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Posted 3/6/2013 4:44 PM (GMT 0)
Had my open surgery 10/09 and finished radiation 7/10. Since radiation, things have been lousy.  I have to get up to pee three times a night (no medication has helped to relieve this problem).  Walk around like a zombie some days because of lousy sleep.  Bowel movements continue to be 2-3 times a day.  It seems like every time I go out to a store or someplace, my bowels say "find a bathroom now or you will get a surprise in your pants!"  To pass gas is always a gamble.  Incontinence, up until now has not been a problem.  Occasional stress leaks, pissed in the bed during the night on one occasion.  But, the last two weeks have shown a new level of problems.  I have wet the bed twice.  The past week, on two occasions while watching TV, I have fallen asleep and wet myself and my recliner.  I am also suffering from bad night sweats (only around the neck).  Doctor did blood workup and everything is fine, including a PSA of <.05.  I always heard that side effects from radiation can take awhile to start so I guess that is what is happening.  ED has been up and down (no pun intended).   I just find it frustrating.  I am fortunate that my PSA continues to remain negligible and I have been able to avoid the need to start HT so far.  Just hope that I don't have to start wearing pads again.  Rant over.  Feel better now.   Aloha.  Squid.
Posted 3/6/2013 7:43 PM (GMT 0)
Seems like there is no silver bullet for treating this horrible disease. I had the Robotic removal two years ago and still have some incontinence and ED. It did not effect bowels. I don't know too much about radiation but it sounds like you may have some scarring. It's hard for me to remember when I didn't where a pad. Leakage is mainly at night when relaxed. If I take a Bayer PM tablet to assist sleeping then I wake up soaked. And yes I also find it discusting too. I suppose we both should be glad our PCa is in remission because it could be worse. Rant anytime my friend.
Posted 3/6/2013 7:49 PM (GMT 0)
I agree that the "0" PSA is worth the inconvenience of occaisional wet pants. 

Posted 3/6/2013 10:27 PM (GMT 0)
Hopefully with proper medical help, all the ailments can be dealt with. I will go out on a limb and say stress may be the main cause of it all. I was about 9 days after after you with my open surgery. I also pee 2 to 3 times a nite have insomnia and dump 3 times a day. I am not running to restroom so as to avoid accident however. Are you a member of any support groups locally. the incontinence hopefully will settle down. Its difficult, I know. As I remember you are an older man from HNL retired navy?? if you are not active, don't mean exercise necessarily, just out and about that beautiful island, talking story at mall with other retireds, hobbies,volunteering etc. I do remember you and hope, this is more a vent and maybe a few bad days. Drive to north shore on big surf days, watch that power, ease up on yourself. It seems you have beaten this disease. Thats the good part. the rest can be medically handled hopefully. I take a couple of benedryl to ease insomnia. good luck SubicSquid, Aloha Nui Loa
Posted 3/6/2013 11:19 PM (GMT 0)
Actually, I wish it was stress. Then I would know how to work the problem.  Actually, living here with the perfect weather, slow pace of living, great food, a great and non-demanding job, great grandkids, etc.  I find stress not a problem.  I think I just feel sorry for myself sometimes because before the cancer, things were even better.  Anyway, there are so many people worse off than me.   I have my 5-yr colonoscopy sceduled in May so if there is scarring causing some of the rectal problems, maybe it will show up then. I'll just keep on truckin' and if I need to go back to pads so be it. Squid.

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