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Rapid increase in PSA after radical prostatectomy: Prognosis?

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Posted 4/22/2010 2:05 PM (GMT 0)

My signature line about says it all.  It seems like I have major side effects to every treatment I've tried,  including ED meds...

I can't get a straight answer from any of the three docs I've seen from M. D. Anderson to my local oncologist:

   Since I'm starting on Lupron, is it a given that I'll lose interest/ability to perform sexually?  One doc prescribed tri-mix, but my wife doesn't think it is worth getting filled if I'm going to start Lupron.

   Also, would anyone hazard a guess at the overall prognosis for lifespan or quality of life?

Thanks for any help...

Posted 4/22/2010 2:22 PM (GMT 0)
Glen

You didn't state your age, so was curious about that. I also had a PSA of 6 and a Gleason of 9. However my post surgery PSA has been much slower in rising. I'm now at 0.03 at 22 months post surgery.

I'm using Trimix and can state that it works extremely well. The only ED drug that has worked partially, was Levitra. But I never get more than 75% of a response and it doesn't last that long. Which is why I went to Trimix.

I'm sure other guys will respond to the issue of using Trimix with Lupron. I would go ahead and get the Rx for Trimix. 

Posted 4/22/2010 7:28 PM (GMT 0)
Glen,
From everything I've read from guys here who have been on HT, they had no libido during the treatment so your wife is probably correct in no filling in the trimix prescription until after you are done with the HT.
Posted 4/22/2010 8:37 PM (GMT 0)
I was on lupron for 3 and a half years. yay... I didnt have much libido at all but my 30year old wife did. So I used the trimix which is much cheaper than other e.d.drugs and faked the climax. I'm not sure but it seems my wife and I switched roles. lolol Even without libido the trimix works extremely well and you can make it over the top if you want but once she was done 3 times I just faked it cuddled up and went to sleep.
Posted 4/22/2010 10:47 PM (GMT 0)
Glen99 you have the normal up front questions that especially worry a newly treated patient or diagnosed one. Send me an email we should talk and you should look at and compare to all other cases you can (but direct comparisons is not the same of how exactly anyone else may fair...PCa is diverse, still good to look at everything), go to www.yananow.net and see experiences/mentors and look at patients experiences and histories with fighting PCa.

Myself did the hormone therapies ADT3 for 2yrs., then went to different drug that out performed those and done very decent on it for alot of years now. My original stats were terrible and so I got actually more than 8 opinions, some were sales pitches and not totally fair to the patient. I am still here( 8 yrs.+) and doing better than I thought I would based upon original stats and total urinary blockage from PCa. Hopefully you can do very well and maybe the new things will be here for all survivors. Suggest you read the book: A Primer on Prostate Cancer-The Empowered Patients Guide- Dr. Strum & Donna Pogliano (your new bible on PCa).
Posted 4/23/2010 12:49 AM (GMT 0)
Glenn, very sorry to about your situation. I have a rising PSA, but at least I had 9 months of undetectable PSA. Now I'm at .31. I'm currently trying to find a doctor and treatment facility that I am comfortable with and plan a course of action. I have been relatively happy with the doctors that I have seen so fair, but I have found that they tend to sugar coat things. Maybe it is because I walk intom their office with that "deer in the headlights" look. I have got to work on that. Try to find a doctor that you trust. Good luck. Frank
Posted 4/23/2010 2:02 PM (GMT 0)
Thanks to all who responded.

I'll follow through on the suggested publication and web site... I'm amazed at the wide range of symptoms, agressiveness, responses and treatments for PC. I guess there really are too many variables to help predict the course of this illness.

I'm finding it hard to 'get on with my life' with this storm of unknown intensity hanging over me...

Glen

PS. By the way, as stated in my revised signature paragraph, I was 60 when diagnosed early last year.
Posted 4/23/2010 3:43 PM (GMT 0)
Glen , welcome to Healing Well. The guys seem to have taken you well in hand, so I hope you find your time with us informative and that you will stick around. smilewinkgrin
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