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Posted 12/4/2014 2:30 PM (GMT 0)
Hi guys,
I'm new here and I realize this is a prostate cancer forum but I don't know where else to turn, maybe some of you could help me.

I have several questions/problems, so any input would help.

I have been dealing with prostatitis (chronic pelvic pain) off and on for about 15 yrs. Recently I have done something to irate my prostate really bad. I have all the same symptoms as yrs past (peeing alot, burning, pain etc.). I have been doing all the usual "fixes" to help with this (diet, warm baths, supplements, oxybutynin, cardura.

Here's where things have changed.....

1.flaccid penis never "fully" goes soft
2.if I don't ejaculate every other day, I end up becoming aroused very easy (but with only partial erections)
3.Erections are only 80% length & strength
4.night time woody's (partial cubby's) every night all night off & on (this was not normal before)
5.testicles always hang very low and heavy (not normal for me)
6.flaccid penis always longer and fuller than usual (feels heavy/kind of swollen but doc says "looks normal")

Again any input will help! Thank you
Posted 12/4/2014 3:33 PM (GMT 0)
Hello BadBone, welcome to the forum! Sorry your troubles brought you here but glad you found us. Hope we can help.

What does your urologist say about all this? Here on the forum we will worry about your prostate first. Do you know your PSA? You mentioned several BPH drugs, have you talked to your doctor about treatment options? One of the problems with chronic prostatitis is that it can mask the signs of prostate cancer -- a man and his doctor get used to a high PSA and various pelvic floor/urinary problems and sometimes valuable time is lost. There are more specific tests that can somewhat sort out the signs and symptoms of prostatitis vs prostate cancer.

As to the rest of your symptoms, have you changed any of your meds lately? New blood pressure drug, maybe? Symptoms 1,2,3,4, and 6 sound like a man with mild ED whose wife is secretly spiking his soup with Viagra.
Posted 12/4/2014 4:15 PM (GMT 0)
Peter,
Thank you for the reply!

My uro, didn't check my PSA level (I will ask why) as he gave me the good ol digital exam and said nothing felt abnormal. As for now, the drugs I take are the same ones he gave me 15 yrs ago to help with the prosatitis.

When he looked at my "stuff" he said everything looked normal, well I can tell you I've looked and handled my "stuff" alot more than him and it just doesn't look or feel "normal" for me as per my symptoms.

I haven't changed any meds lately, however I did start taking a supplement called prostavar rx to help with the prostate but I didn't start taking until a couple days after everything started hoping it would help.

I don't doubt my pelvic issues has led to mild ED issues. As for my wife spiking my soup with viagra....I could only wish! My wife suffers from UC and has very little interest in intercourse as it has become at times painful during and or afterward for her....the result becomes the lack of desire...can't say I blame her!

Thanks again and maybe yourself or others have more ideas.
Posted 12/4/2014 4:20 PM (GMT 0)
Assuming you are 45-50 or older, I would seek another opinion on whether to take a PSA. Or just insist with your present Uro that he do it. It seems to me, that a normal DRE by itself is not a reason to not check PSA. Unless perhaps you had it done fairly recently.

You know your body better than anyone, and unless you are neurotic (don't be offended, I am, and there's nothing wrong with it) then you know better than your doc of somethings not right, if no tests have been done.
Posted 12/4/2014 4:32 PM (GMT 0)
Pratoman,

I'm 44 yrs old and was first dx with protatitis at age 28. I just had a DRE about 3 weeks ago, however I should probably push for PSA.

I'm very neurotic (no offense taken)! Nothing worse than a dr telling you everything is normal when you know it's not. I will dwell and dig until they figure it out or I do myself. Hard to accept "we can't do anything more" when it's your one and only shot at life.

I am scheduled for a CT of my pelvic area on the 15th....maybe...just maybe I'll get some answers????????
Posted 12/4/2014 4:58 PM (GMT 0)
BB43,
Please get your PSA tested, insist on it.
The size of my prostate was not an issue, it was mildly swollen, but my PSA was over 20.
Posted 12/4/2014 6:01 PM (GMT 0)
alephnull,

I believe that I'll be making that phone call today!

Thanks
Posted 12/5/2014 3:01 PM (GMT 0)
Has anyone here got persistent partial nocturnal erections? It my seem like a good thing but believe me it is not! Any ideas?
Posted 12/6/2014 4:02 PM (GMT 0)
Hoping for any ideas???????? Anything?
Posted 12/6/2014 4:51 PM (GMT 0)
That sounds so frustrating.

Is there a decent medical center near you, such as at a teaching hospital??

You need some kind of workup.

If it is any consolation, what you are describing does not sound like PC at all.

Mel
Posted 12/8/2014 1:41 PM (GMT 0)
complier,
Thanks for the reply. I finally got my uro to admit he was out of his league and will now get a referral to UW in WI!

I'm hoping I didn't form some kind of stuttering priapism?????
Posted 12/8/2014 1:57 PM (GMT 0)
Bad,

The main danger of priapism is that with a very hard erection the blood is trapped and cannot leave the organ resulting in tissue damage from lack of oxygen. So I wouldn't worry too much about that since you don't describe your nocturnals as tent-pole events.

Glad to hear you going to see specialists about your problem. Let us know what they say. Oh, and don't forget that PSA test...
Posted 12/8/2014 3:04 PM (GMT 0)
Will do.............thanks again guys!
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