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Posted 3/30/2010 9:11 PM (GMT 0)

Hello, after reading all the different stories you men have gone thru, I thought this would be the right place for me to join. I just got out of the hospital 30 days ago. My only pain I have left is in the tip of my penis and in my perineum. Once a day my penis gets so sore, it is hard to touch and then it goes into extreme pain. I have to sit with no diaper and in 5 minutes, the pain goes away. The same for my perineum. It is hard to sit in a chair or even the couch. It is a constant pressure in that one spot. I usually lay on my side. What could this be from or is it just part of the healing process?

I have also experienced alot of emotional stuff. I find myself scared, and full of anxiety. I feel like I am insecure and worrying  alot about my cancer. Is this too, just a process that comes with this battle? I appreciate any help I can get. This is very hard on me.

 

 

Age, 59  - with spouse,  Emily
PSA, 10/2009- 2.00  Then  12/2009 - 4.9
Prostate Cancer Biopsy,  November 25, 2009 
Radical Prostatectomy Operation, Feb 18, 2009
Biopsy,  Adenocarcinoma, Gleason 8 (4+4)  T1c ,  Organ Confined (OC) 46%,  Capsular Penetration (CP) 45%, Sem Ves (SV+) 5%,  Lymph Node involvement (LN+) 3%
location,  Torrance, California

Posted 3/30/2010 9:30 PM (GMT 0)
Sam, welcome to the forum, sorry you are here, but glad you came. Thanks for sharing your journey so far, and I hope your recovery continues a little more uneventfully. Hopefully the pains will stop as you heal and regain strength and muscle tone. Yes, those emotional feelings after surgery are common, not that many would admit it, but fear , worry and even depression is common as a post-surgery sympton, so knwo that you're as 'normal' as the rest of us, in that category, at least. smilewinkgrin
Posted 3/30/2010 11:11 PM (GMT 0)
Hang in there Sam you will have brothers herein to guide you through especially the post surgery stuff and life living support. I was refused surgery by Dr. Menon and for righteous reasons, my stats were that bad, the good news, so far doing well and 8 yrs. since Dx-2002.
Posted 3/30/2010 11:41 PM (GMT 0)
Sam - did you have the open RP (front under the belly button ) or the retropublic RP?
-I found it very difficult to sit after my open RP operation - mostly in part to the catheter I had for 3 weeks

- I found comfort lying on the lazy-boy chair - took the pressure points off the area that hurt.. also easier to get out of, sort of a roll out the first few times .. our couch was too low and difficult to get out of...

BUT if it is more comfortable to lie down - lie down - even with all the "noise" going on with your mind and worries - you'll get to tune into what works out best for your body....

Also, keep in mind your body has been through a bit of trauma - before, after and during the surgery - and hormones, chemicals and statistics and emotions are all bouncing around - I hope you and Emily have a good communication going on - to help smooth out the rough bits.

There is a women's only support site for wives and caregivers - www.ladies-prostate-forum.org/ladies/ - the moderators have a larger list - just do a search for: Prostate Cancer Forum for Ladies Only

Wishing you all the best.

huygs
BRONSON
Posted 3/31/2010 12:07 AM (GMT 0)
Welcome Sam,

Hopefully the pain will ease soon as you are only 30 days out of surgery. Felt like I slept on my side forever due to the surgery. The eomotions are part of it and as James said they are normal given what we have been thru. I am at a place now where I have bad moments but not bad days. Still worry on occasion but that has diminished as well. This is a good place to open up as well, and in a way it doesnt put as much stress on the relationship as we develop addtional supports. Keep us posted and once again welcome to HW.

Michael

Posted 3/31/2010 1:33 AM (GMT 0)
Sam,
The standard line is "welcome to the place none of us want to be", but as always, it applies. Welcome.
The perineal pain is to be expected. I still have a bit of annoyance (not pain, just numbness) after 23 weeks (but then I am not a poster child for good recovery). I have about a three hour "seated" limit, at which point I have to move around a bit. If you have not gotten one of the foam "doughnut" cushions, it might help. I learned to love mine after colon surgery, and even more now. I'm not sure what chains of stores you have access to, but this will often be considered part of hemorrhoid care supplies.

For the pain in the penis, it may be the position it finds itself constrained to in the pant - that was something I did not expect, but the "new" position caused a sort of deep cramp. You might try to carry it as you did before surgery, and see if there is a change.

I think that we all have bad days. I find that it is more difficult, not having a wife or partner, but I do have good friends who help, and friends here on HW. Rolling up in a ball and hurting is allowed. If you said you didn't, I wouldn't believe you. But you get up, and make another step forward.
Posted 3/31/2010 3:56 AM (GMT 0)

Sam

Welcome to the group.  You will find such caring and informative people on this forum.

When I read that you have experienced a lot of emotional stuff and that you find yourself scared, and full of anxiety...insecure and worrying  a lot about your cancer, I recall my own feelings during my PCa journey.

This worrying is indeed a process that comes with this battle.  As I was, I am sure you were plenty stressed prior to the surgery. 

At this point you are only 30 days out of surgery.  Your stress is perfectly normal and understandable.

Please keep us informed of your progress.

Skeener

 

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