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PSA is back/detectable 3 years after surgery

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Posted 10/12/2014 12:34 PM (GMT 0)
First PSA detection was .034 July 2014 and now it is .021. Is there any information on those who have had surgery and the PSA came back some time later, but never continued to rise?

Maybe I am going through denial again.
Posted 10/12/2014 1:31 PM (GMT 0)
Will be interesting what the smart guys on this board have to say about this. Take care buddy. Missing you.

Cajun Jeff
Posted 10/12/2014 1:46 PM (GMT 0)
At 3 years you only have tiny PSA. Most would consider you a member of the zero club still. You could be for a long time.
Ornish had a study of Gleason 6 AS guys who did well on special diet.
Don't know if it would apply to a Gleason 9 after surgery.
For now you are testing as you should be. You could consider a special diet, etc. You might watch the Meyers videos.
Good luck.
Posted 10/12/2014 3:29 PM (GMT 0)
Hey Startech,

Sorry to hear about the setback. I hope you get some good answers here from people more knowledgeable than me.

I vaguely recall seeing something on Dr. Snuffy Meyers' forum about PSA rising and leveling off. You might want to look through his videos:

www.prostateforum.com

Best of luck and hang in there. You've got a lot of people pulling for you.

Jonathan
Posted 10/12/2014 5:31 PM (GMT 0)
Do you mean .21?
Posted 10/12/2014 5:41 PM (GMT 0)

mspt98 said...
Do you mean .21?


Ditto, same question. Also, was your PSA .034 July 2014 and now it is .021? IOW it dropped about 30% from July? Unless you meant .21, which you probably did?

Also, do you know the actual 1st few PSA #s after surgery? Like, rather than just "0" or "zero club until 7/14", something like , <.01 or < 0.1? just curious!

Bill

Post Edited (BillyBob@388) : 10/12/2014 12:47:15 PM (GMT-6)

Posted 10/13/2014 12:04 AM (GMT 0)
My understanding of undetectable is anything less than .1 usually written <0.1. You should still be undetectable..

I am 0.1 now, I just came out of the undetectable range.

Bill from Florida cool
Posted 10/13/2014 1:51 AM (GMT 0)
I am not a scientist or a doctor, but are we just fooling ourselves with the non-detectable stuff ? Star tech, like myself tested <.01 for many months. Whether it is .01, .02,or .06, on a consistent basis, it us indeed detectable.

The real question is, does it matter. I happen to believe in trends, more than actual numbers. If we see it go from <.01 to any number, increasing over time, I think it establishes a trend, some argue it is benign prostate tissue. Where was if for z2 years, and why is it slowly, or rapidly increasing.

We can fool ourselves and say, I don't recognize it until it reaches .1 or .2, but it is still there, what I don't know is what to do about it.

I am looking seriously at Avodart. It appears to be a weak testosterone blocker. Not sure what it really does to the PC, but it appears to be effective in lowering PSA. Any comments would be appreciated.

Goodlife
Posted 10/13/2014 2:07 AM (GMT 0)

goodlife said...
I am not a scientist or a doctor, but are just fooling ourselves with the non-detectable stuff ? Star tech, like myself tested <.01 for many months. Whether it is .01, .02,or .06, on a consistent basis, it us indeed detectable.

The real question is, does it matter. I happen to believe in trends, more than actual numbers. If we see it go from <.01 to any number, increasing over time, I think it establishes a trend, some argue it is benign prostate tissue. Where was if for z2 years, and why is it slowly, or rapidly increasing.

We can fool ourselves and say, I don't recognize it until it reaches .1 or .2, but it is still there, what I don't know is what to do about it.

I am looking seriously at Avodart. It appears to be a weak testosterone blocker. Not sure what it really does to the PC, but it appears to be effective in lowering PSA. Any comments would be appreciated.

Goodlife

Goodlife, I think you are making a really good point.
Posted 10/13/2014 12:23 PM (GMT 0)
Sorry for the delay everyone, I am traveling in an out of Internet service.Thank you goodlife, you are correct I was actually undetectable for 35 months. the big change is that I am detectable now, although the number is very small. .021 is correct.
Posted 10/13/2014 4:32 PM (GMT 0)
Startech

My my PSA 3 months after surgery in 2002 was 0.03. It reached its lowest point of 0.01 a year later. It subsequently rose slowly and with several pauses -- stayed at 0.04 for a year and the rose to 0.1 and stayed there for about 3 1/2 years before it started moving again. I ultimately had SRT, but not until a bit more than 7 years after surgery. So, in my case, the PSA never vanished entirely and then rose, but very slowly. Since my SRT my PSA has been totally undetectable 0.00 for 4 years now. Though I'm heading out for a blood test right now and will know in a day or two if my luck is still holding.

Anyway, with your current reading you could very will stay below the threshold for further treatment for a long time and perhaps forever.

Jim
Posted 10/14/2014 12:14 AM (GMT 0)
Jim, your case is very encouraging for me. thank you for sharing. Let's hope I'm as lucky as you were on my journey.
Posted 10/14/2014 4:09 PM (GMT 0)
Star: you're still in the Zero category....the numbers i keep hearing is that docs don't consider it "back" until they see two readings of 0.2 [that's WITHOUT the zero after the decimal point !]... you're a long ways from there; don't sweat it...
bob
Posted 10/15/2014 6:21 PM (GMT 0)
I know an increase is worrisome. I am in the same boat. I was a Gleason 8 and after 6 years my PSA has been .02 since April. Will retest next month. Hoping it stays the same but will probably start SRT at .05 or .06.
Posted 10/16/2014 11:47 PM (GMT 0)
thanks for responding you guys.right now I am holding at. 02, and if I see a rise trending, will probably look at SRT at . 05
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