so have been having pretty good erections.  about 6 weeks ago I received .3 ml injection of trimex by doctor and had an erection for 5 hours and had to go back into hospital because it would not go down and they had to drain the blood out and give me some meds.  I know this sounds delightful to everyone but I can tell you it was not to much fun and hurt.  The doctor told me that I might have reacted this way because I was close to a normal erection anyway and might have been hypersensitive to the shot.  Does any of this make sense to any of you and what do you think I can expect going forward?

Thanks for you time.

Posted 8/14/2009 5:35 AM (GMT 0)
I have drafted up some extra questions for the survey, but put them aside, thinking that maybe there was enough in the survey already and not wanting to complicate things. But as RIS may be thinking what I was thinking, here are my thoughts:

My questions concerned firstly the quality of our erections -- basically a scale of 0-5 with suffixes to indicate how we get those erections -- eg B for constriction band, O for Oral Ed meds, M for manual stimulation and so on. I am still in two minds as to whether we should include erections induced by pump or injection, as most of us with practice, could get quite reasonable erections by those means.

Next I am aware that for ED there is a continuum from completely nothing to everything. I envisioned a series of checkboxes that indicate where we each are along that continuum. Some way points that I think might be significant:
* thickening or lengthening
* responding to injections, pump, oral ED meds
* nocturnal erections
* spontaneous daytime or evening natural erection, without stimulation
* responding to visual or manual stimulation
* and probably more

If there is any interest in these topics, I'll dust off my draft and post it here. Otherwise, I am quite happy with the survey as it stands now.
Posted 8/14/2009 9:32 PM (GMT 0)
I took the survey. Is there any way to view the results?

I downloaded the Snap e-viewer, but it requires a "file" as input to the viewer.

thanks.
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