The insurance companies are tough on this, because they can be, I guess. I filed an appeal, got letters from the right doctors, and they still refused it. Appealed that, and lost again. Since I was trying to accomplish the 5mg daily dose, and the limit for my insurance is 8 pills monthly (counted, not by dose), we shuffled the prescript
ion to be for the maximum 8 pills of 20mg, and I cut them up.
I do beg samples from any doctor I see - both my uro and GP have them in unpredictable brands, doses, and quantities, so I've been known to take what I can get.
It is interesting, and I think someone else mentioned, that Federal law requires insurance companies to pay for reconstructive surgery for the ladies with BC. Won't go any farther with that, and don't anyone reply to it lest we go off the political cliff.
Good luck.