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Train like you race...ED

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Prostate Cancer
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Posted 3/25/2016 11:07 PM (GMT 0)
I'm not trying to jynx myself, however ED is a real SE of all treatments. Do you think it would be wise to try out all forms of ED treatments now, instead of waiting till I might need them? It might help influence my treatment decision. For example, if I find the ejection not so painful and practice ways to incorporate it into foreplay, RP might not be do scary. Conversely, if I can't stomach shooting something into the heat seeking moisture missle, I should know that now.

I take a cialis now and then and boy it works except for lower back pain.

I don't know if anyone has taken this route but I,ll never race a course I haven't reviewed. Who's rolling with me? You go first.
Posted 3/25/2016 11:34 PM (GMT 0)
I think using the needle when you don't need it is unjustified and maybe dangerous. And ED should not be the main basis for your treatment decision but I understand your concern being so young and engaged. When you speak to Surgeons and radiation oncologists they will tell you the potential risk of ED using their treatments. If you don't have ED now you are less likely to have it after treatment. But even if you do have ED after treatment , recovery will be quicker. ED happens sooner after RP and years later after radiation. If you already have ED it will be worse after treatment. There are plenty of white papers on this subject .
Bob
Posted 3/26/2016 12:19 AM (GMT 0)
Interesting theory. I say why not tho I would exclude the injection method. I understand peryonies syndrome can be an issue with that…not sure. I will say this about RP and BT{not up on the various BT manifestations available} I have seen very few complaints on BT from the HW family and quite a few from RP folks. I had open RP 8 weeks from diagnosis, due to my lack of knowledge. As it turned out it was not a bad call as my gleason went from 6 to hard 9 4+3 tertiary 5. It was totally confined within the prostate. BT could have done the same I believe with much less grief. So it goes.. Bottom line Im good with where I'm at… if I had known tho it would have been BT
Posted 3/26/2016 3:39 AM (GMT 0)

brava said...
I'm not trying to jynx myself, however ED is a real SE of all treatments. Do you think it would be wise to try out all forms of ED treatments now, instead of waiting till I might need them? It might help influence my treatment decision. For example, if I find the ejection not so painful and practice ways to incorporate it into foreplay, RP might not be do scary. Conversely, if I can't stomach shooting something into the heat seeking moisture missle, I should know that now.

I take a cialis now and then and boy it works except for lower back pain.

I don't know if anyone has taken this route but I,ll never race a course I haven't reviewed. Who's rolling with me? You go first.

But, even if you find the injection not so painful, that tells you nothing about whether or not it will work for you after you have had surgery. Or whether you will get Peyronie's from either the RP or the injections, or whether or not little Brava will shrink, or whether you will leak/ejaculate urine during orgasm or even just having a sexual thought. Am I leaving anything out? Oh yes, the possible trip to the ER for 4 hours of excess success. Oh yes #2, nor tell you if even though you might be able to get a fine result from injection or even without(as some do), nevertheless all or most pleasure from orgasm is gone,or even worse, they are downright unpleasant and something you end up wanting to avoid..

And I suppose, finally, some combination of all of the above. No way to know about any of that until a few weeks after surgery and you decide to give it a go and find out how lucky you are. Or not.

So I'm not sure I see any benefit to your trial. although, I suppose that if you find injections a real horror show, that might decrease you willingness to take the gamble on all of those things.
Posted 3/27/2016 2:53 AM (GMT 0)
Do yourself a big favor and get Dr. Mulhall's book, linked below. He's one of the world's leading experts on ED as it related to PCa treatment.

Gedman
Posted 3/27/2016 11:59 AM (GMT 0)

brava said...
Do you think it would be wise to try out all forms of ED treatments now, instead of waiting till I might need them?

Probably not. Just because they work now does not mean they will work later. If ED is such a big concern to you then pick the treatment that gives you the best chance of avoiding ED since it's likely that any of the main treatments will cure you.

Jim
Posted 3/27/2016 12:53 PM (GMT 0)
brava, as in all other things related to this disease, the outcomes and side effects are somewhat of a crapshoot. One article I saw related the decision process for treatment to having a large 'black box' covered with adjustable dials. Age, G score, DRE, other test scores, SE tolerance, etc etc. And each of us has to set the dials ourselves. And, slight changes in ANY dial affects the suggested outcome.

In short, there is not...and can never be...a simple formula that you plug in a few data points and you get a clear answer. In the end, we all walk alone that last step in the decision process. Just as we go into the OR or nuclear medicine room alone.

Just so you know how challenging this really is...there is one member here who was in pre-surgical prep who decided at that point that he wasn't ready for it, and stopped the process right then. And went out and did more research.
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